Preparing for emergencies with a husband who has Parkinson’s
I’m the ultimate planner — just ask my family. Knowing the next life steps for my husband, my children, and myself offers me a sense of peace and calm. Because of that, I’m constantly…
The Bright Side — Jamie Askari
Jamie E. Askari is from Cleveland, Ohio, and serves as the managing director of Premier Health Advocates, LLC, a small medical advocacy organization. Her husband Arman was diagnosed with young-onset Parkinson’s disease in 2009, at age 38. Jamie and Arman have three grown children: Lexy, who is an attorney; Mandy, who is a dietitian; and Jake, who is an undergraduate student studying finance. She has named her column “The Bright Side” (actually, her husband named it!) because of their positive attitude regarding Parkinson’s and all other things in their life.
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Getting involved in fundraising for Parkinson’s was deeply satisfying
My family was feeling very helpless and alone after my husband, Arman, was diagnosed with early-onset Parkinson’s disease in 2009. He was only 38 years old then, and we were left floundering for…
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Early-onset Parkinson’s taught our family to embrace being different
Recently, for a column I was writing, I was looking for a good definition of Parkinson’s disease. I’m always amazed that much of the information out there about Parkinson’s disease doesn’t apply to…
Lessons from a mama bird about giving care to loved ones
I’ve always heard that mourning doves symbolize peace, hope, renewal, and love. While I’m unsure if this old wives’ tale is accurate, I can be sure that the nest of mourning doves on my…
How I’m finding my voice and using it to help others
As a young girl growing up in the 1970s, reading was my favorite pastime. We had no cellphones, internet, or Snapchat then, and only three TV channels via a rabbit-ear antenna. So I read…
Being brave is an unexpected requirement of Parkinson’s
I remember when my kids were small and I’d hear the patter of tiny feet running toward my bedside, usually at 3 a.m. I knew the reason would be one of two things: the…
How our family seeks to make life ‘PD-friendly’
Lately, I’ve been thinking a lot about the short phrase “PD-friendly” (PD being Parkinson’s disease). I wonder if others use this phrase. Or did I just make it up myself? At any rate,…
How a difficult diagnosis strengthened our family bonds
When my husband, Arman, was diagnosed in 2009 with early-onset Parkinson’s disease at the age of 38, it felt nearly impossible to find anything positive about our situation. At the time, we…
My tips on how to stay calm during stressful situations
Early one morning a few weeks ago, I was in the bathroom drying my hair, which usually takes about 30 minutes every few days. I stood in front of the mirror with the dryer…
Vitamin B1 for Parkinson’s disease wasn’t the miracle we’d hoped for
Note: This column describes the author’s own experiences with vitamin B1. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Last fall, at my…
Parkinson’s can’t stop us from making treasured memories
My most treasured moments come from just a handful of days in my life. The first was the sunny, beautiful day in July 1995 when I married my husband, Arman. Then there are the…
Exploring some helpful Parkinson’s resources available online
Besides my husband, Arman, we don’t have any friends or family members with Parkinson’s disease. However, we do have a relative, Rose Brown, who’s a social worker working solely with Parkinson’s patients.
My husband’s Parkinson’s diagnosis prompts ever-evolving feelings
If you’re reading this column, there’s a good chance you have some connection to Parkinson’s disease. I say this because I don’t often receive comments from readers who aren’t touched by Parkinson’s in…
