Alan Berry
Forum Replies Created
-
I have weak legs, frequent fatigue, restless legs when sleeping, painin legs and arms but I can tolerate all of these without medication.
My worst symptom is that my brain has deteriorated so my concentration is poor and it is impossible to join in group conversation since I am unable to grasp what is being said. Lastly my memory is ridiculously poor, sometimes I can’t even remember my grand-children’s names.
Alan Berry.
-
Alan BerryI have had type 2 diabetes for over 10 years. At all times controlled by diet. Also I have had rheumatoid arthritis in my knees, hands, arms and shoulders. Waiting on x- rays and ultrasounds for knees and shoulders. Medication – methotrexate. Incurable nerve damage both legs and arms. Diagnosed 5-6 years ago. Rheumatologist remains unclear whether pain is from RA, ND or PD. Frequent psoriasis mostly area of both elbows. Following heart attack w 3 stents and pacemaker consiidered higher than avberage risk for stroke. Medications include rosuvastatin. Many years depression & anxiety. Hospital 4 times, latest work absence 18 months leading to early retirement. Treatment over many years included at least 12 sessions electro convulsive therapy. Now controlled by cymbalta. Following surgery for prostate cancer urologist says I am higher risk for 2nd cancer. Apart from all this I am almost perfect.
-
Every day I get a pain in my right arm. Above my elbow and up into my shoulder. It is a constant pain, not intermittent.
Alan Berry
-
I have several ailments including Type 2 diabetes for which I do not have medication. It is controlled by diet.
All my meds are stored in a single box under my control. A list of all meds and the times of taking them is also in the box. I am lucky that all my morning pills and , in turn, my evening pills are taken at the same time. My most unfavourite time for taking pills is Wednesday evening when I take 12 pills. Like many people I have difficulties swallowing so a pill then a swig of water takes time.
On Fridays I prepare my needs for the following week. Two Sunday to Saturday storage containers are used, one for A.M. the other P.M. I take pills from the main store and place them in the daily slots. In this process I make note of any medication I need to reorder. A quick review of the daily slots and I am ready to phone the pharmacist. Should I try to reorder too early my pharmacist is aware and alert and always spots it. I am glad to say it is rare that he catches me out. Of course I could make mistakes, after all I am almost human. -
Yes! Very soon after I was diagnosed. But now I am up in the air again. My neurologist hasn’t spoken to me in six months. A doctor I see at the Geriatric Clinic of Oakville Hospital believes I don’t have Parkinson’s at all. Says I don’t walk, talk and have tremors. So I must have a brain scan on December 22. Is it Lewy Bodies or something even worse. ???? Guess I’ll just have to wait and see. I will tell you when I know.
Before I go Christmas greetings to all Parkinson’s patients, care givers, volunteers and all involved in these uplifting daily thoughts.
alan
-
-
Yes
Depression on and off has been part of my life since the 1980s. Medication continues.
Rheumatoid arthritis for about 20 years. Medication on-going plus monthly blood tests.
Lack of urinary control following removal of part of bladder during prostate cancer surgery in 2006.Type 2 diabetes for many years. Controlled by diet.
High blood pressure and erratic heart beat following heart attack 3 years ago. Frequent changes of medication but not yet under control.
Nerve damage in arms and legs. Diagnosed about 6 years ago. No cure.
Apart from these I am almost perfect. -
A recent ((4 months) diagnosed patient I have pretty much retained all of my hobbies. Reading is a hobby since childhood, primarily fiction but some “non”. In recent months I tend to lose sight of the plot and characters unless I note them as I go. Adult book colouring is recent but allows my creativity to remain active. My personal favourite is creative writing . Knowing that my memory was failing even before diagnosis my daughter made a list of topics for me to cover. How I met my wife, a story of my friendship with my best friend, and If I could have dinner with anyone from the past who would it be. And other topics. I find I can really lose myself in the researching and the writing. For exercise I enjoy walking but I plan to step up my pace. Gee! Exercise and a hobby. My wife and me enjoy some TV shows together. Various topics. Did you know Grey’s Anatomy features a primary research goal of finding a cure for Parkinson’s. A large viewing audience can only help IMO.
-
I have enjoyed word game magazines for many years as well as crosswords. However I find that in the four months or so since diagnosis my skills and memory have declined. I will continue though and try other outlets including absorbing daily news and sports news for discussion with my wife.
-
I have had rheumatoid arthritis for around 20 years or more. Early on my medication were such that one was primarily treatment for cancer and the other had disturbing side effects. But throughout the arthritis my pain has been well controlled. Now I am on methotrexate alone. Dose-age changes according to pain level but overall it is well managed. I am in the early days of Parkinson’s and not on medication for it. But my total pain level has not increased and I remain capable of walking, my primary exercise.
-
Gave up driving about 4 years ago at a time when my balance was poor and I had numerous falls. I also found my concentration poor when driving so took the safety first route. My wife now does all of the driving, bless her.
-
Hi Mary Beth . Alan Berry here. Cannot see myself as “garden variety” anything. Sorry. I am 81 with primary “P.D.” Indicators memory loss/ concentration. Symptoms could be simply ageing?? Then slow moving & fatigue. 4 yrs ago diagnosed incureable nerve damage arms & legs. Speech changes if tired – yes. Depression? No. On medication since I was 30 or so. Pain = rheumatoid arthritis many years. Bladder/Sexual disfunction after 2006 prostate cancer damaging my relative “equipment”. Blood pressure investigation on going since 2009 heart attack. Zero smell sense since sister bashed me in nose creating deviated septum. So garden variety I ain’t but does “P.D.” exacerbate what I already had? Over to you Mary Beth.
-
I have experienced significant drops in blood pressure for some time. Every day when I take a standing blood pressure after my sitting blood pressure. Neither my family doctor nor the cardiologist have ever referred to Parkinson’s. Instead they suspect the change results from a heart irregularity following a report from the Pacemaker Clinic at Joseph Brant Hospital, Burlington.The investigation seems very slow to me and, last week, I urged my family doctor to pressure the cardiologist to speed up whatever actions he is following.Alan Berry
-
Known about 5 months. Suspected about 4 yeaars ago when neurologist was more angry at being unable to find proof than anything else. Since confirmed I am told my case is very mild. Despite this I get very fatigued and have to rest by noon every day. Also my memory and concentration are shattered. I am receiving no medications and my next neurologist visit is February 2022. I learn most from the daily news and forums with added knowledge expected from Support Group starting October 17.Despite lack of professional input I accept Parkinson’s and remain upbeat in my overall demeanour. Alan Berry.
-
Hi Lou,
I have switched from a laxative which was itself an improvement on nothing.
Now I am taking Weber Naturals Probiatics. 30 billion active cells. After a three day delay I am now performing daily.
Purchasing through Amazon I get 30 pills for about $12 + tax Canadian. Dosage only one pill a day.
Alan Berry.
Hope you get the same results Lou.