Stress and Drama Are a Bad Mix for Parkinson’s

It’s difficult for people, even family, to understand the serious effects of stress on someone living with Parkinson’s disease (PD).

A 2021 Nature article, “Stress and mindfulness in Parkinson’s disease — a survey in 5000 patients,”  suggests that stress has “considerable and detrimental influence on quality of life and on symptom severity.” Furthermore, patients surveyed in this study reported that stress significantly worsened both motor symptoms and nonmotor symptoms.

“Patients with Parkinson’s disease (PD) are very vulnerable to the negative effects of psychological distress,” according to another 2021 article, “Stress and Mindfulness in Parkinson’s Disease: Clinical Effects and Potentially Underlying Mechanisms,” in the journal Movement Disorders. The authors state that stress causes nonmotor symptoms, such as anxiety and depression, to be prevalent; motor symptoms, such as tremor, to worsen; and medication to be less effective.

The study also suggests that chronic stress may accelerate disease progression.

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March 8, 2021 News by Marisa Wexler, MS

Stress Linked to Harsher Parkinson’s Symptoms, but Mindfulness May Help

Dealing with stress is a fundamental part of my Parkinson’s self-management toolkit. All of us (with Parkinson’s or not) try to avoid stress whenever we can. A blip in the road is manageable, if we’ve anticipated the stress. When we know that something difficult is going to be on the calendar, we can adjust our days before and after to allow time for recovery.

I visited the dentist recently. There’s no way for me to make that a nonstressful event. I knew logically there wouldn’t be any pain from a routine evaluation, but still, it’s the dentist! It was also an hourlong drive each way, which, unfortunately, fell on a “bad day.” Thus, a sum of factors exacerbated the stress.

By the end of the visit, all my motor and mind malfunctions were screaming. It took several days for all my PD symptoms to quiet down from their raging levels. But we’ve learned to manage this.

However, when stress is unanticipated, as the result of other people being inconsiderate of the illness’ issues, then it becomes a huge challenge.

A mile in my shoes

Mrs. Dr. C and I call unanticipated stress triggered by the actions of others “drama.” Stress occurs to everyone all the time. But there are major problems on my end when other people’s needless emotional intensity and thoughtlessness, caused by how they handle their own stress, spill out into our home.

Emotional, stressful situations are not quickly overcome these days. Before Parkinson’s, I could easily roll with the punches. My compassion levels were much higher then. Now, the anxiety, anger, and irritability toward the drama displayed by others has an enormous impact on my Parkinson’s life.

After enduring these situations, it takes two or three days to find my emotional balance and return to homeostasis in my motor and nonmotor symptoms. During these two or three days of recovery, I’m thrust into a “bad day,” or worse, a day with the “beast.”

My only solution is to stay away from the drama.

We’ve tried to explain this. It’s difficult to tell people that their drama causes me to have an extremely negative Parkinson’s experience. It’s more difficult to tell them and then have them ignore what I’m sharing. “But he isn’t like he used to be,” they say. No, I’m not. I have Parkinson’s disease.

The nonmotor malfunctions associated with Parkinson’s are invisible to most observers. While they might perceive something’s not right, they attribute it to something I could control if I just tried harder. I work at not affecting other people’s lives with my PD issues. But the problems still arise internally, and I’m left to manage myself (with Mrs. Dr. C’s help) through 72 hours of unnecessary drama-inflicted dysfunction.

The cost to my health is something I’m no longer willing to pay.

There’s no way around stress in our lives. But family and friends must take the time to walk in my shoes. The invisible aspects of Parkinson’s are tough on family, particularly because they can’t see those issues. Family is not present in our lives every day.

At home, I can use the refrigerator magnet system to communicate to Mrs. Dr. C how I’m doing. She’s well-tuned now to the physical signs that make the invisible visible. Family members who visit only occasionally don’t benefit from this intimate knowledge of how I live with Parkinson’s. They arrive with their own agendas, their own preconceptions of who we are, and baggage.

It would be enlightening if they could see what I experience with this disease. For now, I’m just asking for them to leave drama at their doorstep and not ours.

Note: Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Parkinson’s News Today or its parent company, BioNews, and are intended to spark discussion about issues pertaining to Parkinson’s disease.