[Barbara]

I read through most of the replies, but did not see anything relating to medical marjuana. Try it! I now take Sinemet only to supplement my Cannibus . My anxiety was causing my depression, which was deep, and now is at a level where I actually can smile and laugh. If med-marjuana is in legal in your state, I suggest you visit a state run store, apply for a MedCard, and begin experimenting. It worked for me.

[Barbara]

First, you must be watchful with any med. I take .25 Clonazepam + 2 Melatonin gummies every night. Sleep fine and not groggy in am. Will continue with this. B

[Barbara]

Started by wishing to take a PD book from my library. Their offerings were 3 and old. Spoke with Adult Services; during 2022-23, I suggested along with a librarian, we ordered about 20 pertinent/timely books which they allowed me to read first. Meanwhile, I arranged for a display table for Parkinson’s Awareness Month, April, 2023 which was visited by many, along with our local Visiting Nurses who got interested.  Result? Our 1st support group meets May 31st!! Yes, it was a busy year, but I achieved a goal and have made new friends. Try it. Barbara

[Barbara]

Yes, yes, and YES!  There is a collaborative between dopamine and exercise. I recently did my own experiment re same. Late last year, I was taking 1.5 Sinemet every 3 hours, alarms set. I took it without thinking, until one day I noticed my left hand wasn’t bouncing, my left leg was not moving. I skipped that dose and began noticing. My exercise routine is rigid: M/W/F = 1.5 hours of bike/treadmill/free weights, plus 1 or 2 recent Physical Therapy exercise specifically targeted for strengthening my left leg. I had just finished 8 sessions of PT. Tuesday/Thursday: floor/chair Yoga plus complete routine of PT exercises = 1 hour. Weekends=mixed exercise of some sort. By mid-January, I was down to 2-2.5 Sinemet per day, only taking Sinemet when necessary. I reported this to my M&D neurologist who said: “If it works for you, it works for me.” I trust her. So, yes, exercise works!

[Barbara]

Have forwarded the info to my neurologist. Fantastic news.

[Barbara]

Thanks. All opinions help.

[Barbara]

Yes, it does help for sleep. Unfortunately, it makes me a zombie during the day. Thanks for your comment.

[Barbara]

One book that will help everyone dealing with any type of illness, not just Parkinson’s, is “The Wounded Storyteller”. 8 years diagnosed, it helped me feel better about my acceptance/rationalization. One more: Parkinson’s Diva, a woman’s POV, written by a woman, a neurologist who then was diagnosed with PD,. Excellent.

[Barbara]

I intend to discuss this with my PD neurologist .

 

[Barbara]

Very interesting article! Thanks. Since I am periodically deficient in B12, will speak with my neurologist.

[Barbara]

I checked with my library and discovered the few books they had shelved under Parkinson’s were either  out-of-date or not really pertinent, so I made an appointment with the person responsible for the PD section. I had a list of suggestions including Parkinson’s Diva, book written by a PD neurologist who then was diagnosed with Parkinson’s; she wrote from a woman’s POV. Excellent. We collaborated, and four books (printed 2020) have been ordered. Also next April, there will be a Parkinson’s table display and write-up in the library newsletter. I do realize that the Internet has unlimited access, but the library will also provide individual information and a good amount of PR. Have you checked your local library?

[Barbara]

Rock Steady Boxing equals Pedaling for Parkinson’s in effectiveness. The program, while exhausting, is the best all-body exercise. When I started I could not fasten my bra or lift my arm over my head. Now, I not only pedal and box, I have enough flexibility to to floor and chair Yoga. Observe a class! You may think (as I did) .. “I can’t do that!” But you can. Try  it, you’ll like it. Barbara

[Barbara]

Melissa. I enjoyed reading your story. It was written with compassion and determination. My story appeared on day 1 of the 30 day challenge. I was surprised and honored to think that others might gain courage and/or insight from my story. I was 75 when I got my diagnosis; can only imagine how much courage it takes for you to face the future. I would love to have a cup of tea with you sometime. Best wishes, Barbara

[Barbara]

Jackie. Thank you. Was referred to a PD Urologist by my PD neurologist. Am calling for appointment. Have done same stop-gap solutions you suggested. Excellent.

[Barbara]

Although I am female, I will investigate. In the meantime, my neurologist recommended a Urologist. Thanks

[Barbara]

DITTO! Thanks. Your synopsis was perfect. Have had my PHD for 10 years. Feel qualified to comment.

[Barbara]

Try UTube: Rock Steady Boxng: chair yoga: simply search Parkinson’s exercises.

[Barbara]

I’m also trying to keep my dosage low.

[Barbara]

I’m also trying to keep my dosage low. Thanks

[Barbara]

Am experiencing brain fog. Thanks.

[Barbara]

Have heard it is very addictive. No solution but to try something else. Thanks for your input.

[Barbara]

Thanks

[Barbara]

I don’t think it should be. I am also on lowest dose. Will speak with my dr. Thanks.

[Barbara]

Indications: more visible tremors and balance issues that I felt were difficult to handle. Believe I started with 3 pills daily. 18 mos was my time: have no idea about others. It takes a while to compile results an  believe study continues. Again, best wishes for slow progression.