[George Sharp]

i think that long time use of Levodopa is ok i am sure the docs will find a cure soon.
They will have to because the number of people who have PD is growing at such
a rate pretty soon they will be calling it a pandemic every country is being effected and that will drive the recherché to get a cure. Or is that just a dream i am in my 70s so i have lived a good life but what about the poor buggers in there 50s or younger its time we got a cure , all the best George

[George Sharp]

i can understand his concern it seems to be the expectation that it only lasts for a short time so i can think that the getting ready to have this type of operation must be a bit daunting, just the thought that your awake and are Abeal to hear what is happening to me is a pretty scarey thing so i can understand his worry that though he is well now it may not last, it would be a last sort thing a person like me wouldn’t mind having done .
I think that deep inside he has these thoughts, i don’t blame him at all.

[George Sharp]

Hi there i have not adjusted my dosage as yet i find it depends on the day what you are doing if you are using your brain a lot or it is a bad day weather wise and you are siting watching TV not as i would call it a big mental day a lot then i some time miss my middle of the day pill and i find this happened quite a bit ,so i think in that respect i would have cut it down my dosage. But it is a good point you made i must put it to my doctor ,i take a Aziect at 10 and that is a very good pill and i believe if i was on these pills instead of the levodopa i would be lot better but that is for me to find out that could be a point for me to try it out .

[George Sharp]

i haven’t had to adjust my meds yet it seems to be working ok i have had Parkinson’s for 5 years long may it last .

[George Sharp]

we are a debate now on when i should book our holiday in NZ . My wife cannot bear to have a mask on for the length of the trip ,she just cant breathe properly and apparently you have to ware them on the plane so she is happy to wait until you don’t need to ware them. I cannot wait to long as none of us is getting any younger and i would like to see my sister again and as she has heart problems just got fitted with a pace maker so i am getting a bit worried about her she is in her Eighties . So big discussions in our home just now .George

[George Sharp]

I have trouble getting much over 4- 6 hours a night but I find that is plenty   I have always been the same  long before Parkinson’s so I think in my case it is old age , the only thing I  have a problem with is some times I have got up for the toilet and before going back to bed I may take a pill  which  may be a anti acid or a Panadol I find  it hard if I get up again to remember  taking the pill. in fact have trouble remembering me getting up, thank goodness  this  event  is rare , but as I am 77 it is most likely my old age. the only thing is try and get really tired and when you go to bed you drop off quickly ,

[George Sharp]

I am lucky that   I don’t have any adverse side effects of this medication must be a bugger for you .Try Madhapur it has a different type of drug to ease the strain of the Levodopa  which is the same drug you are taking  but the other drug is different , they also are a capsule which in my opinion is much easier to take  all the best George

[George Sharp]

i can tell you that the meds I take have little or no side effects i take Madoper 3 times a day and  one Azilet and Artane 3 times a day it helps me control the tremors in my left hand  but other than that my side effects are minimal , i do have a strange thing that is making my life  a bit awkward  I  have a numbness on one side of my nose and on my top lip it is very bad when  I  to talk my wife says she cant understand me i told my Doc about this and he is sure it is not related to my Parkinson’s and he has tried all the MRI scans you can possible get but all they show up is that two of the nerves on my face are slightly  effected  but when they join up with the rest of the nerves on my face they are working fine m so he is at a loss i am not joking when I tell you I have had about 6 scans a lumber puncture and god knows what   else . so any one who have had the same kind of thing and has a cure please let me know. George

[George Sharp]

i used this stuff it is called   melatonin  Gummies take a couple about 3 hrs before you go to sleep,i think it will  George

[George Sharp]

I only sleep for 4 to 6 hours a night but seems to do me I usually get off to sleep easily but lately I wake up feeling well-rested check the time and I find it is only 12-30 I have been in bed for around two hours this has come pretty regularly of late so I really don’t know if my sleep is changing or it is just one of these things that is changing due to my PD.

This is one of the problems when you get older is it old age or is this PD  incident who knows I don’t let it be a major thing in my life but all I can say is thankfully I just get back to sleep as fast as I can and don’t let it get to me.   George

 

 

[George Sharp]

What we need is a cure, if they spent as much money on research for the cure to Parkinson’s as they have done for covid 19 it would have been a done deal long ago .

[George Sharp]

I think facial masking is one of the things that I have to come to grips with it is just another thing we have to think about to make us feel normal because that is what we want to do, we feel if we put the extra effort in it helps our Parkinson’s to me it is sometimes a waste of time why spend our time thinking about things we used to do without thinking, it all comes down to us wanting it to appear normal. This is one of the hardest things for us to accept.

[George Sharp]

I am very pleased to hear this i shall watch out for that type of reaction, my Doctor has prescribed  Artane take one 3 times a day they seem to work well  George

[George Sharp]

I have tried to get onto some of the trials but I must be old or have been on levodopa for too long I realize that they want some people who are younger but I am always available or they think that I am  a very bad subject but I keep on having a go. , keep safe everyone George

[George Sharp]

Hi my name is George I am interested in your experience with Mannitol it is good to hear that it makes a bit of a difference I was wondering where you bought yours from I live on the gold coast in Australia  and it is very expensive to buy

[George Sharp]

my speech my wife all ways say she cannot understands me and that is sometimes when i have talked very slowly and made a great effort to be clear ,my Daughter who lives in the flat at the front of the house she seem to under stand what i have said so it is a bit flustering drives me nuts but that is the life i have now Dworge

[George Sharp]

i must admit that my writing not working to good i can sign a document and that is about it, i find my writing gets smaller as i write on so in the end it is very hard to read thank god i have my lovely wife Susan who keeps a eye on me, she fills out the forms and such makes it easy on me .
i find that if i make sure i have my glasses on and all the details i will need i can struggle by just .i can remember my dad who had a beautiful long flowing hand a when he reached 80 his eyesight went he never had Parkinson’s but in the end he couldn’t write so it will effect us all in time. no i never tried any tools my dad had a device he used to put on the place where you signed your name and it kept his signature straight but that is all i have ever seen used, George

[George Sharp]

I still have my license i do agree that it is something you have to deal with in a induvial basic’, I have always promised myself that if the day comes i have any trouble i will stop. It is a hard thing to do but i would rather give up or be in a situation where i was forced into it. and when i think back I was driving at 14 and had a proper license when i was 16 so i turn 78 in a couple of months so i have had a good run with it , but will miss it when it is gone .George

[George Sharp]

I am not to bad I think that the Parkinson’s is about the same may be a bit more tremor but a problem I have is what can be done about the amount of saliva I make , I is very annoying I walk around with a pocket full of tissues so i have some where i can get rid of the extra saliva .
It is a bugger. But never mind there is a lot of people much worse off than All the best to every one George

[George Sharp]

gummies.  Try these they are easy to take. Take them at night and it should help you sleep. all the best  George

[George Sharp]

hi there Sheila i will give it a go  GEORGE

[George Sharp]

I have leg cramps every night I wake up and have a stretch and then it starts the thing I do is take MAGNESIUM it definitely helps and I take a Campese they are a type of supplement and most nights they do help so give it a try. I can vouch for them the main thing is remembering to take them, I am a bugger forgetting them, and by the time I remember I am usually in bed.

But give it a try, if you go to bed at 10 take them about around 7-30. all the best  George

[George Sharp]

I live on the Gold Coast in Queensland Australia

[George Sharp]

Hi I find that if I take Magnesium it seems to settle the cramps  down .  George