William
Forum Replies Created
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I have had PD for 9 years. I gave up driving 4 years ago. I noticed my reaction had slowed and when a friend of mine with PD ran into the back of a car, I decided enough drriving for me. There have been some minor inconviences such as securing a ride to wherever I want to go, but the payoff in less worry has been worth it. I still have my license and am still covered by insurance in case there is an instance where I have to drive. I admit it drove (no pun intended) me a little crazy at first since I was always the one who drove. But as my wife told me now it is her turn to drive.
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I have had PD for 9 years. I gave up driving 4 years ago. I noticed my reaction had slowed and when a friend of mine with PD ran into the back of a car, I decided enough drriving for me. There have been some minor inconviences such as securing a ride to wherever I want to go, but the payoff in less woory has been worth it. I still have my license and am still covered by insurance in case there is an instance where I have to drive. I admit it drove (no pun intended) me a little crazy at first since I was alwaus the one who drove. But as my wife told me now it is her turn to drive.
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I have tried Clonazepam in the past. The sleep was great and I was appreciative for that. The reason I quit was it also causes constipation which I already had enough of. Hope this helps someone.
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I have had PD for eight years. Constipation is one of the other sypmtoms I could do without. Another is when I am tired (not getting a nap after lunch) when I take my sinemet my speech becomes so garbled even I can not understand myself. I too have lost weight and it is harder than H to gain weight. I am at a healthy weight now, but I have to fight to keep it there. Balance issues are getting worse. I have a propensity to fall backwards. I have heard it said that PD is a disease where you can not rely on those automatic functions that I took for granted for all the years prior to my diagnosis. If I practice mindfullness with walking, eating, speaking, etc. I can get along pretty well. But it gets damned annoying to have to remember all the time of what you used to, you canot do anymore, But as they say it is better than the alternative.
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Absolutely. I am a firm believer in immunizations. It just makes sense biologically. I did get covid but I also believe that it would have much worse without the boosters. I feel for and perfectly understand Cynthia Ball’s situation. The chances of what happened to her husband are probably small but if it happens to you it is 100%. Do not worry about being judged for people who judge are trying to justify their position and make up for inadequacies of their own. You and your husband are in my prayers.
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Yes I do. Actually I am on my computer more. I find it entertaining and educational. depending upon what I watch. I guess I am becoming more sedate as my Parkinson’s progresses. I still find time to exercise, but I sit alot during the day.
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I have had Parkinson’s Disease for 8 years The freezing episodes were getting so bad that I had to curtail going out. My neurologist started me on amantadine and it has helped immensely. I still use the tricks, but since I have started the amantadine I no longer have to worry so much about falling and freezing. I hope it helps you as much as it has helped me.
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I was a breast stroke swimmer in high school. I have had Parkinson’s disease since 2013. Recently started swimming again and found with the breast stroke and side stroke I feel so uncoordinated that I stand still in the water. It is quite disheartening. I can still do the crawl fairly easily and can move thru the water with some speed, but I feel like a fish out of the water with the other two (n0 pun intended). At any rate, it is good to hear of others peoples concerns as well. Sometimes I feel like I’m all alone out there. Thank you all for sharing.
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I am curious to see if it works!
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I developed what I call “screaming diarrhea”. I stopped the entacapone and then started it again and the diarrhea came back. This happened three times. Needless to say I do not take any more. I wish you luck.
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I really want to thank those folks who wrote in on this subject. I too become frustrated especially on a “good day” when things go south. I appreciate the advice I will try to follow the suggestions given. I know my wife feels the frustration as well and many times I add to that frustration. This disease is unfair because my mind can do so many things my body cannot.
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It seems the more tired I become or as the evening wears on my symptoms become worse. The symptoms I am referring to are speech problems, incoordination, and balance.
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I have PIGD Parkinson’s disease – the nice thing is no tremor. I have trouble pivoting to the right. I mean I will go down everytime I try to picot to the right. It gets quite comical for my wife to watch me have to turn to the left even when turning to the right would be the logical choice. I also have primary Raynaud’s syndrome (it is idiopathic – caused by an idiot) and living in Iowa is COLD which means I am COLD all the time. Should move, but children and grandchildren are here. At any rate pivoting is a problem only to the right. Blurry vision is another symptom I could do without. Probably the strangest thing is my inability to gain weight. I have been at 170 pounds since my diagnosis 7 years ago. I guess I should feel lucky – but it is strange none the less.
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I too have pain. I have had Parkinson’s for 7 years and the pain I experience in an aching in lower limbs and shoulders. I have found that CBD (20 mg 3 x day) is about as effective as anything else I have but with much fewer side effects. As a retired physician I know full well the dangers of acetominophen, nsaids, and opiate medicines. I feel much better taking the CBD, but it does take about 2 weeks to be effective.
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It seems when I take sinemet for a while after the dose, I get a jaw and throat tightness that is uncomfortable and makes it harder to talk. Has anyone else experienced this? If I wait until the Parkinson’s symptoms come back full force, I experience less of the tightness. My dose 250/25 5 times a day and I have found if I take 1/2 of a pill every 2-3 hours, I do better. I have had Parkinson’s for about 7 years, Entacapone gave me intractable diarrhea. Azilect is very expensive on Medicare, Selegiline interferes with sleep. Mirapex works, but sedation can be a problem. I am beginning to sound like finicky old man, so I an going to quit – hopefully this will be of help to you.
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Roughly every 6 months or sooner if I feel the need.