Vickie Paul

Sorry reply took so long. Couldn’t figure out how to use the site easily before I tried the Neupro patch. It has given me an attitude correction, YES I CAN instead of screw it, and the energy to get ‘er done.

Price is high. I’m in the donut hole, so I pay $200/ month. I think I added it up one year and the total was around $6000.

However, proba…[Read more]

I have dealt with incontinence for years, even before I was diagnosed with Parkinson’s in 2013. My neurologist says it’s one of the most common early symptoms of the disease, though it doesn’t get much air time because of the “eww” factor.

I use protective undergarments 24/7. My urges are too strong, especially when I get up from sitting,…[Read more]

My freezing episodes occur whenever I get up from a chair, get out of the car, have to step down in a doorway. I just have to wait until the spirit moves me. Then I take small shuffling steps, then shift my weight side to side, and finally walk normally to my destination. The longer I sit the worse the freezing.

Jean, just saw your question, sorry,.. i actually take rasagilene, the generic. My neurologist tells me it doesn’t do much for current symptoms but appears to stabilize PD  and provide some protection against further  debilitation. I haven’t experienced any effect, good or bad. I continue to decline, mostly slower walking, freezing, voice chang…[Read more]

At  72, 22 years a widow, I’m unlikely to enter the dating game. But if I did, I would hate having to tiptoe around a topic that involves such a significant part of my life. It’s not like you can keep it a secret once you meet.

I think one would be better off to introduce the subject earlier rather than later and let the chips fall where they…[Read more]

One of my exercise instructors recommended a magnesium supplement for my restless leg syndrome. I take M.Oxide, 250 mg once a day at bedtime. I also get 150 mg in my daily multivitamin. It has helped tremendously.

Right now my biggest challenge is freezing and slowness. It takes forever to get out of bed, or the car, or up from the couch. When I…[Read more]

I am 72, diagnosed in 2013. I tried several HIIT cycling classes at the YMCA. I loved the company, our sometimes black comedy like the time one of the cyclists was headed to the floor and the instructor made an incredible save, cradling his head. The rest of us erupted into clapping, hi-fives, whistles and catcalls, mystifying other gym rats.…[Read more]

Just a data point: My blood pressure has been on the low end most of my life. Never had problems with dizziness or fainting, before or after PD diagnosis (October 2013).

I take C/L usually 3x/day, Sinemet 1x/day at bedtime.