Mary Beth is a freelance writer specializing in personal narratives. Her work focuses on the outdoors and the transformative powers of nature. When her dad was diagnosed with Parkinson’s in 2013, her search to understand the disease materialized through language. She now writes to help others understand the disease and how to be a compassionate caregiver.
My dad was a firm believer in his flip phone and knew it would survive if he dropped it from a considerable height. He counted on it to connect him with his real estate clients and get the job done. After his diagnosis of Parkinson’s…
As a Colorado resident, I often wonder about the healing power of plants. We live in a time when the pharmaceutical industry is booming. Pills exist to tame nearly any symptom, but they often can have unwanted side effects. The side effects of plants, however, may be less harsh, or…
I’m notorious for attempting to convince everyone in my life to get a dog. I love the furry animals, but I often travel or am in places that aren’t particularly dog-friendly. So my latest mission is to convince my dad to get a dog. Could…
Christmas hung in the air, smelling faintly of cheese platters and wine. Dad and I had decided to attend a Rock Steady Boxing Christmas party. On the way over, he joked that it would “be a quick Christmas party because everyone’s drugs [would] wear off in a…
My sister, Dad, and I waited in the doctor’s office before Christmas for his deep brain stimulation (DBS) appointment. Dad underwent DBS last fall, and it’s time for a “tuneup,” as he likes to call them. I imagine his doctor with a wrench in her hand, manipulating Dad’s brain…
Dad used to tell us that he has two sets of clothes: a normal set and a set of “skinny clothes” that emerge when he gets sick. Dad was diagnosed with ulcerative colitis in his 30s, and the illness caused him to lose a startling amount of weight. He was…
Chronic illness is expensive. It costs money, time, and peace of mind. Whether you’re sifting through your worries or counting the pennies in your pocket, illnesses affect all avenues of life. Before the symptoms of a disease appear, one may go about daily life unencumbered…
I wonder if my dad’s battle with ulcerative colitis is linked to his struggles with Parkinson’s disease. Because of a series of medical complications, he’s missing his colon, a vital part of the digestion process. This affects how he digests food and medicine, which in turn affects his intestinal…
Writing about Parkinson’s disease is a cumbersome game. I’m a journalist in my regular life, so I’m no stranger to telling complicated and emotional stories. But my lens is usually focused on others. I tell stories about accomplished athletes and faraway places that don’t affect me directly. But Parkinson’s disease…
Dad has always loved films about fighters. There’s an allure to watching an underdog rise to fame. Maybe he’s mesmerized by the strength of characters like Rambo and Muhammad Ali because he hopes there’s a fighter in him as well. He won’t define himself by his circumstances or sink into…
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