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Barbara

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@polkadot

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    Barbara replied to the topic Have you been able to develop a Parkinson’s community for yourself? If so, how? in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 2 weeks, 5 days ago

    Started by wishing to take a PD book from my library. Their offerings were 3 and old. Spoke with Adult Services; during 2022-23, I suggested along with a librarian, we ordered about 20 pertinent/timely books which they allowed me to read first. Meanwhile, I arranged for a display table for Parkinson’s Awareness Month, April, 2023 which was v…[Read more]

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    Barbara replied to the topic Do you struggle with urinary control? in the forum Parkinson's Disease Symptoms 3 weeks, 3 days ago

    DITTO! Thanks. Your synopsis was perfect. Have had my PHD for 10 years. Feel qualified to comment.

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    Beth and Profile picture of BarbaraBarbara are now friends 1 month, 2 weeks ago

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    Barbara replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 3 months, 1 week ago

    Try UTube: Rock Steady Boxng: chair yoga: simply search Parkinson’s exercises.

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    Barbara replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 3 months, 1 week ago

    Yes, yes, and YES!  There is a collaborative between dopamine and exercise. I recently did my own experiment re same. Late last year, I was taking 1.5 Sinemet every 3 hours, alarms set. I took it without thinking, until one day I noticed my left hand wasn’t bouncing, my left leg was not moving. I skipped that dose and began noticing. My ex…[Read more]

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    Barbara replied to the topic Vibrating gloves eliminate Parkinson's tremors and other symptoms in the forum Parkinson’s Research News 4 months, 1 week ago

    Have forwarded the info to my neurologist. Fantastic news.

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    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 2 weeks ago

    I’m also trying to keep my dosage low.

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    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 2 weeks ago

    I’m also trying to keep my dosage low. Thanks

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    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 2 weeks ago

    Thanks. All opinions help.

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    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 2 weeks ago

    Am experiencing brain fog. Thanks.

  • Profile picture of Barbara

    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 2 weeks ago

    Have heard it is very addictive. No solution but to try something else. Thanks for your input.

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    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 2 weeks ago

    Thanks

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    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 3 weeks ago

    I don’t think it should be. I am also on lowest dose. Will speak with my dr. Thanks.

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    Barbara replied to the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 3 weeks ago

    Yes, it does help for sleep. Unfortunately, it makes me a zombie during the day. Thanks for your comment.

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    Barbara started the topic Clonazapan in the forum Parkinson's Disease Medications 6 months, 3 weeks ago

    Are you taking Clonazapan? For which symptom? Recently I have heard negative comments in respect to taking it for anxiety? All comments appreciated.

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    Barbara replied to the topic Have you found helpful books/resources to assist caregivers? in the forum Using our forums 10 months, 2 weeks ago

    One book that will help everyone dealing with any type of illness, not just Parkinson’s, is “The Wounded Storyteller”. 8 years diagnosed, it helped me feel better about my acceptance/rationalization. One more: Parkinson’s Diva, a woman’s POV, written by a woman, a neurologist who then was diagnosed with PD,. Excellent.

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    Barbara replied to the topic B12 Injections For Stopping Tremors in the forum Parkinson's Disease alternative treatments 10 months, 3 weeks ago

    I intend to discuss this with my PD neurologist .

     

  • Profile picture of Barbara

    Barbara replied to the topic B12 Injections For Stopping Tremors in the forum Parkinson's Disease alternative treatments 11 months, 1 week ago

    Very interesting article! Thanks. Since I am periodically deficient in B12, will speak with my neurologist.

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    Barbara replied to the topic Did you celebrate Parkinson's awareness month? in the forum Parkinson’s Disease Awareness and Advocacy 12 months ago

    I checked with my library and discovered the few books they had shelved under Parkinson’s were either  out-of-date or not really pertinent, so I made an appointment with the person responsible for the PD section. I had a list of suggestions including Parkinson’s Diva, book written by a PD neurologist who then was diagnosed with Parkinson’s; she wr…[Read more]

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    Barbara replied to the topic Do you like to box? in the forum Parkinson's Disease and exercise 1 year ago

    Rock Steady Boxing equals Pedaling for Parkinson’s in effectiveness. The program, while exhausting, is the best all-body exercise. When I started I could not fasten my bra or lift my arm over my head. Now, I not only pedal and box, I have enough flexibility to to floor and chair Yoga. Observe a class! You may think (as I did) .. “I can’t do that!…[Read more]

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