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Vickie Paul

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@pvickiepv

@mary-beth-skylis I want to comment on your new post to improve the site. The normal reply channel isn’t working. Can you come up with a way to save information. Maybe highlight a sentence, a paragraph or flag an article, or a link and store it in a notes file without having to copy and paste to a site outside the forum. View
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    Vickie Paul started the topic Neupro transdermal patch in the forum Parkinson's Disease alternative treatments 1 year, 3 months ago

    Has anyone tried this? It’s expensive but worth it if effective for controlling Parkinson’s symptoms.

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    Vickie Paul replied to the topic Do you struggle with freezing episodes? in the forum Parkinson's Disease Symptoms 1 year, 8 months ago

    My freezing episodes occur whenever I get up from a chair, get out of the car, have to step down in a doorway. I just have to wait until the spirit moves me. Then I take small shuffling steps, then shift my weight side to side, and finally walk normally to my destination. The longer I sit the worse the freezing.

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    Vickie Paul replied to the topic Did you have low blood pressure before PD diagnosis? in the forum Parkinson's Disease Medications 2 years, 3 months ago

    Jean, just saw your question, sorry,.. i actually take rasagilene, the generic. My neurologist tells me it doesn’t do much for current symptoms but appears to stabilize PD  and provide some protection against further  debilitation. I haven’t experienced any effect, good or bad. I continue to decline, mostly slower walking, freezing, voice chang…[Read more]

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    Vickie Paul replied to the topic Dating and PD in the forum Living ​With​ ​Parkinson's Disease 2 years, 3 months ago

    At  72, 22 years a widow, I’m unlikely to enter the dating game. But if I did, I would hate having to tiptoe around a topic that involves such a significant part of my life. It’s not like you can keep it a secret once you meet.

    I think one would be better off to introduce the subject earlier rather than later and let the chips fall where they…[Read more]

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    Vickie Paul posted an update 2 years, 3 months ago

    @mary-beth-skylis I want to comment on your new post to improve the site. The normal reply channel isn’t working. Can you come up with a way to save information. Maybe highlight a sentence, a paragraph or flag an article, or a link and store it in a notes file without having to copy and paste to a site outside the forum.

  • Profile picture of Vickie Paul

    Vickie Paul replied to the topic What PD symptom impacts your quality of life most? in the forum Parkinson's Disease Symptoms 2 years, 5 months ago

    One of my exercise instructors recommended a magnesium supplement for my restless leg syndrome. I take M.Oxide, 250 mg once a day at bedtime. I also get 150 mg in my daily multivitamin. It has helped tremendously.

    Right now my biggest challenge is freezing and slowness. It takes forever to get out of bed, or the car, or up from the couch. When I…[Read more]

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    Vickie Paul replied to the topic HIIT and PD; what about fatigue? in the forum Parkinson's Disease and exercise 2 years, 5 months ago

    I am 72, diagnosed in 2013. I tried several HIIT cycling classes at the YMCA. I loved the company, our sometimes black comedy like the time one of the cyclists was headed to the floor and the instructor made an incredible save, cradling his head. The rest of us erupted into clapping, hi-fives, whistles and catcalls, mystifying other gym rats.…[Read more]

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    Vickie Paul replied to the topic Did you have low blood pressure before PD diagnosis? in the forum Parkinson's Disease Medications 2 years, 6 months ago

    Just a data point: My blood pressure has been on the low end most of my life. Never had problems with dizziness or fainting, before or after PD diagnosis (October 2013).

    I take C/L usually 3x/day, Sinemet 1x/day at bedtime.

  • Profile picture of Vickie Paul

    Vickie Paul became a registered member 2 years, 6 months ago

    • Profile picture of Jean Mellano
      Jean Mellano replied 2 years, 6 months ago

      hi vickie
      Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic:

      – Vickie Paul (@pvickiepv) November 15, 2019

      This article has descriptions with direct links to each of…[Read more]

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