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We Are Shut In, Not Shut Out

My chronic disease has forced me to stay home for a week after an exhausting recent trip to St. Louis. When my symptoms force me to curtail engagement outside the home, I become a “shut-in.” Many are entering voluntary home confinement due to COVID-19. People also are experiencing mandatory…

Managing Stress by Expecting the Unexpected

Travel beyond our homes is eerie right now with the onslaught of the coronavirus pandemic. We feel as if we’re living a dystopian sci-fi film, with people in masks and gloves waving apocalyptic messages from the World Health Organization and U.S. federal and state governments. My immune system isn’t like…

Redefining My Honeymoon Phase as My ‘New Normal’

This December marked the fifth anniversary of my diagnosis with Parkinson’s disease. Technically, I am still in the honeymoon phase — the first three to eight years of the Parkinson’s journey. Life is still pretty normal. Then again, what is normal? Normal now consists of inconvenient symptoms including tremors, low blood…

Going Numb Means Going Nowhere in Trying Times

Sobbing, she throws her arms around me. “I just can’t take one more thing. I’m totally overwhelmed. All the things I need to attend to are flying around me, and as I try to grasp onto one, I come away empty.” She rests in my embrace and the storm slowly…

Some Days, I Have Jello for Brains

I don’t remember having a teddy bear as a child. I do remember a pink monkey and a rabbit that my grandma made for me. There have been times during my journey with Parkinson’s disease that I have wanted a teddy bear — something to hold tight that would…