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    • #18661
      Mary Beth Skylis
      Moderator

      My Dad (diagnosed in 2013) occasionally struggles with freezing episodes, where it feels like he is stuck to the ground. It seems to happen when he needs to pivot or get around something. And I wonder if his freezing episodes have to do with fear. Do any of you struggle with freezing episodes? Have you noticed trends revolving around how they function?

    • #18852
      Robert
      Participant

      Hi Mary Beth

      Good question about freezing.

      Here’s my short tale.

      When my magic meds (Sinemet) are wearing off or haven’t kicked in yet I certainly can not walk and talk or, get this,  LISTEN AND WALK, without freezing!

      We all know the humorous observation that a person is so “slow” they can’t walk and talk at the same time or they can’t walk and chew gum at the same time.   I find myself freezing when I am walking in the house when my wife talks to me from across the room!  I can’t listen and walk at the same time!  Good grief!  That must make me look really “slow”!

      On a more normal basis, I freeze at streets when I see a car coming.  My legs just get stiff.  So I just wait aor the traffic to clear before I ever enter a street.  This is true even when I am on with the meds.  I find that my new PD controlled body uses this freezing phenomenon to avoid being put in any position where it has to be ready to quickly react to another’s movements.  Quick whole body reactions are not automatic for me anymore.

      Thanks for the question.

      Best wishes to all.

      Robert C

    • #18854
      Caroline Harris
      Participant

      Yes ditto that. This is the most debilitating symptom which worsens with anxiety.  Slurred speech seems to accompany my freezing and am having many falls. End of effectiveness of meds. ? New cycle doesn’t help.
      I’m usually stuck in this pattern once it begins( takes over my body and mind)

      My neurologist says it’s most difficult symptom to treat
      Not dopamine but a different

      There is a great webinar on this topic but I am not finding it

      I was diagnosed in 2014.

    • #18859
      Robert
      Participant

      Hi again

      I reread my goofy post and had a further thought.

      I have to put conscious effort into walking now.  It is no longer automatic.  When I put any effort into something else, like being fully dutifully and respectfully attentive to my wife, I am no longer able to also put the full conscious effort into my walking.  The result is the freezing of gait.  Really weird when it happens.  But the cause is obvious.  The automatic-ness we take a lifetime to achieve is now indeed truly impaired.   I find it very difficult to explain this concept to anyone who has not had a personal “taste” of it.

      Onward and upwards.

      Robert C

       

    • #18876
      Caroline Harris
      Participant

      Exactly Robert!  My husband tries counting but I cannot seem to focus on his words and my walking. With the exception of a straight away path with no turns or narrow openings. I recently tried an app (metronome) but still experiencing the same issue of concentrating on steps and having auditory input.   Visual cuing is another strategy-lines taped to floor or tile blocks if you have in your home. Laser shoes have been recommended but expensive and unattractive. There are laser lights you can buy and attach to the front of your shoes
      I am thinking about purchasing some  ..

      and a

    • #18878
      Caroline Harris
      Participant

      The video YouTube is

      “Falls and Balance Issues in Parkinson’s Disease: When, Why & How to Treat”
      Dr. William Dauer

    • #18911
      RJ Hayden
      Participant

      Yes – freezing of gait is my greatest challenge. Like Robert, I have to put a conscious effort in initiating the walking process . . .  it is no longer automatic. As Caroline said, turns and narrow passage ways can absolutely be an adventure. Once I get started I’m generally ok as long as there are no sharp turns in my path. The carpet in my office is very ‘busy’ so I do have tape on the floor which helps navigating around my desk (it also makes for interesting conversation). To initiate a step, I have found that just by waving my hand in front of me I can usually get started. Often something as simple as a gentle tap on the shoulder from my wife is enough to get me started. Go figure.

    • #18915
      Robert
      Participant

      Hi again

      Anybody have trouble with dog and freezing?

      My subconscious PD body is allergic to dogs.  Talk about freezing.  This is totally embarrassing because I live in a town where people treat their dogs better than they treat their children!  They like to walk around town showing off their latest canine.   If someone approaches me with a dog on a leash my body freezes.  The dog lover usually says something like, “it’s ok he’s harmless”.  Yeah, right.  Tell that to my PD.

      When I am tanked up on the magic sinemet meds, there are many times that I think this is just a made up disease to keep certain unnamed people employed and to feel important.  (I don’t really believe that.  Those working to help us are Saints!)  Now, when a dog comes around, I really, really know I have a PD problem.  It is really, really weird.  It is indeed like magnets repelling.  It is a physical phenomenon that cannot easily be overridden.  So, I just avoid the confrontations as much as possible.  If I can’t, I just pull out my cell phone, turn away and pretend I am looking at a text message or something until they pass by.

      I am glad my PD is not allergic to sweet foods.  Although my taste for coffee has evaporated over the past year!  I find myself not needing coffee in the morning for the fist time since I was an 18 year old Navy sailor 50 years ago!  Hadn’t skipped a day since until now.  I wonder if the meds cause this or if this is a PD thing too.

      Anyone else have such “marvelously weird” PD discoveries along the way?

      For you USA folks, Happy 4th of July.  My mother in law is Danish.  I think  she told me they celebrate July 4th too for some reason.  So Happy 4th of July to the Danske folks too. For you others, I just wish for you a happy day without too much freezing!

      Best regards,

      Robert C

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