Gauri
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Music and Parkinson????
Ohhh wow 👍👍👍👍👍👍👍!!!!!!
Fantastic
How will I not speak about it!?
I Gauri khare am music. I am born music. I eat music I sleep music. Music is my friend, music is my companion….music is my everything.
I have learnt classical Indian vocal music. Indian classical music is a combination of history, literature, art, mathematics that makes it a multidisciplinary subject. As a subject we can learn the theory and practical part both simultaneously.
In Indian classical vocal music one is required to match his/her voice with any one of the base notes starting from c# or a# or d# etc as per ones voice matching.
The starting note is called Omkar.
OM is the sound of cosmic energy and contains all the sounds in itself. The spiritual efficacy of OM is heard, not by the ears but by the heart. It surcharges the innermost being of man with vibrations of the highest reality.
Chanting omkar is as good as a meditation and has healing power. -
I have had a DBS done 👍 nearly two and half months ago and experiencing lesser dependency on medicine. But all my friends out there who are planning to do DBS I definitely have something to tell you. I am still not feeling normal. My head is minutely aching most of the times in the morning and the stretched feeling inside head which started post surgery hasn’t gone yet; though has subsided. Guys ⚠️ warning! Those who can tolerate pain during surgery can go for it….do not be scared…. because the benefits outweigh the drawback
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Hi
I am Gauri, 52. I was 41 but I was detected with Parkinson. Somehow learnt to deal with it! I am multi talented person. I am an artist and actor a vocalist I can play any instrument I can sing Indian classical vocal I do painting and alot more …
I started my YouTube channel on which I recite poetries written by famous poets writers 3 years ago. I don’t have too many followers or too many subscribers but I have YouTube channel I have Instagram account and Facebook and Twitter all platforms I have the same channel and good amount of 250 / 300 subscriber followers on each channel with views running up to 4 digits and about 150 videos have been uploaded until today. Reciting poetries is my passion acting is my passion singing is my passion any form of art is my passion, it gives me immense pleasure. -
No….I hv estraged relationship with my husband now. One shouldn’t expect anything from others but truly speaking he hasn’t been a caregiver. I only want him to recognise the psychological impact of the disease but he’s unable to understand at times ….I feel.
Under this situation I happened to meet someone on social media and I fell in love with him. I also intend to keep relationship with him. Apparently I gave him money which he is going to return but in my husband’s opinions its all a scam. But honestly I invested in bitcoin and lost.
So financially I am at a loss. In my personal life all bonding and family ties hv undergone changes.
Nothing seems to be the way it was!
I feel lost in the world -
Dealing with loss
I experienced 2 major losses.
First,I had to discontinue learning my favorite hobby which was learning Indian music and singing in the initial stages of Parkinson due to symptoms on an increasing scale as i was not treated.
Secondly
Most probably I suffered from Impulsive control behavioural disorder as a result of side effect of a drug Pramipexole. Such type of disorder resulted in tarnishing my social image, a loss of self respect, loss of self esteem…nd loss of money too. -
Yes I suffer from anxiety depression nervousness stress a lot. 5 years before I was diagnosed with Parkinson ice started experience in depression. Sometimes depression get s to a great height and I have no control over my actions and emotions and I make mistakes for which I regret later.
I am have been on anti depressants for the past 10 years -
Yes I do have a driving licence and I practice driving on a four wheeler as well as a two wheeler as a matter of fact I am very very stable while driving I enjoyed driving city driving as well as Expressway driving I am very comfortable driving a two wheeler as well.
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No not all. After taking sleeping pill(s) also I keep awake in the middle of the night. Although I have made up my mind to sleep I feel sleeping is unnecessary business and that my other hobbies for which forI don’t get time are I can take it up..
The things I must do.
This is how I have been experiencing deficiency in sleep since pandemic started. This has actually ruined my health.
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I am extremely talented person having multi-faceted personality. Singing,acting painting, teaching are to name a few. As I was detected with Parkinson at the age of 41, I could not pursue any of my hobby.
Now that I have been feeling much better with right medication and my super busy lifestyle …..
No one appreciates my talent. When I give my best at either painting, singing, recital of poetry, nobody cares a damn about me.
This is my *Weirdest system”.
To expect positive feedback for my talent.
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I am extremely talented person having multi-faceted personality. Singing, acting, dating, painting, teaching are to name a few. As I was detected with Parkinson at the age of 41, I could not pursue any of my hobby.
Now that I have been feeling much better with right medication and my super busy lifestyle …..
No one appreciates my talent. When I give my best at either painting, singing, recital of poetry, nobody cares a damn about me.
This is my *Weirdest system”.
To expect positive feedback for my talent.
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My weirdest symptom is depression and reckless actions out of frustration. I keep awake until midnight involved in sexting with my boyfriend and do not fall asleep even though I might be sleepy. This happens because of the need for sexual arousal which is not getting fulfilled by my husband
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Indian classical vocal music which I have been learning for so many years has got magical power. I have been learning since my childhood. Education in Indian classical vocal music has the power of healing mental strain and alleviated the Parkinson’s symptoms; not physical but psychological.
While practicing Indian classical vocal music we say 7 notes, out if which the first note says “SA”. We can also say Om.
Humming Om as the first note generates positive Vibes all around us.
It purifies the environment around you and creates positive energy that feels you happier and stress-free. It helps you to focus and concentrate.
As a matter of fact, chanting Om creates vibrations at the frequency of 432 Hz – the same vibrational frequency found in all things throughout nature. Om is the basic sound of the universe; chanting it symbolically and physically tunes us into that sound and acknowledges our connection to everything in the world .
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Before I could get the right treatment for Parkinson I was struggling to learn Indian classical vocal music. With tremor at its peak caused instability in the posture resulting in a setback. but under these circumstances also I could pass 5 exams of the Board for vocal classical music.
Today as my symptoms are under controlled and managed better I am able to practice vocal music and gain command over it.
I also play piano and accompanying instruments as you can see in the link
https://photos.app.goo.gl/ShbYVYCu29cFwH5x6
https://photos.app.goo.gl/daXFPxJWDG9wxCxM8
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Ever sinse my childhood I have been a music lover. I love to listen to music I love to sing I love to play music I breathe music I think music my life is music. I took training in Indian classical vocal music before I was diagnosed with Parkinson. While I was learning Hindustani classical vocal I suffer from Parkinson and I was diagnosed with the same at the age of 41. Initially I did not understand what was happening with me as I could not accept the fact that my symptoms are on account of Parkinson.
Meanwhile as I used to practiced singing day by day I found more and more difficult to cope up learning vocal music. The tremor, muscles twitching had become worst slowly. I was unable to sit and focus on singing.
Slowly people started asking me what was wrong with me as my hands and legs used to shake as though I had seen acghost.
When I was asked by my teacher to persent avsmall mm lmrecitalin front of small group of audience I had to face great difficulty as audience could see my left leg shaking and moving rhythmic up and down while. Finishing with my song I was feeling very awkward as soon as the event ws over I rushed home as I was feeling very nervous.
I remember the day when I had appear for practical exam of Hindustani classical vocal. Barely was I able to answer the questions and perform in front of the examiner that I finished with my practical and rest home hit the bed with the outburst of loud cry
As I came across dr sana for physiotherapy and Dr Bhatt who gave me the right medication I gradually improved and my symptoms were under control..
Today I practice each day and have achieved excellence in vocal classical music
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On April 2013 I gave my fifth level Indian classical vocal exam with great difficulty. I was suffering from all symptoms of Parkinson and I was not aware that I was suffering from Parkinson. I was literally shaking in front of the examiner. Examiner asked me if I was feeling alright?’D
Do you need the glass of water? ‘ asked examiner. It was so frust experience that when I reached home and I simply broke out. and I home as had to decide to discontinue leaning music.
I experienced major setback.
As my condition improved with ⁶⁶foebbitjeryyh
Music u of 3 times in the span of 40 years age I kept inside 6u⁴t9l7í7 hu 7e internetmhy855ittantly.., many people gave me a compliment that I had beautiful voice and that I sang also very well many people also said that I had in bone quality of becoming a singer as I have been gifted with this talent.
As I was detected with Parkinson few years old line as I got medication and I started slowly improving I again continued by education learning Indian classical vocal music. singing kiss me pleasure. While we practice the first note of vocal music called “shadja” or “saa” we actually create positive vibes within us. In the same manner in Indian music the practice begins with pronouncing omkaar.
When you chant Om, a vibration sound felt through your vocal cord that clears and opens up the sinuses. Chanting Om also has cardiovascular benefits. It reduces stress and relaxes your body that brings down the blood pressure on the normal level and the heart beats with a regular rhythm .
As I got right medication from the right neurologist i started feeling better.
Today, music gives me immense pleasure and I practice it for my happiligeliy
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On April 2013 I gave my fifth level Indian classical vocal exam with great difficulty. I was suffering from all symptoms of Parkinson and I was not aware that I was suffering from Parkinson. I was literally shaking in front of the examiner. Examiner asked me if I was feeling alright?’
Do you need the class of water? ‘ asked examiner. It t was so frust hirating experience that I reached home and I was inntearsm simply broke out and I reached home as I have to send it not to continue taking formal education in Indian classical vocal.
Music has not face me my passion I love singing ever since my childhood with a break of 3 times in the span of 40 years age I kept inside 6u⁴t9l7í7 hu 7e internetmhy855ittantly.., many people gave me a compliment that I had beautiful voice and that I sang also very well many people also said that I had in bone quality of becoming a singer as I have been gifted with this talent.
As I was detected with Parkinson few years old line as I got medication and I started slowly improving I again continued by education learning Indian classical vocal music. singing kiss me pleasure. While we practice the first note of vocal music called “shadja” or “saa” we actually create positive vibes within us. In the same manner in Indian music the practice begins with pronouncing omkaar.
When you chant Om, a vibration sound felt through your vocal cord that clears and opens up the sinuses. Chanting Om also has cardiovascular benefits. It reduces stress and relaxes your body that brings down the blood pressure on the normal level and the heart beats with a regular rhythm .
As I got right medication from the right neurologist i started feeling better.
Today, music gives me immense pleasure and I practice it for my happiness
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As a matter of fact I started feeling depressed nearly 5 years prior to being diagnosed with Parkinson. Naturally that time I was neither aware about depression as a mental disorder nor did I know anything about the pre-parkinson symptoms.
11 years after being diagnosed with Parkinson, I still suffer from depression and anxiety. I went to a psychologist and psychiatrist and tried various drugs in order to treat depression anxiety.
“How long can one keep taking these medicines?”I asked myself. I gradually decreased the dose and stopped taking anti-depression tablets.
I have found out how to deal with anxiety in depression. There are 4 important things that I follow….
The first one is, I consciously develop positive thinking.
Secondly, I have faith in God and I believe that my regular prayers will help me build up endurance.
The third way I deal with the situation is, I focus on my skills and potential and try to pursue my interests in life so that it keeps me going through hard times also.
And the fourth way I deal with depression is by developing a sense of gratitude in myself. It always help me fight with adversities in life. -
I have observed that I need more appreciation from my near and dear ones for my I work do. It is wrong to expect but I do expect that people give me credit for the work done by me. Some kind of obsession or craving for something desperately; is the change app observed in myself. In the absence of caregivers my mind gets carried away with those people who offer love; respective of of the person is known or unknown!!
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One fine morning I found my neck very stiff , hands were frozen, there was unusual rigidity that I observed. Soon I realised that I was not able to tie shoelace also. People kept asking me what is wrong!?? 3 to 4 months passed by before I visited neurologist. After examining for 10 minutes the neurologist wrote on a piece of paper Gauri Khare age 41, suffering from Parkinson. I felt like an earthquake, it was like blow of a bomb blast!!! I refused to accept it. I carried on my routine and life with these symptoms as it is. Another six months passed by before I saw another neurologist who prescribe the same. I still did not take medicine as I did not want to accept the terms of life. My symptoms worsened. Gait problem, rigidity of muscles tremors were at its peak. Five years before this I was experiencing depression. I used to try and hide at tremor when I used to meet people. Four years passed by. I met a renowned neurologist advised me to undergo trodat scan which detected absence of cells producing dopamine. This made me believe my prior prescriptions. I started with my medication and was very disappointed to understand that I was not able to digested and tolerated it. The whole affair pushed me down into depression. Situation was bad to worse for the initial 5 to 6 years until I met a better neurologist who put me on to better drugs and also advised me physiotherapy. My life took a turn and there was greenery on my path. With physiotherapy and medication I started feeling much much better and was almost feeling like normal person.
Today there is nothing that I cannot do I do painting I sing classical vocal I am a private tution teacher I do daily chorus activities I jog on the treadmill I draw Rangoli of of four feet diameter in the building lobby I drive I lift weights of grocery and everything that a normal person can do.
I have proved that Parkinson is not progressive it is degressive.
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One fine morning I found my neck very stiff , hands were frozen, there was unusual rigidity that I observed. Soon I realised that I was not able to tie shoelace also. People kept asking me what is wrong!?? 3 to 4 months passed by before I visited neurologist. After examining for 10 minutes the neurologist wrote on a piece of paper Gauri Khare age 41, suffering from Parkinson. I felt like an earthquake, it was like blow of a bomb blast!!! I refused to accept it. I carried on my routine and life with these symptoms as it is. Another six months passed by before I saw another neurologist who prescribe the same. I still did not take medicine as I did not want to accept the terms of life. My symptoms worsened. Gait problem, rigidity of muscles tremors were at its peak. Five years before this I was experiencing depression. I used to try and hide at tremor when I used to meet people. Four years passed by. I met a renowned neurologist advised me to undergo trodat scan which detected absence of cells producing dopamine. This made me believe my prior prescriptions. I started with my medication and was very disappointed to understand that I was not able to digested and tolerated it. The whole affair pushed me down into depression. Situation was bad to worse for the initial 5 to 6 years until I met a better neurologist who put me on to better drugs and also advised me physiotherapy. My life took a turn and there was greenery on my path. With physiotherapy and medication I started feeling much much better and was almost feeling like normal person.
Today there is nothing that I cannot do I do painting I sing classical vocal I am a private tution teacher I do daily chorus activities I jog on the treadmill I draw Rangoli of of four feet diameter in the building lobby I drive I lift weights of grocery and everything that a normal person can do.
I have proved that Parkinson is not progressive it is degressive.
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Hi
I, Gauri, 50 year old, mother of 2, am a Parkinson’s patient since last 8 years.
It all started with lactation during pregnancy. I experienced hyper lactation post both delivery. It was unmanageable, painful, causing tremendous discomfort……
This was something I can not explain!!!
I took medication to make it tolerable. But it relieved me to the extent of 10/20% only. I decided to feeding. It took 2years post weaning for secretion of lactation to stop. I went through post partum depression which I only undertook today. A few years then I went on a diet. I was happy that I shed about 7% body fat.
One fine day ? I woke up to realise that my neck, hands were so stiff that it made movements difficult. My walking changed. Suddenly I started dragging my foot, taking short steps. Entire body movements became slow. For example, tying a shoe lace became almost impossible task for me. I was 41 then. A visit to a neurologist revealed that I am suffering from Parkinson’s.
It took 5 years for me to believe the truth only then I accepted the medication.
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Let me share with you my experience after both the delivery. I gave birth to the first child when I was 26 and second child when I was 32. After both delivery I experienced hyperlactation. After the first delivery due to lack of access to Medical Services and appropriate drugs to treat hyperlatation and since the situation was going out of control and I was profusely lactating I had to gradually stop feeding the baby. Hyperlactation was extremely painful and caused me tremendous inconvenience although I pumped Bottles And bottles of milk and supplied. Exactly the same story repeated after the second delivery. But I got some medicine to treat the hyperlactation. I had suffered from high fever and was on antibiotics for 10 days.
Hyperlactation is a outcome of lack of secretion of chemicals from the brain and this proves the root cause of cells creating dopamine to die. I went on a diet and reduced substantial fact prior to being diagnose with parkinson.
While I had reduce substantial weight and fat one fine day I found my neck stiff my hands fingers frozen and my walking was affected.
For very long time I ignored these symptoms. One day when I went to see a Neurologist he wrote on a piece of paper after examining for 10 min; to have been diagnosed with Parkinson. I was 41 years old then.