I lie in bed at night, my left hand under my head. In this position, I can hear the ticking of my watch. Each beat reminds me that another moment no longer exists. I am one second farther from yesterday and one second closer to tomorrow. About two years ago,…
Columns
While at my boxing class the other evening, one of my classmates told me about a watch he is testing. It is called the Personal KinetiGraph (PKG)-Watch. This device is not to be confused with the Emma Watch, which was designed by a Microsoft inventor for Emma…
“Mindfulness isn’t difficult, we just need to remember to do it.” — Sharon Salzberg The ability to walk is something many of us, myself included, have always taken for granted. Now that I have Parkinson’s disease (PD), something that used to come as a matter of…
If you’re anything like me, there’s something energizing about gardening and pulling weeds. About pruning back overgrowth and watering budding seedlings, even if, because of having Parkinson’s, you can do it only a fraction of the time you used to be able to keep at it. In those…
There are quite a few articles that talk about caregivers supporting a person with a chronic illness, and that caregiver is usually the spouse. But what is it like when both people in the relationship have a chronic disease? There is a lot less information out there about…
Making Sense of the Senseless
When I was in high school, I followed the written journey of a classmate who was diagnosed with leukemia. Miles Levin struggled to comprehend a senseless battle through the exploration of words. He wore the armor of someone who was too young to fight cancer when he wrote, “Dying is…
I have a bad habit of assuming things. You would think (an assumption) that I would have learned by now, but no. Take today for example. My husband and I were at the mall this afternoon people-watching in front of the coffee shop. I watched through…
When I think of a warrior, I think of Mel Gibson and the role he played in the movie “Braveheart.” Gibson played the main character, Sir William Wallace, a Scottish knight. He was a warrior for his homeland Scotland, fighting for freedom against the English. Although…
My previous eight columns addressed the CHRONDI Creed, a plan anyone can put in place when seeking to live better with a chronic disease. The CHRONDI Creed is challenging to put in place as a way of life. It takes courage to face life honestly and to…
You’ve probably read articles with titles like, “10 Things Not to Say to a Person with Parkinson’s.” These typically include statements like, “But you don’t look sick,” or perhaps, “My Uncle Nero had that, and his arms fell off.” You’ve heard the possible and the far-fetched, the comments…
Recent Posts
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- Japan grants conditional approval to Amchepry cell therapy for Parkinson’s
- Good design for those of us with mobility issues is good design for all