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    • #26540
      Marta
      Participant

        Hello, My name is Marta, 43 y. o., diagnosed 4 years ago. I’m married, have 3 kids, full time job. I would like to speak here with younger people with similar problems. My main simptom is hands tremor, not so noticible, but when I nervouse, mad, it’s became terrible. So now I think I have “social anxiety”, start to avoid some people or situation. Only my husband, sister and two friends know for my condition. Please write about your problems and solutions.                                             P. S. Sorry for my not so great english

      • #26577
        Lori DePorter
        Participant

          If you are interested, I facilitate a young onset virtual support group sponsored by Johns Hopkins. It’s open to any YOPD…I can get you the information.

           

          Lori D.

          • #26580
            Marta
            Participant

              Hello Lori, thank you for reply. Yes, I’m interested, please tell me more information.

              • #26581
                Lori DePorter
                Participant

                  You can find the link at https://lorideporter.com/#resources-support-groups on the             right side at the bottom of the list

                   

                  Lori

                • #26612
                  Joanne
                  Participant

                    May I give this information to my son?  He was diagnosed about 6 years ago.  He is now 49.   He has 5 young children, but because of Parkinson’s, his wife just divorced him.  It’s been very sad, but we have faith that God is in control and a cure will be coming very soon…either that or lots of miracles!

                  • #26650
                    Marta
                    Participant

                      Hello Lori, I’m just notice that some of similar support online meeting are public available on YouTube and I don’t like it. Is the same with your group?

                    • #26703
                      Lori DePorter
                      Participant

                        No. Ours is a live zoom meeting. We have speakers and interact with each other.

                  • #26613
                    Lori DePorter
                    Participant

                      It is an open group for YOPD

                      • #26630
                        Joanne
                        Participant

                          Great.  Thank you & God bless you.

                      • #26704
                        Lori DePorter
                        Participant

                          If you would like to be added to the email list with meeting info, please let me know.

                          • #26705
                            Marta
                            Participant

                              Hello Lori, yes I’m interested, please add me to e-mail list. I hope the time will be apropriate to me (because of difference between time zones) 🙂

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