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Caroline Harris

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@charris53

How do you approach the definite symptoms of progression with your neurologist- seeking an honest response/assessment and what to expect onward?? View
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  • Profile picture of Caroline Harris

    Caroline Harris replied to the topic Do you have any questions about the forums? in the forum Using our forums 1 year, 3 months ago

    how do I rejoin using a different email address.  I don’t seem to be able to change my profile with my current address 

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    Caroline Harris posted an update 1 year, 3 months ago

    How do you approach the definite symptoms of progression with your neurologist- seeking an honest response/assessment and what to expect onward??

  • Profile picture of Caroline Harris

    Caroline Harris replied to the topic Do you struggle with freezing episodes? in the forum Parkinson's Disease Symptoms 1 year, 10 months ago

    The video YouTube is

    “Falls and Balance Issues in Parkinson’s Disease: When, Why & How to Treat”
    Dr. William Dauer

  • Profile picture of Caroline Harris

    Caroline Harris replied to the topic Do you struggle with freezing episodes? in the forum Parkinson's Disease Symptoms 1 year, 10 months ago

    Exactly Robert!  My husband tries counting but I cannot seem to focus on his words and my walking. With the exception of a straight away path with no turns or narrow openings. I recently tried an app (metronome) but still experiencing the same issue of concentrating on steps and having auditory input.   Visual cuing is another strategy-lines t…[Read more]

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    Caroline Harris replied to the topic Do you struggle with freezing episodes? in the forum Parkinson's Disease Symptoms 1 year, 10 months ago

    Yes ditto that. This is the most debilitating symptom which worsens with anxiety.  Slurred speech seems to accompany my freezing and am having many falls. End of effectiveness of meds. ? New cycle doesn’t help.
    I’m usually stuck in this pattern once it begins( takes over my body and mind)

    My neurologist says it’s most difficult symptom to treat…[Read more]

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    Caroline Harris replied to the topic Your Amantadine Experience? in the forum Parkinson's Disease alternative treatments 2 years, 3 months ago

    Yes I was prescribed Amantidine. Unfortunately I had the side effect of splotchy- skin- arms and legs.  Looked a little like rash and left white spots that I thought would never go away. It did but took half a year or so. It didn’t hurt or itch and not sure it did augment my Levadopa treatment or not but my neurologist took me off. I’m using Comt…[Read more]

  • Profile picture of Caroline Harris

    Caroline Harris replied to the topic Use of continuous release (CR) Carbidopa levodopa. in the forum Living ​With​ ​Parkinson's Disease 2 years, 3 months ago

    Also thanks for your research reviews. That drives me crazy so love it when others can read & interpret for me

    sorry for incorrect spelling  “Inbrija”-is correct

  • Profile picture of Caroline Harris

    Caroline Harris replied to the topic Use of continuous release (CR) Carbidopa levodopa. in the forum Living ​With​ ​Parkinson's Disease 2 years, 3 months ago

    Thanks Russell for your post. Yes , I have already discovered no magic in these “rescue meds” or newer versions of Levadopa. Inbrigio has not really done much for me. My<span class=”a-size-base a-text-bold”> neurologist did give me an honest assessment of  Rytary and inhaled version – Inbrigio. No silver bullet.
    I have a significant copay for b…[Read more]

  • Profile picture of Caroline Harris

    Caroline Harris replied to the topic Use of continuous release (CR) Carbidopa levodopa. in the forum Living ​With​ ​Parkinson's Disease 2 years, 3 months ago

    I was diagnosed @6 years ago and have taken CR Sinemet for 3 years now. First started with bedtime to help start in morning. Then 3 times during day at same time as IR. Now I have more off times and gait/balance issues as well as freezing and falling. Dyskinesia started about 6 months ago which can be caused by too much Levadopa   Just had a…[Read more]

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    Caroline Harris became a registered member 2 years, 3 months ago

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