Parkinson’s fatigue makes my husband’s days difficult
One of the most challenging nonmotor symptoms of Parkinson’s disease is fatigue. When I think about the word, a poor night’s sleep comes to mind, resulting in a day of being tired…
The Bright Side — Jamie Askari
Jamie E. Askari is from Cleveland, Ohio, and serves as the managing director of Premier Health Advocates, LLC, a small medical advocacy organization. Her husband Arman was diagnosed with young-onset Parkinson’s disease in 2009, at age 38. Jamie and Arman have three grown children: Lexy, who is an attorney; Mandy, who is a dietitian; and Jake, who is an undergraduate student studying finance. She has named her column “The Bright Side” (actually, her husband named it!) because of their positive attitude regarding Parkinson’s and all other things in their life.
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My husband and I finally found a TV character with Parkinson’s
Do you have a long list of binge-worthy shows typed into the notes application on your phone? If you’re like me, you do. Whenever a friend mentions a show they’ve enjoyed, I add it…
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The freedom to choose our attitude: That has made all the difference
“Everything can be taken from a man but one thing: the last of the human freedoms — to choose one’s attitude in any given set of circumstances, to choose one’s own way.” — Victor…
How Parkinson’s disease has shaped our oldest daughter’s life
The name Alexa is of Greek origin and means “helper” or “defender of humankind.” Back in 1996, when my husband, Arman, and I were deciding on a name for our first child, we had…
Becoming an expert on my husband’s early-onset Parkinson’s
When my husband, Arman, was diagnosed in 2009 with early-onset Parkinson’s disease at the age of 38, I learned everything I could about it. I purchased every book I could get…
The sound of a fall has become all too familiar for our family
Have you ever witnessed someone falling? One minute they’re walking by your side, and the next, they’re on the ground. Usually this involves slipping on the ice on a cold winter day or drinking…
A seasoned caregiver’s top tips for living well with Parkinson’s
I recently began attending a support group for Parkinson’s disease caregivers. Although I may have been one of the group’s youngest members, I’ve been a caregiver for longer than most, as…
How We Keep Our Marriage Strong, Even With Parkinson’s Disease
“When the bones are good, the rest don’t matter/ Yeah, the paint could peel, the glass could shatter/ Let it rain ’cause you and I remain the same.” — Maren Morris, “The…
‘Get Busy Living, or Get Busy Dying’: Our Mantra in Life With Parkinson’s
“I guess it comes down to a simple choice, really. Get busy living, or get busy dying.” This famous quote is from one of the all-time greatest movies, “The Shawshank Redemption.” Andy…
A ‘Glass Always Full’ Outlook With Early-onset Parkinson’s Disease
I’m always in awe when I think about how my husband, Arman, has handled his diagnosis of early-onset Parkinson’s disease. He was young at the time, just starting his independent medical career after…
COVID-19 Finally Strikes My Husband, Who Has Parkinson’s
It started with a dry throat, which isn’t unusual for us in winter. After a lifetime of living in chilly Cleveland, we’re used to the dryness from forced-air heat. But the minute my husband,…
Embracing Realistic Optimism in the Mess of Parkinson’s Disease
While I have talked a lot in my columns about staying positive and looking for the good in all situations, I want to reflect on this. When you live with a loved one who…
How Our Parenting Style Evolved After the Parkinson’s Diagnosis
When our first daughter, Alexa (whom we call Lexy), was born in 1996, we were in our mid-20s. My husband, Arman, and I were obsessive first-time parents, documenting in detail her feedings, diaper contents,…
