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    • #13718
      Jean Mellano
      Participant

      We are up to over 200 users on the PD forum. I have noticed many people from outside USA, I would love for folks respond where they live; if USA, state name as well…

    • #13837
      Ally
      Keymaster

      I’m in Toronto, Ontario, Canada!

      • #14981
        Debra L Bomaster
        Participant

        Maine and sometimes a state of confusion.

        • #14994
          Jean Mellano
          Participant

          Debra, i live there too! LOL

        • #22461
          Marlyne Wilder
          Participant

          My husband and I went to the Lobster Festival in 1995 in Rockland, Maine. Delicious!

        • #22567
          Thomas Fuller
          Participant

          Bloomington Indiana

      • #22458
        Marlyne Wilder
        Participant

        My husband would take Route 81 from Watertown NY to I-90 from Syracuse NY to Buffalo/ Niagara Falls to visit, then take the 401 from Toronto to the Thousand Islands Bridge to return home.

        • #22459
          Marlyne Wilder
          Participant

          Sorry. Thought I posted this wrong. Hopefully our friend in Toronto understands my post. Lol

        • #22474
          Russell Wilson
          Participant

          Huntington Beach CA

          diagnosed one year ago

      • #22568
        Karla Burkhart
        Participant

        Sandy, Utah, USA

      • #22714
        Karla Burkhart
        Participant

        I’m in Sandy, Utah, USA

      • #22939
        Jesse Jackson
        Participant

        Aloha I live on the Windward side of Oahu in Kaneohe, Hawaii

    • #13838
      Jean Mellano
      Participant

      I am in Long Island, NY, USA

      • #22515
        George Sharp
        Participant

        I live on the Gold Coast in Queensland Australia

    • #13849
      Lou Hevly
      Participant

      Barcelona, Catalonia

      • #13936
        Ally
        Keymaster

        Wow! I would love to visit that part of the world. Have you always lived in Barcelona, Lou?

        • #15111
          Lou Hevly
          Participant

          I moved to Catalonia in the late fall of 1981, so it has been a while. If you ever do make it out our way, we’ll be happy to give you some pointers.

        • #22466
          Barbara Ford
          Participant

          Lou, Barcelona is my favorite city in the World.
          I live in Texas, USA

           

    • #13868
      Claudio
      Participant

      Reggio Emilia, Italy

      • #13937
        Ally
        Keymaster

        Beautiful! A trip to Italy is pretty high on my bucket list. My parents were there last year. Have you lived in Reggio Emilia your whole life, Claudio?

      • #22457
        Marlyne Wilder
        Participant

        In 1974, my husband drove us from Obergimpern, Germany to Rome, Italy for a long weekend. In the Army, my husband only had a 4-day break. One day to drive to Rome, 2 days sightseeing, and 1 day driving back.  In 2009, we returned to Germany, staying at Edelweiss Lodge and Resort in Garmisch-Partenkirchen, Germany, and my husband surprised me on Mother’s Day by taking me to Venice, Italy.  Such a beautiful country!

    • #13905
      Donna
      Participant

      Grand Rapids Michigan area

      • #13938
        Ally
        Keymaster

        I love visiting Grand Rapids, Donna, and I have a few “internet friends” in that area. Do you enjoy living there? How are you coping with the wicked winter we’ve been having?

    • #14145
      Anonymous
      Inactive

      Kansas City

      • #14674
        Ally
        Keymaster

        Welcome! What do you love most about living there?

    • #14670
      Manuel Fernandez
      Participant

      I am at Staranzano, a small village in North Eastern Italy, not too far from Trieste

      • #14671
        Jean Mellano
        Participant

        I LOVE little towns in Italy 🙂  We have another forum member who lives in Reggio Emilia, Italy

    • #14695
      Jo Elmblad
      Participant

      I live in Fern Park, Florida in a two story townhome. Fern Park is a community a little north of Orlando.

      • #14698
        Ally
        Keymaster

        Hi Jo, Fern Park sounds like a nice place. Do you enjoy living there? Have you always lived there?

      • #14705
        Jean Mellano
        Participant

        hi jo, do you have stairs in your house?

    • #15010
      Amelie
      Participant

      Hello,  I live in Mauritius, in the Indian Ocean.

      • #15011
        Ally
        Keymaster

        That’s awesome, Amelie! I have a friend whose husband is from Mauritius so I know a little bit about it. Have you lived there all your life? What is the best part of living there?

    • #15013
      Amelie
      Participant

      Hi Ally,  Yes I have been living here all my life.  My husband is French.  The best part living on an island is the beach, and the fruits in summer I would say – mangoes and lychees……

      • #15023
        Ally
        Keymaster

        Yum! I love mangoes. I was just in Trinidad and I had the pleasure of enjoying some very fresh and ripe mangoes picked right from our neighbour’s tree. It was such a treat!

    • #15304
      RAJESH GAJARIA
      Participant

      I live in Mississauga Ontario Canada

      • #15320
        Ally
        Keymaster

        Hi Rajesh, we might be neighbours! I’m from the GTA as well. Welcome to the forums!

    • #15308
      Robert
      Participant

      North Suburb of Chicago, Illinois on Lake Michigan.

      • #15321
        Ally
        Keymaster

        Chicago is one of my favourite places to visit! Have you lived in that area all your life, Robert?

    • #15322
      Robert
      Participant

      I have lived here for 42 years.   My father was career military so I lived in many places as a youth.  I attended 7 different schools during 12 years of public schooling.  Thanks for asking.

       

      • #15394
        Ally
        Keymaster

        I can kind of relate! My mom is pastor and we moved around a lot when I was a kid. I think it made me more resilient and outgoing, although I definitely disliked it when I was a child. I’m reluctant about moving now, but more because of the expense/inconvenience. I really like exploring new places and meeting new people. Did you enjoy following your father’s career?

    • #15389
      laura seymour
      Participant

      I live in Silverton, Oregon and have done so for 12 years. Before that, I lived in Michigan (since birth) – Detroit, Dearborn.

      • #15395
        Jean Mellano
        Participant

        I have heard Oregon is beautiful…  I was just in the Pacific Northwest a week ago  in Kenmore, Washington at the PD summer school in Bastyr college.

      • #15396
        Ally
        Keymaster

        What brought you from MI to OR, Laura? Have you enjoyed living on the west coast?

    • #15847
      Jarmila
      Participant

      I live in Kamenice, a small village near Prague, Czech Republic

      • #15919
        Ally
        Keymaster

        Welcome! Prague is on my bucket list — it looks like a beautiful city. 🙂

        • #15923
          Jarmila
          Participant

          Ally, Thank you. Prague is really beautiful city. It should be nice to meet you here.

      • #15957
        laura seymour
        Participant

        I’m an only child, so when my parents died, I really didn’t have anyone close to me except my husband.  My daughter and her family lived in Oregon, so we decided watching videos of our granddaughter, we’d like to be there to be part of her life.  Things fell into place rather easily, like it was meant to be.  I guess it was, because my daughter is fighting a second round of stomach cancer, so I feel so much better being here than so far away in Michigan.  Now with my PD diagnosis, I feel even better living here.  The PNW is so beautiful and people are so nice!  I am sure I would have gone into a deeper depression back in Michigan.

        I have a question, too.  Where do I ask it?  Thanks!

        • #15959
          Jean Mellano
          Participant

          laura, i am so sorry about your daughters cancer.  I am glad you are living close to her now so you both can lean on each other..

           

          as for asking a question, we have several categories https://parkinsonsnewstoday.com/forums/

          chose the category that best fits your question and clik on it; scroll to bottom and you should see ‘create a new topic’  lmk if that works

           

    • #15865
      Jean Mellano
      Participant

      WOW!  we have a great cross section of folks from around the world… nice to meet you all..

      Toronto, Ontario, Canada

      Greenport, NY

      Maine

      Barcelona, Catalonia

      Reggio Emilia, Italy

      Grand Rapids Michigan area

      Kansas City

      Staranzano, a small village in North Eastern Italy, not too far from Trieste

      Fern Park, Florida

      Mauritius, in the Indian Ocean

      Mississauga Ontario Canada

      North Suburb of Chicago, Illinois on Lake Michigan

      Silverton, Oregon

      Kamenice, a small village near Prague, Czech Republic

    • #15897

      Hi,
      Istanbul, TR.
      All the best,

      • #15917
        Jean Mellano
        Participant

        mehmet, I have heard turkey has some beautiful beaches on the southern coast..

      • #15920
        Ally
        Keymaster

        Welcome, Mehmet! How did you find this forum?

        • #15950

          Hi Ally,
          I hope that I will benefit from new information and useful opinions.
          It’il help me learn something.

    • #15908
      Jeffery Hill
      Participant

      I’m Toronto as well.

      • #15909
        Jean Mellano
        Participant

         

        jeffrey

        so is ally, one of our moderators !

      • #15921
        Ally
        Keymaster

        Are you a Raptors fan?! 🙂

    • #15946
      Chris Manning
      Participant

      I live in Oakville, Ontario.

      • #15952
        Jean Mellano
        Participant

        Canada is well represented on this forum!

      • #15953
        Jean Mellano
        Participant

        Canada is well represented on this forum!

    • #15961

      <p style=”text-align: left;”>I live in St. Albert, Alberta, Canada.</p>
       

    • #15966
      Gail Dons
      Participant

      Hey, Robert! My dad was military, my husband was military, but we have managed to live in Chicago for 5 years – South Side (Hyde Park)

    • #16007
      Kevin
      Participant

      Thanks Gene and your welcome – Im part of Bastyr’s online study re diet and parkinsons but – I did not know they had an event this summer – I saw one of their talks done in Australia tho recently on youtube – it was fantastic – I believe they are doing what im doing as ive sent most of my info to them but don’t get anything back – lol – I started doing it 7-8 years ago and at that time was reading research on the biome and its contribution to autoimmune disease & mitochondrial disfunction which is nearly all disease including parkinsons but do not think many folks were working along those lines back then – hope you are doing well

    • #16008
      Kevin
      Participant

      Sorry Jean for the Gene – auto correct caught me unaware

    • #16012
      Jean Mellano
      Participant

      kevin

      no worries about calling me Gene, it happens all the time LOL

    • #16019
      Kevin
      Participant

      too funny jean – that was cute – thanks for the humor

    • #16020
      Jean Mellano
      Participant

      sense of humor  and not sweating the small stuff is so important 🙂

    • #16022
      Kevin
      Participant

      posted a reply to Jean but it appears it did not go thru – are links not allowed in these forums?

      • #16023
        Jean Mellano
        Participant

        Hi Kevin. If a post has a link, as moderator I must review and approve or spam it.   It will not be approved if it is a link that sells something.  I don’t recall seeing a response from you that had a link. But, the internet is a black hole and sometimes things just disappear. Go figure lol

      • #16024
        Jean Mellano
        Participant

        Hi Kevin. If a post has a link, as moderator I must review and approve or spam it.   It will not be approved if it is a link that sells something.  I don’t recall seeing a response from you that had a link. But, the internet is a black hole and sometimes things just disappear. Go figure lol

    • #15986
      Kevin
      Participant

      Near Seattle, WA – USA – doing more traveling tho so – born in Oregon – love the Great Pacific Northwest – also love the south – Florida and the Bahamas are my winter go to places – spending the month of December down there – three weeks in Cancun late Jan/Feb – diet against disease @ [email protected] takes time but can be done anywhere in the world – practicing medicine before a Parkinson’s Plus Diagnosis lead me to research and a bunch of changes in my lifestyle and supplementation etc etc etc – guess thats enough for the moderators who are asking questions about everyone but happy to answer if you have any for me!  Enjoy,

      • #15995
        Jean Mellano
        Participant

        hi kevin

        thanks for posting.  did you attend PD summer school in seattle at bastyr univ. (produced by dr. mischley in august?

    • #16026
      Kevin
      Participant

      I said you were so right – your suggestion re humor and not sweating the small stuff is a major part of a healthy lifestyle – but – included a link to Dr. Bruce Lipton’s talk about autoimmunity and disease modification – its free for another day or so from hay house who may be selling their talks – lol – not sweating the small stuff

      • #16027
        Jean Mellano
        Participant

        Hmm Kevin, never saw that one….

      • #16028
        Jean Mellano
        Participant

        Hmm Kevin, never saw that one….

      • #16029
        Jean Mellano
        Participant

        Hmm Kevin, never saw that one….

      • #16030
        Jean Mellano
        Participant

        Hmm Kevin, never saw that one….

    • #16031
      Kevin
      Participant

      again – not sweating the small stuff – 4 of the same responses – LoL

    • #16044
      Laura
      Participant

      Hi, I live in Staten Island, NY.

    • #16045
      Jean Mellano
      Participant

      hi laura, fellow new yorker.   i live in wine country, the north fork of long island

    • #16063
      MARIA BACIGALUPE
      Participant

      Hi everyone!

      I’m from Argentina, La Plata, near Buenos Aires!

      How many cities are here! How many friends around the world!

      • #16067
        Jean Mellano
        Participant

        hi maria, yes, this forum has users from all over the world!

    • #16079
      Yaman Kahveci
      Participant

      Hey I’m living in Istanbul

      Is there anybody here?

      • #16081
        Jean Mellano
        Participant

        Yaman

        Mehmet ( scroll backwards to see the response) is also from Istanbul, Turkey

      • #16082
        Jean Mellano
        Participant

        Yaman

        Mehmet ( scroll backwards to see the response) is also from Istanbul, Turkey

      • #16083
        Jean Mellano
        Participant

        Yaman

        Mehmet ( scroll backwards to see the response) is also from Istanbul, Turkey

    • #16032
      Gail Dons
      Participant

      I think Jean was stuttering…or do PwPs get email tremors, too.  😉

      • #16033
        Jean Mellano
        Participant

        Gail, too funny.  The forum does that sometimes and I dont know why.  Technology, a beautiful thing when it works.   Lol.

    • #16090
      George Kapetanakis
      Participant

      George near Boston. Originally from Macedonia Greece.

    • #16092
      Shirley Cypher
      Participant

      Twin Falls IDaho (where Evel Knievl (sic) “tried” to jump the Snake River canyon in his rocket powered motorcycle.

      • #22467
        Barbara Ford
        Participant

        Shirley, we lived in Shoshone for a few years when I was a child. So many fond memories from that time and place

    • #16295
      TimR
      Participant

      North Georgia mountains, 2 hr north of Atlanta.  Been here 3 yrs, prior to that Charlotte,  North Carolina

    • #16335
      Jo S.
      Participant

      I’m in the US in western Pennsylvania.

    • #16429
      Matti
      Participant

      Hi. I live in Colchester, Essex, UK. It is about 50 miles from London.

      I have lived here all my life.

    • #16617
      Toni Shapiro
      Participant

      Hi Ally, I live in Vancouver British Columbia Canada.

    • #16945
      Paul D Lefebvre
      Participant

      Hi Everyone, My life long (76 years) home is Minneapolis, Minnesota. I spent about 8 years away while in the Navy (met and married my wife in Derry, Ireland).

    • #16954
      Jean Mellano
      Participant

      hi paul, do your symptoms worsen in the cold winters where you live?

    • #16991
      Rebecca Tarver
      Participant

      Oakland CA, for 20 years now.

    • #16995
      Paul D Lefebvre
      Participant

      Hi Jean. No, I don’t believe my symptoms worsen with the cold weather (its very cold here today and tomorrow).  The progression of my symptoms is something that frustrates me; some days I think there is progression in one symptom or another, but then I really don’t know. It’s only by focusing on my condition over time that I can see those symptoms worsen.

    • #17000
      Jean Mellano
      Participant

      paul, temperature extremes, hot or cold, stress and emotions wreak havoc with my symptoms.  progression of symptoms is tough to gauge for me as well..

    • #17001
      Jean Mellano
      Participant

      paul, temperature extremes, hot or cold, stress and emotions wreak havoc with my symptoms.  progression of symptoms is tough to gauge for me as well..

    • #17035
      Joe Escobar
      Participant

      Joe Escobar in Oakland, CA

    • #17043
      Jean Mellano
      Participant

      We now have 630 members and here is the updated list of where in the world are we:

      Toronto, Ontario, Canada

      Greenport, NY

      Maine

      Barcelona, Catalonia

      Reggio Emilia, Italy

      Grand Rapids Michigan area

      Kansas City

      Staranzano, a small village in North Eastern Italy, not too far from Trieste

      Fern Park, Florida

      Mauritius, in the Indian Ocean

      Mississauga Ontario Canada

      North Suburb of Chicago, Illinois on Lake Michigan

      Silverton, Oregon

      Kamenice, a small village near Prague, Czech Republic

      Toronto, Ontario, Canada

      Greenport, NY

      Maine

      Barcelona, Catalonia

      Reggio Emilia, Italy

      Grand Rapids Michigan area

      Kansas City

      Staranzano, a small village in North Eastern Italy, not too far from Trieste

      Fern Park, Florida

      Mauritius, in the Indian Ocean

      Mississauga Ontario Canada

      North Suburb of Chicago, Illinois on Lake Michigan

      Silverton, Oregon

      Kamenice, a small village near Prague, Czech Republic

      Oakland, CA

      Vancouver, BC, Canada

      Minneapolis, MN

      Istanbul, Turkey

      Oakville, Ontario, Canada

      St. Albert, Alberta, Canada

      Chicago, IL

      Seattle, WA

      Staten Island, NY

      La Plata, Argentina

      Boston, MA

      Twin Falls, Idaho

      North Georgia Mountains, GA

      Western PA

      Colchester, Essex, UK

      • #17048
        Ally
        Keymaster

        Wow! Thank you for pulling this all together, Jean. It’s so cool to see the reach of this community!

    • #17065
      Enid Day
      Participant

      Hi,

      I am on the Central coast of California.

      I have been enjoying reading the information and experiences on this  site.

      I was diagnosed in 2013.

    • #17068
      Davisonneil
      Participant

      I live in Wellington New Zealand

    • #17077
      Jean Mellano
      Participant

      welcome Enid and Davisonneil

    • #17093
      June Ritar
      Participant

      I live in Gulgong NSW Australia. Gulgong is about four hours inland from Sydney.

      • #22795
        sandra wilkinson
        Participant

        Hi June, I’ve been to Gulgong long time ago.  I live in Sydney – western Sydney.  Glad to know you

         

    • #17095
      Cathy Davis
      Participant

      Hi All,

      I live in Atlanta GA.  This is an awesome forum. I have learned so much. I was diagnosed in July of this year.

    • #17098
      Scott Milstein
      Participant

      I live in the Philadelphia ,PA  area. I was diagnosed in September of this year.

    • #17104
      Jean Mellano
      Participant

      welcome June, Scott and Kathy

    • #17130
      Viola
      Participant

      I am from New Brunswick Canada and was diagnosed 5 months ago but struggled with symptoms for several years.

    • #17114
      Ruth MacKenzie
      Participant

      Hi Ally,  I live in (beautiful) Victoria, BC, so I’m relatively close to Toni. I moved here from Alberta in 1999 and was diagnosed  in 2007

    • #22398
      Alan M
      Participant

      In Aotearoa — otherwise known as New Zealand. North Island, Taranaki Region, in the gorgeous city of New Plymouth.

    • #22425
      Dale
      Participant

      <p style=”text-align: left;”>Butte, Montana</p>
       

    • #22426
      nancy
      Participant

      Southwest suburb of Chicago, IL

    • #22428
      Nancy Crockett
      Participant

      Oregon, USA

    • #22432
      Don Harris
      Participant

      I am glad to see that I am not the only Australian on the list. We are building a new house at Aldinga Beach south of Adelaide, South Australia. It’s a great location – next to a beautiful beach and nearby McLaren Vale wine district.
      May I add that Parkinson’s News Today is veery worthwhile.

      • #22441
        Roger
        Participant

        I live in NSW about 2 hours drive south of Brisbane in Australia.

    • #22463
      Marlyne Wilder
      Participant

      I live in Fairview Heights, IL….grew up in Cape Vincent, NY….lived and worked in Watertown, NY until my retirement.

    • #22468
      Barbara Ford
      Participant

      Fort Worth Texas

    • #22469
      John H
      Participant

      Live in High Point  NC

    • #22470
      William Palmer
      Participant

      Traverse City, Michigan

    • #22472
      Bert Shure
      Participant

      Palm Springs and Carlsbad, California, USA

    • #22475
      Cathy Davis
      Participant

      I live in Decatur, Georgia in the Atlanta area near Emory.  Emory has a great movement disorder program.

    • #22514
      Garry Maxfield
      Participant

      Living in Leura, Blue Mountains, 100klm west of Sydney Australia

       

    • #22518
      Marie
      Participant

      I live on Long Island, NY. In a town that loves fireworks ALL year round. Most of the town loves it, the dog owners hate it. I am part of the second group. Love, The End part of the island, Montauk.

    • #22520
      Bill
      Participant

      Texas Hill Country, USA

       

    • #22527
      Ron Lusk
      Participant

      Ron Lusk  Fort Worth, Tx USA

    • #22528
      Patrik
      Participant

      Melbourne,  Australia

      • #22768
        Cam Peterson
        Participant

        Finally more Texans!  🙂

         

    • #22533
      Joyce
      Participant

      Colorado

    • #22536
      Abdullah sirajuddin
      Participant

      Hi and Salam all

      I am from Jeddah, Saudi Arabia.

      Penn State university graduate 1983.

      Currently visiting my 2 Doughter. One in Boston (where I am now) and next week the older doughter in Atlanta, Georgia.

      Wish all the best

    • #22554
      John Bredenkamp
      Participant

      I live in the sea side town of Ballito, which is just North of Durban, on the East Coast of South Africa.

    • #22555
      Andy C
      Participant

      I my name is Andy Crow,52, Australian living in Mexico City for last 4 yr and planning to retire here.

    • #22556
      David Blacker
      Participant

      Hi, David Blacker in

      Perth

      Australia

      really like this forum – read it a lot during my hours of insomnia!

      • #22713
        Ann Perkins
        Participant

        Born in Melbourne, but eventually found my way to the USA, and ended up in Virginia Beach. I enjoyed your commentary on exercise for PD. Will be sharing on Zoom tomorrow (Wednesday) with my fellow Parkies here in Virginia.  Thanks and HPN  (Happy New Year)

    • #22557
      Denise
      Participant

      Spain, Los Arenales del Sol, Near Alicante on the Costa Blanca, right by the sea.

    • #22558
      Kevin McGuinness
      Participant

      Reside north of Pittsburgh,Pa home of the Steelers.

    • #22559
      Corrie Trattner
      Participant

      Hi from Corrie,

      Longmeadow, MA USA

    • #22560
      Corrie Trattner
      Participant

      Hi from Corrie,

      Longmeadow, MA USA

       

    • #22565
      Bob
      Participant

      Michigan

    • #22573
      Ralf Müller
      Participant

      Hello!!
      Greetings to all Parkis from the birth town of Karl May, the author of the Winnetou books. Hohenstein-Ernstthal is located in Saxony in Germany. However, I was born in Zwickau, 20 kilometers away, which in turn gained some fame thanks to the “Trabant” car.
      I have been diagnosed with Parkinson’s since 2013 and had a DBS operation in 2019. I wish everyone a Merry Christmas and a good start into the year 2022 !!!
      Ralf Müller

      Hallo!!
      Grüße an alle Parkis aus der Geburtstadt von Karl May, dem Autor der Winnetou- Bücher. Hohenstein-Ernstthal liegt in Sachsen in Deutschland. Ich bin jedoch im 20 Kilometer entfernten Zwickau geboren, welches wiederum durch das Auto “Trabant” etwas Bekanntheit erlangte.
      Ich habe seit 2013 die Diagnose Parkinson und habe 2019 eine DBS Operation durchführen lassen.Ich wünsche allen Frohe Weihnachten und einen guten Start in das Jahr 2022!!!

    • #22581
      Jo S.
      Participant

      Pennsylvania, USA

    • #22591
      Mark
      Participant

      I live in Kenya East Africa.

       

      I feel marginalized because every time I try to enrol on any study or trial, I am ignored because I live in Africa.

      • #22599
        Clive Varejes
        Participant

        The is a PPMI study in Lagos.

      • #22600
        Andy C
        Participant

        Mark
        i feel the same in mexico. Apply to so many in usa even offering to pay my own way and never get a reply – Andy (australian) living in Mexico City since 2017 (diagnosed same year aged 48 and now retired on disability at stage 4).
        Keep trying you never know with medical research it can happen anywhere.
        Good luck and take care Andy

        • This reply was modified 1 month, 1 week ago by Andy C.
    • #22595
      Lee
      Participant

      I have lived in Hidden Hills ca  for the last 25 years.  It’s a suburb of Los Angeles and is well known  as  the home of the Kardashians’. Before that I lived on carbon beach in Malibu. Both have been great except the drive to the city each day over the past 45 years has been a killer. I am now fully retired, at home, and  waiting for a new medicine  or breakthru in our disease,

      I m disgusted with the fact that I take 15 tablets a day of a medicine  that is  50 years old.

       

    • #22596
      Lee
      Participant

      I have lived in Hidden Hills ca  for the last 25 years.  It’s a suburb of Los Angeles and is well known  as  the home of the Kardashians’. Before that I lived on carbon beach in Malibu. Both have been great except the drive to the city each day over the past 45 years has been a killer. I am now fully retired, at home, and  waiting for a new medicine  or breakthru in our disease,

      I m disgusted with the fact that I take 15 tablets a day of a medicine  that is  50 years old.

       

    • #22593
      Louis Comitini
      Participant

      Hi My name is Louis Comitini from Hudson, Quebec, Canada. 58 yrs old

      I was diagnosed since 2018 at 55 but as most of us, probably had Parkinson’s well before, at least 2 years.

      My left leg was dragging and my left arm was still when walking. Some slurred speech then and still once in a while especially when my anxiety kicks in. I have neck and lower back pain daily.  Neck pain is recent.  I take Levodopa like most of us and started with 3 pills a day now up to 4 to a max of 4.5 a day after 3 years 3 months.  I also take Azilect ( a Generic). For my anxiety I take Sertraline 100mg, seems to help a bit. I work out 6 days a week for aprox an hour a day.  Boxing, cardio (jog/run mix) Doing the best I can to try to slow this frustrating to put it mildly disease from hell! 🙂 Debating whether to retire or not??? Pretty stressful job and it seems whenever there is the smallest amount of stress ALL my symptoms come alive instantly and stay for way too long of a time.  Changed my diet and lost 40 pounds.  I would love to hear some advice or listen to anyone who wants to share positive news!

      I wish you all Happy Holidays and for the New year some type of a cure or something to stop or slow down this disease so we can all see more of our Grand Children!

       

      Louis [email protected]

    • #22598
      Clive Varejes
      Participant

      Cape Town

      South Africa

    • #22607
      Thomas Rutschman
      Participant

      I grew up in Montevideo, Uruguay but have lived above the Arctic Circle in Jokkmokk, Sweden,  Tonight it is -17  degrees Celsius, and a few weeks ago it got down to -36!

    • #22610
      Marianne Gooding
      Participant

      We live in Hartville, Ohio

    • #22611
      RJ Hayden
      Participant

      Rio Rancho, New Mexico USA

    • #22614
      Ruud
      Participant

      I am from the netherlands

    • #22615
      Ive
      Participant

      Pošto sam novi na ovom forumu, ne znam dali se automatski prevodi sa mog Hrvatskog na Engleski?

      Ja živim u poznatom turističkom mjestu POREC u ISTRI HRVATSKA, Jdransko more, u blizini (60km) Italijanske granice i Trsta.

      Uskoro će Božić, ali kod nas je vrijeme lijepo, temperaatura je 13 stupnjeva C.

       

       

      • #22616
        Ive
        Participant

        HERE IS MY TRANSLATION:
        Since I am new to this forum, I don’t know if it is automatically translated from my Croatian to English?

        I live in the famous tourist place POREC in ISTRIA CROATIA, Adriatic Sea, near (60km) Italian border and Trieste.

        It will be Christmas soon, but the weather here is nice, the temperature is 13 degrees C.

    • #22618
      Susan Watkins
      Participant

      I live in Penllyn Pa about 20 minutes west of Philadelphia. I was diagnosed early stage in August of 2019 but have been living with it for about 10 years prior now that I have learned more about early symptoms via this forum. I even sent a link to my husband and I encourage him to read the articles as sometimes I cannot articulate my physical and mental being as well as I did before.

    • #22619
      Jack Waller
      Participant

      My husband and I live in Halifax, Nova Scotia, My husband was diagnosed 11 years ago with early onset P. This is the link to our non profit society which is th e only voice for Nova Scotia’s 8’400 Ps https://www.parkinsonsocietynovascotia.com/

    • #22625
      Lori DePorter
      Participant

      York, Pennsylvania

    • #22626
      Lori DePorter
      Participant

      I live in York, Pennsylvania

      • #22629
        Alan M
        Participant

        Kia ora Lori:  I spent an entire month in York back in 1979 when the Three Mile Isle scare happened.  I was a trainee at Dentsply International Ltd.  Kewl place your hometown.  We  were welcomed very well there.

    • #22665

      This is my first posting I apologize, in advance for any faux pas, or whatever.

      I am an international, European, brat.

      Currently — for the last three years — I live in Marana AZ, immediately NW of Tucson, or about 75 mi. SW of Phoenix.

      For the previous 12 years I lived in Klamath Falls, OR.

      For 30 years, or so, I lived in the San Francisco Bay Area (Mountain View, Los Altos Hills, San Carlos, Sunnyvale and Scotts Valley) with two major stays in London, England (1 year) & Flemington NJ USA (2 years) and numerous trips to Rouen & Paris, France, The Netherlands, Belgium, West Germany, Austria, Italy, Ireland, Bangkok, Thailand, Denver, Longmont & Colorado Springs, CO, San Diego CA, Portland/Hillsborough OR, Seattle WA, Minneapolis MN, Detroit, MI, and, of course my motherland, Greece, with repeating trips to Singapore (over 2 years, cumulative).

      Prior to this I lived in NY City, except for four years (1959-1963) in Boston/Cambridge & Framingham, MA, for college.

      I was born in Athens Greece, in 1941, and lived there the first thirteen years of my life, when my family emigrated to the USA.

      Terry Joakimides

      PS: The picture I posted was taken many, many years before I was diagnosed with PD, but I love it because I am holding the puppy Abby who turned out to be my favorite dog.

       

    • #22707
      fako
      Participant

      Hello, I live in Sarajevo, Bosnia and Herzegovina

      • #22749
        Ive
        Participant

        Prijatelju koji živiš “blizu” mene, jer ja živim u Hrvatskoj u Istri, javi mi se na E-mail: [email protected] Rado bih da uspostavimo kontakt radi razmjene iskustva oko ove naše boleštine. Primi puno pozdrava Ivan Kukurin

         

         

    • #22708
      Gwendoline Jakins
      Participant

      My husband has PD. We are from Melbourne, Australia

    • #22715
      Brent Walkerden
      Participant

      Good morning,

      I live in Sydney Australia

    • #22718
      Marianne Gooding
      Participant

      Hartville, Ohio, USA

    • #22720

      I live in St. Albert, AB, Canada, which yesterday was the 3rd coldest place in the world (the second coldest was northwest of here and the coldest temperature was in Jakutsk, SIBERIA!!). But really, this is a lovely place to live. 🙂

    • #22725
      Clive Varejes
      Participant

      Hi all,

      I live in Cape Town, South Africa

    • #22729
      Monica R
      Participant

      Tucson, Arizona

    • #22733
      Jose
      Participant

      Miami, FL

    • #22756
      Gil Williams
      Participant

      Half the year in Massachusetts, half the year in Tanzania.

    • #22758
      Bari
      Participant

      I grew up on the Jersey Shore. My husband and I recently moved a bit further inland to a Continuing Care Retirement Community in Freehold, NJ. My profile cover says it all! Life is good.

       

    • #22767
      Cam Peterson
      Participant

      I live in Burleson, TX just south of Fort Worth.

    • #22776
      Ann Perkins
      Participant

      Virginia Beach, Virginia for the past 50 years…am I a local now?

    • #22940
      Jack Waller
      Participant

      Halifax Nova Scotia Canada

    • #22946
      John Citron
      Participant

      Haverhill, Massachusetts which is about 35 miles north of Boston and 4 miles south of the New Hampshire border.

      I was born here in 1961 and we lived across the bridge in Bradford, also part of Haverhill. I then lived in Merrimac and Andover then moved back to Haverhill where I bought a house with my parents in 1999.

      I retired in 2012 and was fully diagnosed in 2014 but was showing signs and symptoms for years prior.

    • #22949
      Cam Peterson
      Participant

      Good morning!  I live in Burleson, Texas just south of Fort Worth.

    • #22968
      Annie
      Participant

      Hi All

      I live in regional Victoria, Australia. Diagnosed in 2017 aged 49 but symptoms had started 9 years earlier.

    • #22969
      Sharen
      Participant

      U.S.A.

    • #22971
      Roy
      Participant

      Began my PD journey in SW Florida, USA. Recently relocated to Brevard, North Carolina, USA to be near my oldest son.

    • #22972
      Cam Peterson
      Participant

      Burleson, Texas USA

       

       

       

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