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    • #21939
      Mary Beth Skylis
      Moderator

      I’ve heard that Parkinson’s can have an unfortunate impact on urinary frequency. Some people may be more likely to see an increase in urination frequency. And I’m curious to hear about your experience. Have you seen changes to your urinary patterns? If so, do you do anything special to manage them?

    • #21981
      Lloyd
      Participant

      Yes. I urinate more frequently during the day and overnight. I measured my overnight outputs and it’s consistently 40 oz. I don’t consume more than about 8 oz. of liquid after 6pm.

    • #21984
      Robert
      Participant

      Hi folks.

      It seems that this fluid part of my plumbing has a mind of its own now, like so many other things that rely upon dopamine to function normally.

      My full bladder and it’s exit spigot don’t like to talk to each other some days.

      So, I have these things called catheters when I absolutely need them.

      I no longer have the routine feelings and such in my bladder etc. that we all learned to rely on before PD so I do not have a predicable pattern.   At times I cannot start and stop at will if you know what mean.

      It is a nuisance because of the time it requires some days.

      I was diagnosed just short of 4 years ago.

      The doctors presumed I had normal old man prostate issues that were causing all of this.  I went through some very very interesting tests and procedures that included ultrasound devices placed in very interesting places and found that all of my problems are neurological and related to the Parkinson’s.  Just another box on the PD symptom list that I got to check.  I do not recommend it to you other PD people if you are thinking of checking that box.  Avoid it!

      But, I never really had much of a tremor and certainly never do now on the magic pills.  So there is that.

      Thanks,

      Robert C

       

    • #21990
      Debbie McDaniel
      Participant

      I have been have urinary problems for about 5 years,  way before I was diagnosed with a movement disorder.  As with all things I’m sure that the movement disorder has made it more difficult for me in regards to my frequent urination both day and night.  I am dealing with it by working with a urologists and have an interstem device from Medtronics implanted in my butt to help control my bladder.  I’m getting much better results with this device than just on my own.  I would recommend anyone having urinary problems see a urologist.  There may be additional support for your urinary problems.

    • #21995
      Marie
      Participant

      My husbands certainly have. It is usually when he has first taken his meds and until they take effect, mind you he takes them five times a day,,  so sometimes in the middle of the night we meet coming and going into the bathroom .. and if he has a doctors appointment or if on the rare chance we go out, he delays taking them so he does not have to be running to the bathroom or in the middle of a procedure. But he has them with him so he can take them on the way home to start to get into his system..

       

       

    • #22000
      Charles Schiller
      Participant

      Oh yes. An overactive bladder is certainly a symptom of PD. For men is’s more complicated because an enlarged prostate contributes. My overactive bladder responds quite well to a medication given by my urologist. Problem is it wears off after about 12 hrs. I’ve an appointment to see the Doc next week. When I’m on a long drive, I wear a sort of diaper, made for men. It does work well.

    • #22003
      Sandy
      Participant

      Yes, my husband has an overactive bladder. Twice now, he thought it may be prostate related but it’s not. Over the years, we learned to fly and travel with Depends since you never now when the urge will hit! He also just started to cut back or stopped drinking any liquid after 7pm to help from having to get up more than twice during the night.

    • #22015
      Mark Rohr
      Participant

      My bladder and I are definitely on different schedules, especially after midnight! I need to stop water intake after 7 pm. I am currently getting up 3-5 times every night and not sleeping well on top of that. I’m taking Melatonin nightly but still not sleeping well. Suggestions anyone? I absolutely need a full nights sleep!

      • #22016
        Robert Li
        Participant

        Mark, melatonin can make you need to pee more… https://www.webmd.com/sleep-disorders/melatonin-dos-donts   That’s not going to make me stop the melatonin!  You could try a different brand, since they’re not exactly the same.  I am currently using NOW brand, which I think is not made from a sheep’s pineal gland (it is vegetarian).

        These are the other things that I do for my sleep:

        • For serotonin production: turkey (for the tryptophan), omega-3 fish oil.  If I am low on omega-3 then I start supplementing, I usually have “too many dreams” for a couple nights.
        • Anti-oxidants: vitamin E, sweet potatoes, squash
        • For keeping biochemicals in balance: vitamin D (need blood testing to get to right levels, and keep it there for a few months)
        • Probiotics: To reduce gut issues especially constipation.  If you can poop before bedtime this is a good thing to do.
        • Also, I try to sleep earlier and get exercise during the day.
        • Reducing my exposure to air pollution.
        • Not eat too much meat at dinner time.

        Now I am getting 5-7 hours/night, which is quite good for me.  I don’t know which of these things really helped, but I don’t really care.  More importantly, I don’t feel very sleepy during the day any more.  I still usually pee a lot at night.

        • #22031
          Gwendoline Jakins
          Participant

          Hi Robert, what probiotics are you taking?

          Gwendoline

    • #22028
      Beth T Browne
      Participant

      I do go way more often.  My doctor said she could give me something to slow it down, but I chose not too, as I had a problem before I had PD where I was having trouble going.  I went for acupuncture at that doctor’s office, insurance paid, and I have not had that problem since.

      I had 2 ghost infections the first year of PD.  I read where another woman on FB had it and she started taking D-Mannose daily.  I asked my doctor about that supplement and she highly recommended it.  I have been taking it almost a year and no more ghost bladder infections or real ones.  It is great.

    • #22030
      Rick Tabakin
      Participant

      Most men develop urinary frequency issues as they age (say beyond 65 yrs old). My urologist contends this has to do with prostate enlargement. Is there data that indicates Parkinson’s makes this situation worse? What about the urinary frequency issue in women? That might be a lot clearer indication of Parkinson’s impact.

    • #22044
      Fred Barnett
      Participant

      I wear a pad at night which allows me to sleep through the night without getting up. I try to limit my fluid intake after 7pm. I take melatonin every night, as well.

    • #22046
      Robert Harris
      Participant

      Before my Parkinson’s showed its more obvious symptoms, I experiencing a very gradual loss in water pressure when I whizzed. In the last six or 10 months, though, my Parkinson’s sympoms  have been increasing (festination, retropulsion, balance instability, voice sabotage [sudden  emotional overwhelming when trying to speak]) and more off time when I eat too much protein. My fire hose has been suffering from less and less water pressure, until now I have to lean over to counteract the backwards arc of the stream. Soon  we may be enteraining a dribble instead of a weak stream.

      At the same time, my night visits to the porcelanarium have increased from about 4 per night to maybe 5 or a little more. I limit my water to a sip or two after  each visit because my mouth gets thirsty. I have experienced nocturia for many, many years. At 18 my visits to the bathroom were limited to about  1 per night. Now at 71, trips to the bladder ladder are about  4  or 5 per night.

       

    • #22048
      Gwendoline Jakins
      Participant

      Hi Robert, before getting serious about your problem, I’d have to say your way with words has given us a good laugh or two.

      My husband has just been diagnosed with OAB (overactive bladder). He’s been put on a medication, Betmiga. It’s early days, but I reckon there’s been an improvement already. He was getting up a couple of times during the night. The last couple of nights he’s gone right through the night,fingers crossed 🤞.

      During the day, we’ve been setting the timer for every two hours, now taking it out to 2.5 hrs. If he’s sitting in a chair for a long period, he doesn’t feel the need to go, but he’s had huge leakage without knowing. He wears a pull up, but it hasn’t helped on occasion.

      Another treatment talked about by the urologist is Botox. It’s drawbacks are that it only works about 60% of the time and needs to be repeated regularly.

      I pass this on in case it’s of benefit to you or other members.

      Gwendoline

    • #22051
      Charles Schiller
      Participant
        <li style=”text-align: center;”>So I think make low water pressure and dribbling is primarily due to an enlarged prostate which is very common among men over 64. An over active bladders due to PD. I take a drug for that, Myrbetetiq. Very effective in stopping the feeling of urgency. But, more me, it wears off after 12 hrs or so. I’m see my Urologist tomorrow to see if I take it twice a day. As for sleep help I take Hydroxazine, sort of a very mild sleeping pill and no logy feeling in the morning. My biggest problem is not PD or it’s symptoms. I’m early stage 2 and almost 79. It’s crushing isolation as I’m a widower having lost my wife of almost 50 yrs 5 yrs ago.
    • #22055
      Bill
      Participant

      First symptoms, although I didn’t know it at the time, was the occasional incontinence during the day. Dang bladder would just cut loose and dump some urine. There was leakage through out the day. I was diagnosed about 4 years ago and my frequency increased to 20-25 day day, big problems with UTIs. The other issue that I didn’t recognize as part of PD was constipation.  So now a few years in, I’m dealing with urine retention, slow movement in my bowels and prostrate enlargement. This trifecta causes some issues which currently has me using a catheter 2 or 3 times a day, with a normal volume of 750-1000 ml each time time I catheterize myself. The most aggravating part of my current condition is Urologist who only see me as having an enlarged prostrate and being 77 years old, when I say it has to be seen through the filter of a 77 year old man with PD. The other thing that aggravates me is doctors who already know what the problem is with your UTI and don’t order a new urinalysis and culture after you have completed after you have completed their prescribed treatment. I know I can change doctors and have done so. Fortunately I have a great primary care doctor who says after it.

    • #22047
      Robert Harris
      Participant
    • #22065
      Alan M
      Participant

      I never heard of polyuria until I was diagnosed with PD six months ago. I urinate after every cup of joe I take during the day. And I wake at least twice a night to go wee. It’s quite inconvenient. Prior to BCD (BCD = before correct diagnosis)I was wondering if I had a bladder issue. But my GP assured me nothing was amiss with the plumbing.
      I almost forgot — a year or so before my diagnosis, I had to start wearing men’s comfort pads as I dribbled heaps after urinating.

      • This reply was modified 2 days, 5 hours ago by Alan M.
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