Barbara

I’m also trying to keep my dosage low.

I’m also trying to keep my dosage low. Thanks

Thanks. All opinions help.

Am experiencing brain fog. Thanks.

Have heard it is very addictive. No solution but to try something else. Thanks for your input.

Thanks

I don’t think it should be. I am also on lowest dose. Will speak with my dr. Thanks.

Yes, it does help for sleep. Unfortunately, it makes me a zombie during the day. Thanks for your comment.

One book that will help everyone dealing with any type of illness, not just Parkinson’s, is “The Wounded Storyteller”. 8 years diagnosed, it helped me feel better about my acceptance/rationalization. One more: Parkinson’s Diva, a woman’s POV, written by a woman, a neurologist who then was diagnosed with PD,. Excellent.

I intend to discuss this with my PD neurologist .

Very interesting article! Thanks. Since I am periodically deficient in B12, will speak with my neurologist.

I checked with my library and discovered the few books they had shelved under Parkinson’s were either  out-of-date or not really pertinent, so I made an appointment with the person responsible for the PD section. I had a list of suggestions including Parkinson’s Diva, book written by a PD neurologist who then was diagnosed with Parkinson’s; she wr…[Read more]

Rock Steady Boxing equals Pedaling for Parkinson’s in effectiveness. The program, while exhausting, is the best all-body exercise. When I started I could not fasten my bra or lift my arm over my head. Now, I not only pedal and box, I have enough flexibility to to floor and chair Yoga. Observe a class! You may think (as I did) .. “I can’t do that!…[Read more]

Melissa. I enjoyed reading your story. It was written with compassion and determination. My story appeared on day 1 of the 30 day challenge. I was surprised and honored to think that others might gain courage and/or insight from my story. I was 75 when I got my diagnosis; can only imagine how much courage it takes for you to face the future. I…[Read more]

Indications: more visible tremors and balance issues that I felt were difficult to handle. Believe I started with 3 pills daily. 18 mos was my time: have no idea about others. It takes a while to compile results an  believe study continues. Again, best wishes for slow progression.

Diagnosed in 2014, my neurologist did not rush to C/L, instead enrolled me in research testing … “what length of time a newly diagnosed patient can go before requiring medication”. I made it to 18 months before both of us agreed it was time. To answer your question, YES C/L does relieve tremor. As for the other 100 or so symptoms, they are so in…[Read more]

Thought one person could not really do much. I was wrong. Today I went to my library to ask about obtaining Parkinson’s Diva, a book I read about in the Univ of Rochester Clinical Research Center video, specifically made for 2022 Parkinson’s Awareness Month/Day. I was referred to the Adult Services section of the library where a knowledgeable Lib…[Read more]

No. I have heard DBS is risky for those over 80.

Yes, but not from diagnosis. Now that I am 8 years in, through much reading and observations I have been experiencing what I call “good happenings “.
Barbra