- This topic has 10 replies, 3 voices, and was last updated 2 days, 3 hours ago by
Marta.
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May 16, 2023 at 5:19 pm #26540
Hello, My name is Marta, 43 y. o., diagnosed 4 years ago. I’m married, have 3 kids, full time job. I would like to speak here with younger people with similar problems. My main simptom is hands tremor, not so noticible, but when I nervouse, mad, it’s became terrible. So now I think I have “social anxiety”, start to avoid some people or situation. Only my husband, sister and two friends know for my condition. Please write about your problems and solutions. P. S. Sorry for my not so great english
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May 20, 2023 at 10:31 pm #26577
If you are interested, I facilitate a young onset virtual support group sponsored by Johns Hopkins. It’s open to any YOPD…I can get you the information.
Lori D.
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May 21, 2023 at 1:41 am #26580
Hello Lori, thank you for reply. Yes, I’m interested, please tell me more information.
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May 22, 2023 at 8:46 am #26581
You can find the link at https://lorideporter.com/#resources-support-groups on the right side at the bottom of the list
Lori
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May 24, 2023 at 9:27 pm #26612
May I give this information to my son? He was diagnosed about 6 years ago. He is now 49. He has 5 young children, but because of Parkinson’s, his wife just divorced him. It’s been very sad, but we have faith that God is in control and a cure will be coming very soon…either that or lots of miracles!
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May 27, 2023 at 6:17 am #26650
Hello Lori, I’m just notice that some of similar support online meeting are public available on YouTube and I don’t like it. Is the same with your group?
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June 1, 2023 at 9:12 pm #26703
No. Ours is a live zoom meeting. We have speakers and interact with each other.
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May 25, 2023 at 1:30 am #26613
It is an open group for YOPD
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May 25, 2023 at 10:46 pm #26630
Great. Thank you & God bless you.
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June 1, 2023 at 9:15 pm #26704
If you would like to be added to the email list with meeting info, please let me know.
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June 2, 2023 at 1:39 am #26705
Hello Lori, yes I’m interested, please add me to e-mail list. I hope the time will be apropriate to me (because of difference between time zones) 🙂
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