Parkinson’s News Forums › Forums › Parkinson’s Research › DBS Meets Expectations for Patients with Parkinson’s Disease
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DBS Meets Expectations for Patients with Parkinson’s Disease
Posted by Forum Moderator on October 24, 2018 at 7:45 amParkinson’s disease patients’ expectations regarding deep brain stimulation mostly correspond to clinical improvements, a study shows. Click here to read more about the study and its findings.
Have you tried DBS? Did it meet your expectations?
J. Gottlob replied 1 year, 4 months ago 5 Members · 5 Replies -
5 Replies
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Very dear friend of mine had DBS on February 28, 2022. He had a brain stem bleed from the surgery and is still in a coma
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I have had a DBS done 👍 nearly two and half months ago and experiencing lesser dependency on medicine. But all my friends out there who are planning to do DBS I definitely have something to tell you. I am still not feeling normal. My head is minutely aching most of the times in the morning and the stretched feeling inside head which started post surgery hasn’t gone yet; though has subsided. Guys ⚠️ warning! Those who can tolerate pain during surgery can go for it….do not be scared…. because the benefits outweigh the drawback
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Had Medtronic DBS 2016 for rapid progression symptoms. Developed a pseudomonas generator pocket infection and whole device and parts removed. 8 months later Had an Abbott St Jude’s which offered a wider variation of functions. 48 hours post op had a grand mal seizure from a 5 cc bleed in or near the brainstem. no long term complications although we are wondering now about possible partial complex seizures, worsening double vision and swallowing difficulties. I was a little disappointed in the outcome. Though I had nothing but kudos for the neurosurgeon, my proglem was finding a neurologist skilled in programming the DBS to get maximal benefit. I still feel there is a bunch more potential.
My advice to anyone getting a DBS is to do it! But line up a good programmer first! I have ended up with a PA who is doing my programming for the last 6 months. She is sharp and I think she has had experience and knows what she is doing. Certainly, seems better than 2b MDs I have had.
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Had Boston science installed 7/2020, surgery went fine until my brain on the right slumped and they missed the sweet spot
<p style=”text-align: center;”>New Neutologist wonders why I had it done. Sa y s I would not have been a candidate for it. So…</p> -
<p style=”text-align: right;”>Had Boston science installed 7/2020, surgery went fine until my brain on the right slumped and they missed the sweet spot</p>
<p style=”text-align: center;”>New Neutologist wonders why I had it done. Sa y s I would not have been a candidate for it. So…</p>
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