Fred Barnett
Forum Replies Created
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I keep a drinking glass with a straw in it handy to drink out of when I take my carbidopa/levodopa. I try to restrict my liquids after 5:00 pm so I don’t have to pee during the night that often. I have difficulty balancing my liquid intake and trips to the bathroom when I’m not at home, It continues to be a problem to drink enough and the same time find a bathroom during the day.
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We downsized from a 2 story home to a 1 story senior living community one year ago (I was diagnosed with PD in 2011). It was difficult but we made it. I still have fairly good mobility and no falls, but many other health issues related to Parkinson’s. We are enjoying a quieter community & two blocks from a hospital if we ever need it. Our home is one side of a duplex, my neighbor on the other side also has Parkinson’s. There are also exercise programs available and a pool. The only drawback is the monthly association fees which are pretty expensive but they cover everything outside the house like grass cut, sprinkler system, etc. . We are happy that we moved before my Parkinson’s got worse.
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I had Focused Ultrasound treatment done in July this year for my dominant Right hand. It gave me the use of my hand back and I would highly recommend it.
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I was diagnosed with Parkinson’s in 2011 at age 72, 10 years ago. My mother had tremors from in her 40’s until she died at age 94. My brother had tremors from age 78 to 84 when he died. I suspect that both of them had Parkinson’s although they were never formally diagnosed with it. They never took medication for it as I do. I will soon be having Focused Ultrasound, as well. I worry that my son will get it too. He is now 45 and has shown no symptoms so far. None of us has been exposed to any pesticides or anything to the best of my knowledge, although I have done some welding. I think that it could be hereditary in our case, but who knows?
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I live in McKinney, Texas. It’s a suburb of Dallas, Texas. There are dozens of suburbs around Dallas, Texas, USA
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I was diagnosed with PD in 2011 and have steadily progressed with my PD symptoms ever since. That includes the amount of stress I experience. The stress is proportionate to the intensity of my symptoms at the time. The more severe my tremors, the more severe my stress. I try to control my stress with relaxing music, quiet time, meditation, and what I call “self-talk”. I find that reading scripture helps a lot also. My quiet time involves sitting quietly with my hands under my legs, to stop the tremors, and concentrating on God and peaceful thoughts. This is not often possible when I’m experiencing severe stress out in public, so the stress continues unabated. Stress pills don’t seem to help a whole lot nor does exercise completely eliminate stress either although it helps to some degree. We need an effective pill to control our stress along with our other medications.
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The most challenging thing for me is trying to eat out, either with company at home or in a restaurant. My tremors make it hard to keep food on my fork or spoon. It’s embarrassing in either setting. It also takes me longer to eat than everyone else, so that’s a problem also.
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I am 82 yrs. old, I’ve had Parkinson’s for 11 years and am in stage 3 now. I have never gotten DBS or focused ultrasound because of covid-19 and my age. I still drive occasionally but my wife drives 90% of the time. I feel very uncomfortable when driving in traffic or at high speed these days. I have a folding electric scooter for running around the neighborhood, parks, etc. which gives me a little independence but I really miss driving.
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I wear a pad at night which allows me to sleep through the night without getting up. I try to limit my fluid intake after 7pm. I take melatonin every night, as well.
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Andy, those symptoms are exactly the same with me! Especially the bladder problems, I couldn’t go to the Christmas church service with the rest of the family because I have to go to the bathroom so often. I also have considerable difficulty eating in front of a lot of people.
Fred Barnett -
I agree with this!!
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I also had the two Pfizer shots in January. My incontinence and tremors got a lot worse and are still bad. I did get Covid before my shots. I don’t know if that made a difference or not.