Participate or compete? Prior to being diagnosed with Parkinson’s disease, I used to participate in 5K walks and duathlons for fun. Now, I am competing in the race of my life, which is fighting back against the debilitating effects and progression of Parkinson’s. Some days, I stagger and fall, and…
Columns
One thing that many people might not associate with experiencing Parkinson’s disease is grief. Experiencing grief with this disease is real. It can be felt deep down in your soul, whether you are the one who actually has the disease or you are the caregiver. You mourn for…
How do I know when I’m getting well? There’s that child’s voice yelling from the back seat of the car reminding me that time waits for no man. I would like to say: “Hey, we are almost there?” But I am not sure what “there” looks like. Perhaps getting well…
I recently read an article in Country Living titled, “40 Things No Woman Over 40 Should Ever Have in Her Home.” The piece intrigued me and inspired me to write this column. Following is my list of things I suggest people with Parkinson’s disease should consider discarding: 1. Unworn…
We all want something in life. We want to win the lottery or find our perfect mate. For those of us with a chronic illness, we’d be more than satisfied with a cure for our disease. Until we find a cure for Parkinsons’s disease, I’ve compiled a list…
It has been rough going recently, after I acquired a “legally blind” diagnosis on top of Parkinson’s disease. It has been a month, and part of the reason I am back to column writing so soon is because of the compassionate support I received, which was freely…
Harnessing the Power of Music
A proud, black piano stands in my parents’ living room. It’s the foundation of our home. From behind the sleek mahogany panels, fury, sadness, and happiness express themselves without judgment. My operatic brother sings his troubles away. My mom, a lifelong piano teacher, often alludes to the power of music…
I attend my boxing class twice a week. Regardless of whether she is having a good or not-so-good day, Kathy, another woman in my class, will be smiling. Not only will she be smiling, but she will be giving away words of encouragement. I often hear her thanking one…
Sinemet Has Left the Building
A recent Merck product status report shows that Sinemet 25-100 is on backorder, with no current availability date. I have been on Sinemet 25-100 for almost a year now. When my pharmacy called me to say there was no more Sinemet for my refill, I was devastated. Generic carbidopa/levodopa…
I can’t believe that it’s been almost 39 years since I got married. July 4, 1980, was the day I obtained my independence. Sort of. When the pastor was preparing for our wedding ceremony with my soon-to-be husband and me, he asked if we would like to include a particular…
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