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Looking for Young Onset Parkinson’s Folks
Hello, My name is Marta, 43 y. o., diagnosed 4 years ago. I’m married, have 3 kids, full time job. I would like to speak here with younger people with similar problems. My main simptom is hands tremor, not so noticible, but when I nervouse, mad, it’s became terrible. So now I think I have “social anxiety”, start to avoid some people or situation. Only my husband, sister and two friends know for my condition. Please write about your problems and solutions. P. S. Sorry for my not so great english
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10 Replies
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If you are interested, I facilitate a young onset virtual support group sponsored by Johns Hopkins. It’s open to any YOPD…I can get you the information.
Lori D.
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Hello Lori, thank you for reply. Yes, I’m interested, please tell me more information.
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You can find the link at https://lorideporter.com/#resources-support-groups on the right side at the bottom of the list
Lori
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May I give this information to my son? He was diagnosed about 6 years ago. He is now 49. He has 5 young children, but because of Parkinson’s, his wife just divorced him. It’s been very sad, but we have faith that God is in control and a cure will be coming very soon…either that or lots of miracles!
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Hello Lori, I’m just notice that some of similar support online meeting are public available on YouTube and I don’t like it. Is the same with your group?
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No. Ours is a live zoom meeting. We have speakers and interact with each other.
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It is an open group for YOPD
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Great. Thank you & God bless you.
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If you would like to be added to the email list with meeting info, please let me know.
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Hello Lori, yes I’m interested, please add me to e-mail list. I hope the time will be apropriate to me (because of difference between time zones) 🙂
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