Support Groups: Are They for You?

Support Groups: Are They for You?

Sherri Journeying Through
People from all walks of life are being encouraged to join a support group. You know, like a support group for recently divorced couples, those with an alcohol addiction, or people who have chocolate meltdowns, anger management issues, depression, illnesses, an addiction to chocolate chip milkshakes, and … perhaps I have said too much.

At any rate, if you have Parkinson’s disease or any other illness or addiction, by now someone, somewhere, somehow most likely has suggested the words “support group.” Now, if you are like me, the mere mention of “support groups” at one time conjured up visions of bearing your soul to strangers and having one of them become your newest high-maintenance friend.

I know I’m exaggerating and I hope you know it as well, but honestly, support groups scared me. And, I found someone else who fears the same thing! I suppose you could call us part of a group called “Support Groupaphobia.”

Sheryl Jedlinski of PDPlan4 Life says that from the beginning of her life with Parkinson’s as a caretaker, she knew that being part of a support group wasn’t for her. She ended up creating a traditional support group of her own with online friends she met through various Parkinson’s activities. She goes on to say that the women who form the group have “carried me through many an emotional meltdown.”

I have found the same thing to be true — online support groups are the bomb! That’s how I met Judy, Jeanette, and Tina — three women inflicted with the same disease and fighting the same fight who have become three of my dearest friends.

A support group can be extremely healthy for you if you are living with an illness or struggling with a life issue. It is good and important to connect with others who really understand your struggles, whether you choose to go online or in person. And if you feel you’re not struggling, then most likely there is someone who needs you to lean on and be encouraged by.

It’s a great place to share information regarding your journey with Parkinson’s — medication concerns, what to possibly expect/be prepared for, symptom clarification, lingo deciphering, relationship issues, etc. It truly is invaluable. You can laugh, you can cry — why, you can be that high-maintenance friend for someone else!

So, if you can’t decide whether to get involved in a support group, may I encourage you to be like the Nike tennis shoes and … just do it.

***

Note: Parkinson’s News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Parkinson’s News Today or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Parkinson’s disease. 

Tagged , , , .

Sherri was diagnosed with Young Onset Parkinson's disease over fifteen years ago. She can be found working in her garden, going for walks, taking pictures, or reading books to her three favorite grandkids. Taking life somewhat slower, and perhaps with guarded steps, but she’s not giving in.

6 comments

  1. Bonnie says:

    I am so tired of hearing people say that you can “live with Parkinson’s” disease. You die a slow, and agonizing death with Parkinson’s. When you are diagnosed your life and the life of your spouse/caretaker changes forever. It SUCKS. Life is over…. There is so much money in the drugs used to “control” the symptoms that they are not trying to find a cure. Neurologists/doctors don’t give a damn. They know there is nothing they can do. I’m so tired of the LIES!!

  2. Sam chapman says:

    I’ve recently been diagnosed with Parkinson’s well in November 2018 I’m yet to see a Nurolagist or any medical professional and won’t till June 20th 2019 I’m worried I have no control over treatment whether the earlier the better for me everyone seems not bothered about any urgency regarding my illness

    • Hi Sam – I’m sorry to hear your diagnosis. Who diagnosed you if you haven’t seen a neurologist or movement disorder specialist? And why won’t you have any control over your treatment? Hang in there and ask to be referred to a movement disorder specialist as they are your better option for treating the disease than just a ‘neurologist’. Good luck and remember that everyone’s case is different and will progress differently. Exercise is also a good thing to start doing if you don’t already.

      • Sam chapman says:

        I went for a scan then was told to report to my own GP a week later he told me the results but didn’t give me any medicines so he’s we’re i am still awaiting any medical advice was ask by my G P what medicines are you on to which I said d I haven’t seen any body as yet

      • Edward Brown says:

        Hi. My name is Ed Brown. Just Ed if you would. My normal doc told me I had Parkinson on my 63rd birthday. I am now on primidone. I take100 mg in morning and 50 at night. Says don’t need to see neurologist until I have the trebles all the time with the med. Some days need cane to help with balance. Have 0 short term memory. Sometimes I walk like a very old man, hunched over and walk very slowly. Other times I can walk normally. I have taken to talking slowly and what I consider loudly so people can understand what I say. Are these signs of PD? Also I have a very hard time writing, sometimes even with the med. I’m hopeing he misdiagnosed me. Sorry if I am asking on the wrong page.

        • Hi Ed – if i were you, I’d definitely get a second opinion/see a neurologist. Your symptoms mimic PD but PD symptoms can mimic other diseases as well… hang in there. You’re not alone in this. feel free to ask questions anytime…

Leave a Comment

Your email address will not be published. Required fields are marked *