Some of my earliest memories of my dad depict him like a superhero — the guy who would work all day before coming home and tossing his kids over his shoulder. He had a vitality that practically swirled with enthusiasm. After work, he could be found at the latest theater…
Shaking Things Up - a Column by Mary Beth Skylis
A few weeks ago, a friend of mine took a serious fall while riding a Onewheel around an obstacle course. While lying on the ground, he felt a head-splitting pain. An MRI showed that he had torn his rotator cuff and needed surgery. Before long, I was ushering him to…
Home is where most people go to relax, revive themselves, and prepare for the upcoming challenges of life. When it comes to creating a comfortable and supportive home for someone with Parkinson’s disease, the challenges are more nuanced. Suddenly, home not only needs to be a place of restoration,…
Several years ago, I wrote a column that described the sense of presence that Parkinson’s disease brought to our lives after my dad’s diagnosis in 2013. After the whirlwind of the diagnosis and navigating the logistics of what it meant for my dad to have the condition, we began…
A younger version of my dad lived for spontaneity. In his late teens and early 20s, he hitchhiked around the country in the spirit of adventure. One of his most significant early journeys took him from his home state of Michigan to Alaska, where he found work in a local…
When many people picture Parkinson’s disease, they envision the tremors. Their hearts sink, and they get quiet, perhaps thinking of a distant relative or friend who had the condition. Before my dad’s diagnosis in 2013, I fell into this category, picturing a man we knew from church who stooped…
Levodopa was first used in clinical trials for Parkinson’s disease in 1961, and it eventually became the gold standard for treatment. Today, it’s still the most common medication available for managing symptoms like tremors and stiffness. But “off” periods — when the medication wears off —…
Before my dad’s Parkinson’s diagnosis in 2013, my understanding of the disease was limited. I knew someone from church who had it, mainly because their tremors made it extremely visible. But I knew little about the disease’s nuances, such as who is most likely to be diagnosed with it, how…
There’s a moment that many Parkinson’s families encounter at some point. Maybe they’re on the road with a loved one with Parkinson’s who is driving, and they notice slight swerving over the center lane, as I did a few years ago with my dad. Or maybe the moment happens…
Connecticut-based Steve Yellen was a weekend athlete before he was diagnosed with Parkinson’s disease seven years ago. He first noticed a tremor in his left hand. Then he saw a neurologist, who confirmed the diagnosis. Instead of succumbing to apathy, Yellen decided to do everything in his power…
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