Lori DePorter
Forum Replies Created
-
Lori DePorter
MemberMay 22, 2023 at 8:46 am in reply to: Do you live in a Dementia-Friendly/Parkinson’s Friendly community?Dementia friends is an organization that educates about dementia…You can find out more about it at…https://dementiafriendsusa.org/
“As the disease progresses, people living with PD can develop more significant or severe memory and thinking problems, sometimes called dementia. The term dementia means that a person has permanent cognitive changes that are significant enough to impact daily living.”
https://www.parkinson.org/understanding-parkinsons/non-movement-symptoms/dementia
-
Lori DePorter
MemberMay 20, 2023 at 10:31 pm in reply to: Looking for Young Onset Parkinson’s FolksIf you are interested, I facilitate a young onset virtual support group sponsored by Johns Hopkins. It’s open to any YOPD…I can get you the information.
Lori D.
-
Lori DePorter
MemberMay 20, 2023 at 10:28 pm in reply to: Does it feel like your Parkinson’s journey is becoming more difficult? If so, how do you cope?I tell myself it’s not changing, but reality says otherwise. When I get overwhelmed, I put on the Foo Fighters song, “Times Like These” and box or start drumming.
“It’s times like these we learn to live again.”
Lori D
-
I interviewed a Dr from inightec for column
-
Most of the time, I do identify as disabled. There are some situations when I do not if it is irrelevant to what is expected of me. It is challenging to adapt to career changes with PD.
-
You can checkout an interview with Dr Desai…
Another  useful website
https://www.fusfoundation.org/
good luck!
-
Once again, I found myself with my family in the finger lakes of New York! I rarely have all my boys and their significant others in one place. I even went fishing with 2 of my sons on a mother & son day!
-
Lori DePorter
MemberAugust 22, 2022 at 10:36 pm in reply to: What Parkinson’s research studies are you following?I am an alumni of the university of Pittsburgh. They are doing cool stuff with Zebrafish!
-
My husband and my fellow PD warriors, especially the boxers I teach in my rock steady classes!
-
-
There are some resources as
well….
https://www.michaeljfox.org/search
https://davisphinneyfoundation.org/?s=Intimacy+
-
Lori DePorter
MemberFebruary 4, 2022 at 2:53 am in reply to: Tips for living well with Parkinson’s in 2022Awesome tips! And I too feel much better on the days I exercise!
-
Lori DePorter
MemberFebruary 1, 2022 at 8:33 pm in reply to: What symptoms did you have with the variants?I was too tired exercise. I really felt the difference. My symptoms were horrible!
-
Lori DePorter
MemberJanuary 30, 2022 at 8:04 pm in reply to: What symptoms did you have with the variants?Yes I am very tired
-
Try allowing your arms and hands to dangle freely. My fingers lock when I cut meat or hold my hands in the same position. My sister is a Physical therapist and told me that trick.
-
I live in York, Pennsylvania
-
York, Pennsylvania
-
I have started to inform the airlines, Amtrak, etc …you can ask for accommodations and assistance.
-
Lori DePorter
MemberNovember 16, 2020 at 6:58 pm in reply to: Go-To Gadgets for Life with Parkinson’s DiseaseI have found Kizik hands free shoes really do work.
-
Lori DePorter
MemberApril 18, 2020 at 10:32 pm in reply to: Columnist Interviews Husband About her Parkinson’s DiagnosisI would love to Hear your thoughts!!!
Lori DePorter
-
What kind of internet support group do you need? The PMD Alliance and The Parkinson’s Foundation have resources to find them.
https://www.pmdalliance.org/resources/support-groups/
https://www.parkinson.org/your-area
Lori
-
Lori DePorter
MemberMay 22, 2023 at 8:46 am in reply to: Looking for Young Onset Parkinson’s FolksYou can find the link at https://lorideporter.com/#resources-support-groups on the       right side at the bottom of the list
Lori
-
Lori DePorter
MemberAugust 22, 2022 at 10:48 pm in reply to: Journaling and living well with Parkinson’sI look back and I see how far I have come in this journey. It’s been a crazy ride!