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Gauri

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@gaurikhare

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    Gauri replied to the topic Social media in the forum Living ​With​ ​Parkinson's Disease 2 weeks, 1 day ago

    Hi
    I am Gauri, 52. I was 41 but I was detected with Parkinson. Somehow learnt to deal with it! I am multi talented person. I am an artist and actor a vocalist I can play any instrument I can sing Indian classical vocal I do painting and alot more …
    I started my YouTube channel on which I recite poetries written by famous poets writers 3 years…[Read more]

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    Gauri replied to the topic Dealing with loss in the forum Living ​With​ ​Parkinson's Disease 3 months ago

    No….I hv estraged relationship with my husband now. One shouldn’t expect anything from others but truly speaking he hasn’t been a caregiver. I only want him to recognise the psychological impact of the disease but he’s unable to understand at times ….I feel.
    Under this situation I happened to meet someone on social media and I fell in love…[Read more]

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    Gauri replied to the topic Dealing with loss in the forum Living ​With​ ​Parkinson's Disease 3 months ago

    Dealing with loss
    I experienced 2 major losses.
    First,I had to discontinue learning my favorite hobby which was learning Indian music and singing in the initial stages of Parkinson due to symptoms on an increasing scale as i was not treated.
    Secondly
    Most probably I suffered from Impulsive control behavioural disorder as a result of side effect of…[Read more]

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    Gauri replied to the topic Do you struggle with anxiety and depression? in the forum Parkinson's Disease Symptoms 6 months, 2 weeks ago

    Yes I suffer from anxiety depression nervousness stress a lot. 5 years before I was diagnosed with Parkinson ice started experience in depression. Sometimes depression get s to a great height and I have no control over my actions and emotions and I make mistakes for which I regret later.
    I am have been on anti depressants for the past 10 years

  • Profile picture of Gauri

    Gauri replied to the topic What do you think is at the root of your Parkinson's diagnosis? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 6 months, 2 weeks ago

    Let me share with you my experience after both the delivery. I gave birth to the first child when I was 26 and second child when I was 32. After both delivery I experienced hyperlactation. After the first delivery due to lack of access to Medical Services and appropriate drugs to treat hyperlatation and since the situation was going out of control…[Read more]

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    Gauri replied to the topic Do you still have your driver's license? in the forum Living ​With​ ​Parkinson's Disease 7 months, 3 weeks ago

    Yes I do have a driving licence and I practice driving on a four wheeler as well as a two wheeler as a matter of fact I am very very stable while driving I enjoyed driving city driving as well as Expressway driving I am very comfortable driving a two wheeler as well.

  • Profile picture of Gauri

    Gauri replied to the topic Are you able to sleep through the night? in the forum Parkinson's Disease Symptoms 8 months, 2 weeks ago

    No not all. After taking sleeping pill(s) also I keep awake in the middle of the night. Although I have made up my mind to sleep I feel sleeping is unnecessary business and that my other hobbies for which forI don’t get time are I can take it up..

    The things I must do.

    This is how I have been experiencing deficiency in sleep since pandemic…[Read more]

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    Gauri replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 8 months, 2 weeks ago

    I am extremely talented person having multi-faceted personality. Singing,acting painting, teaching are to name a few. As I was detected with Parkinson at the age of 41, I could not pursue any of my  hobby.

    Now that I have been feeling much better with right medication and my super busy lifestyle …..

    No one appreciates my talent. When I give…[Read more]

  • Profile picture of Gauri

    Gauri replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 8 months, 3 weeks ago

    My weirdest symptom is depression and reckless actions out of frustration.  I keep awake until midnight involved in sexting with my boyfriend and do not fall asleep even though I might be sleepy.  This happens because of the need for sexual arousal which is not getting fulfilled by my husband

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    Gauri replied to the topic Do you use music to manage Parkinson's disease? in the forum Parkinson's Disease alternative treatments 8 months, 3 weeks ago

    https://canva.me/5u28FDGC1pbThe power of Indian music in healing

  • Profile picture of Gauri

    Gauri replied to the topic Do you use music to manage Parkinson's disease? in the forum Parkinson's Disease alternative treatments 8 months, 3 weeks ago

    Indian classical vocal music which I have been learning for so many years has got magical power. I have been learning since my childhood. Education in Indian classical vocal music has the power of healing mental strain and alleviated the Parkinson’s symptoms; not physical but psychological.

    While practicing Indian classical vocal music we say 7…[Read more]

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    Gauri changed their profile picture 9 months, 1 week ago

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    Gauri replied to the topic Music and fine motor skills in the forum Parkinson's Disease alternative treatments 9 months, 1 week ago

    Before I could get the right treatment for Parkinson I was struggling to learn Indian classical vocal music. With tremor at its peak caused instability in the posture resulting in a setback. but under these circumstances also I could pass 5 exams of the Board for vocal classical music.

    Today as my symptoms are under controlled and managed…[Read more]

  • Profile picture of Gauri

    Gauri replied to the topic Are you interested in sharing your story? in the forum Living ​With​ ​Parkinson's Disease 11 months ago

    One fine morning I found my neck very stiff , hands were frozen, there was unusual rigidity that I observed. Soon I realised that I was not able to tie shoelace also. People kept asking me what is wrong!?? 3 to 4 months passed by before I visited neurologist. After examining for 10 minutes the neurologist wrote on a piece of paper Gauri Khare age…[Read more]

  • Profile picture of Gauri

    Gauri replied to the topic Do you have theories about why you have Parkinsons? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 3 months ago

    Hi

    I, Gauri, 50 year old, mother of 2, am a Parkinson’s patient since last 8 years.

    It all started with lactation during pregnancy. I experienced hyper lactation post both delivery. It was unmanageable, painful, causing tremendous discomfort……

    This was something I can not explain!!!

    I took medication to make it tolerable. But it relieved…[Read more]

  • Profile picture of Gauri

    Gauri became a registered member 2 years, 3 months ago

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