My Struggles Worsen Despite Natural Treatment Experimentation

Treatments with young blood plasma (18 - 25 year old volunteer donors - the NuPlasma blood bank in San Marcos, Texas), now available via prescription from physicians throughout Texas. Stanford University's first PD patient, Dr. Nan Little, has been virtually symptom free for more than a year after receiving two-liters of young plasma infusions (administered via a simple IV). Very safe, 10,000 units are administered every day, but using exclusively young plasma is new science.

Yo padesco desde hace 10 años de EP , me e aislado, vivo en la playa en mi casa solo. Los medicamentos me funcionan a la perfeccion pero mi deseo no estar solo me desespera. tengo 67 años, los sintomas casi no se me notan. Pero eso no es mi consuelo. Yo creo que si encontrara pareja me sentiria mejor.
Tengo anciedad y tomo 1/4 de tableta al dia, pero solo la tomo cuendo me siento con anciedad.

Jean, I was sorry to read about your experience with the Parkinsons drugs. I have finally retired from work following Deep Brain Stimulation surgery for Parkinsons symptoms and am finding it very different having worked all my adult life.

You are right it is a disease of loss and totally unpredictable from one day to the next no matter what drugs you take. It is the little things you can't do that make me jealous like dancing, getting out of a chair or the bath, turning over in bed,putting on
shoes and trousers quickly. I feel the only thing I have gained is weight and joint pain!!

I hope you persevere with different medications because if you can find the right one for you they do work - have you tried co-bendelopa?

Jean, I too wrote about the "snake oil" salesman, and received the same emails from these unscrupulous people touting their "cures". It is appalling how they prey on those of us seeking relief. Keep on doing what you are doing - the exercise is most important. But consider going on to Sinimet or another dopamine drug, even if the others made you sick. Give your body a chance to adjust to the drug - it may take a couple of weeks. You don't have to be miserable. And know that there are many of us out there who have gone through the same thing and will there for you.

Hi, Jean,
I, too, struggle with some symptoms that get better with exercise, but some that don't (the big one for me is balance which I can only improve somewhat). I've systematically tried different supplements and diets to see which help - I can tell which didn't work for sure. Very frustrating - I feel like I'm doing everything right, but it's still not enough. Don't get me started on the snake oil scum. Hope you find a combination of exercise/diet/medications that works for you.

Ms. Mellano,

I am 72, my symptoms 1st appeared in 2009, to date I am not taking any Parkinson's pharmaceuticals, and I empathize with everything you are saying.

This may or may not be of help to you, but it's worth an hour reading.

Please check out the Parkinson's forum on HealthUnlocked. Put thiamine HCL in the search window. There are many people on that forum who are reporting good results from this. As you know what works for one person, does not necessarily mean it'll work for others but there are so many PWP reporting good results it's worth reading about.

Many of them are in touch with a Dr. Constantine he in Italy, who you might want to look up as well. He is been consulting with them for free. No one on this website is selling anything.

Perhaps my profile will give you some more information.

(Marty Hinz has been discredited. You can find out more information on a website called QuackWatch. He admits to not having seen the patient since 2002 and it gets worse.)

If you have any questions, you're welcome to email me.

I enjoy your blog. Best to you

Marc

Hi.... wondering if you ever looked into stem cell treatments. There's a place Seattle saying they have a 60 some % of success in treating PD. It would be nice to know this is true before a person was to spend thousands of dollars... think positive there's a cure coming.... John

Most of the research on Parkinson's Disease has 3 faults common to the symptomatic treatment of chronic degenerative conditions: 1) the investigations focus on changes in the brain, at the molecular level (faulty genes/gene expression/proteins/cell products/CNS inflammation) when the primary cause is most likely at a distant site. 2) The studies begin at the end-point of a lengthy disease process, far downstream from the initiating insult, and 3) the desired outcome is a therapy that can be manufactured, marketed, and sold. Since 2008 and ongoing research on the human microbiome, Functional Medicine practitioners now have diagnostic tools, clinical studies, and individualized treatment plans for many autoimmune and chronic degenerative diseases, including PD. Briefly, the problem is in the gut. Individuals with certain HLA (Human Leucocyte Antigen) types, and pathogens in the digestive tract, can suffer systemic inflammation of a specific tissue through a phenomenon of 'molecular mimicry'. The immune system targets a pathogen, antigens, or a motif of these, that share some amino acid sequence of the patient's tissue, and both get recognized by white blood cells as targets for destruction. The result is systemic inflammation of specific tissues or organs, as well as the initial local inflammation in the gut. A complex mix of food antigens, pathogens, weaknesses of digestion or local immunity, unfavorable dietary factors (food allergens, insufficient fiber, sugars, et al.), emotional stress, adverse effects of medications, etc. become permissive for gut dysfunction that eventually can be manifest as systemic illness and unmanageable disease syndromes. Many patients instinctively know there is something about their diet, lifestyle, or medication that needs to change, but do not have a physician that understands or appreciates how to promote self-repair. Gut rehabilitation is similar to reclaiming abused crop or strip-mined land. One has to follow the proper sequence for repair, from step one-- eliminate the "weed" species (pathogens, parasites, bacterial overgrowth) that are impediments to recovery, to step five-- promote repair of the gut barrier function. Once this 3-month process is complete, the patient is back to a state of self-maintenance, without being dependent on drugs, doctors, or surgery, and formerly intractable disease processes can be reversed. I know, I fully recovered from a debilitating case of reactive arthritis, without drugs, and devoted 20 years to doing the same for cats and dogs (veterinary practice). I hope this provides a new perspective for you and others struggling with PD. For starters, see the free course at: https://www.ifm.org/learning-center/introduction-functional-medicine/ (1.5 Hrs CME).

Hi Jean,

Please try different combinations of vitamins/supplements. I have had a lot of luck taking Milk Thistle & Vitamin B super complex in the morning, and N-acetylene in the evening. I take no PD meds at all.

There is also a book out about how combinations of supplements works for PD & Hutchinson (the book author recommends a combination of Q10, Vitamin C and E, and some others. The key is taking a group of vitamins /supplements, not single ones. Good luck!

The drugs helped me eventually, unfortunately it took a long time to get them right, it took a long time to not feel ill. To start with I vomited every time I took them, then I changed neurologists, and he told me I was been given too much, (this was sinemet) so take a different tablet (madopar) and another one for nausea. It took about 8 months or so to stop feeling so ill, I could only lie down when I took the drugs until I felt a little better. However now, my third neurologist has me on a dose that gives me the best feeling of not struggling all the time. I was even given a slow release one to take overnight, helps me sleep better without so much pain. Of course to be honest there is another adjustment I needed to make also, and that is what I can do, and what I can’t do. I had to learn to “adjust” and to not expect to be physically where I was before the onset of Parkinson’s . It is what it is. Once you get your head to that level things will be easy. I exercise daily, eat properly, get adequate sleep, and with my new drug regime, I am the best I have felt for years, but I took a lot of suffering to get here.

Hi Jean, yes living with PD is a struggle. I'm very adventurous in trying new treatments. I take several supplements daily, including Restore Gold which does help minimize my symptoms. I take 6 mg of Ropinerole once daily and 10 tablets of Carbadopa/levadopa 25/100 daily (2 every 3 hours). If I wait too long between doses, I start to freeze. I've had 2 treatments of Stem cells in San Diego at Stemgenex. I was skeptical at first but after a few months my symptoms improved and people started telling me that I looked and sounded better. I had my first treatment in January 2016 and the second one year later Jan 2017. I decided not to go again this year as it is expensive and hopefully the treatment will last a while. in the meantime, i stay active running a business, playing golf and hoping for a real cure to surface. Best wishes! Marty Bevilacqua

I don't see Sinemet(Carbidopa-Levodopa) mentioned anywhere on this page. I've been taking it for a year and it seems to be having a positive effect.

I found intense exercise in the form of pickleball to be extremely helpful lessening my symptoms as I couldn't tolerate sinemet. I also take Mucuna, acetyl-l-carnitine, magnesium, ubiquinol,pantethine, nicotinamide riboside, vitamin C and experimenting with a few others. I am doing better than a year ago.

Thank you Jean. I can easily relate to your experiences. I am a breeder of American Shorthair Pedigreed cats. Cats of my breeding as well as their offspring are in catteries in many parts of the world. Due to my limitations caused by Parkinson's I have had to curtail my involvement in my beloved hobby that I have been in for 35 years. The most difficult part of the disease is being able to accept my limitations. I have tried a number of different medications with limited improvement. I am now taking Sinemet Slow Release. I am also taking a number of vitamins and other supplements. I have started PT and OT. I am looking into DBS. Have you considered this?

Hi Jean, My husband is suffering from young onset parkinsons he is 47 diagnosed 3 years ago. he will not take any meds whatsoever he knows they make you feel worse with all the terrble side effects. He struggles every minute of the day the extreme stiffness, fatigue, depression anxiety etc. The only thing he does take a a Mucuna Prureins levadopa supplement that I purchase for him online. Its in a powder form .It helps him be able to shower shave and workout as he can move for 3 hours when he takes it. But once it starts wearing off, he feels worse than ever. Its terrible and cruel and we have to keep our faith that a cure will come asap. We believe alot of it has to do with your emotional state and obviously the more worried and afraid you get the worse your symptoms will debilitate you. Try to keep the faith. ♥

I have developed a combination of intervention for my father's PD early stage. Some suggestions: Find out a 2004 publication of life extension magazine on PD (there is a good table in it); read "the end of alzheimer's "dale bredesen (similar table to PD, not the same, but they share similar insights); read on laser light therapy (you can buy 100mw 650nm and 808nm (they have complementary roles) on ebay for 20 dolars each (a 5 mm optic fiber can be used to insert in the nostril - it is better to polish the tips... buy an optic fiber polishing kit on ebay for 12 dollars) or you can buy a device called EC Therapy (sold in Brazil - it is extremely cheap compared to other similar devices i have found and it comes with a tube...) (either of them can be used to do ILIB on the arm artery shining the laser from outside - there are plenty of studies too) (i also suggest ingesting some supplements like ALA, clorophyle (to regenerate CoQ10), gelatin, creatine, a bit of glutamine, etc);

silver bullets: Coimbra protocol (check youtube channel "vitamina d medicina e saude") (it ispretty safe and exceptionally effective if coupled with a gluten free diet); red meat free diet (fish and eggs allowed) combined with a strong B2 (and B complex) supplementation - both protocols were developed by a University professor called cicero galli coimbra.

sorry to say,but being vegetarian is also dangerous. you lack collagen what increases leaky gut risks , lacks glycine, increases brain shrinkage (lacking omega 3 and b complex) and other issues (fish and eggs are much safer than red meat and poultry in general)

i could write a lot more, but there is enough there to make a difference in your life.

You mention "I believed a change to a gluten-free, no-sugar-added, vegan diet might help my PD symptoms."

As a 68 year old man who has been gluten free for 25 years, and vegetarian for ~5 years, I can tell you your observation seems (very strongly) to be true in my case.

Many have told me "you look soooo good,' esp. compared to several friends with PD, who have not gone gluten free and/or vegetarian.

I was dx'd with PD in 2/08: 11 years ago. I can expand on my background, reasons for going gluten-free & vegetarian, and the benefits I have experienced if others would like to know.

I was poking around on the computer this morning and found myself so I thought to give you all an update. After 11 years since diagnosis and two years since the infusions at Stanford, I am happy to report that many of the PD symptoms are still at bay. However, all is not perfect. My balance is compromised though I have yet to fall. Still little sense of smell. After two years of not being able to ride my bike due to toe joint replacement and arthroscopic knee surgery, I went for my first rides outside yesterday and the day before and did just fine. During the summer of 2018 we attempted to hike around Mt. Blanc but I wasn’t strong enough to keep up with the group so I wasn’t allowed to go with them...extremely disappointing. That was followed by a delightful river cruise from Paris to Normandy. The back to back trips provided bookends to assess my mobility...too difficult...not challenging enough. My vision is somewhat compromised (probably aging, not PD) and dyskinesia is back, most annoying, but will be treated as soon as the amantadine arrives.

The Stanford study is now in Phase II at several study sites with a different protocol by Alkahest. Information is on line. Since I have had some a-fib experiences I am taking Eliquis, which disqualifies me from participation in Phase II. I see other plasma “opportunities” on line but I wouldn’t go near them. I believe in the research model. Hope this helps.

Hi Jean, my husband has had improvements with high dose thiamine, Hardy’s daily essential nutrients and a change in diet to remove gluten, sugar, processed foods. I agree with Marc above. Have a look at the HealthUnlocked website as there is a great support network there.

Are you doing regular sunbathing? Melanin from that may go to the substantia nigra as neuromelanin which disappears with PD.

Jean, do you do sunbathing for the neuromelanin effect?

You could do quite well, with perhaps rather much more "benefit per effort," if you switch to HealthUnlocked.com and become a member. It's not for the support, though there is that, it is for the far better information than you seem to be getting, sifting the useful from the wasteful and the legitimate from the scammers.

You tried two drugs for PD, then one of the most useless antidepressants on the market and then just gave up?

Mucuna pruriens is just a more expensive "natural" source of the dopamine precursor levodopa, which you could get much cheaper on a prescription and have far less problems dosing with. What is the point of going the "natural way" when you can get the exact same thing in pure, controlled dosage forms on a prescription and not have to eat a lot of potentially nausea-inducing plant powder?

Parkinson's Disease is a serious neurodegenerative disorder and the only thing you can do is treat the symptoms and try to halt the progression. One of the best things to do is to start off with taking Selegiline, a MAO-B inhibitor, which has proven neuroprotective properties and helps to slow down the progression of PD. Rasagiline is a newer MAO-B inhibitor but it does not have any proven benefits over Selegiline and may or may not have the same neuroprotective properties as Selegiline. It is also much more expensive. If a MAO-B inhibitor alone does not provide enough relief then that is when you add levodopa into the mix. Taking only levodopa or carbidopa are other options.

There is no easy way around PD but ignoring drug treatment and trying to do it the "natural way" is just silly and offers no benefits, and you are basically torturing yourself for nothing. What is even worse is that not treating it can often lead to an even more rapid course of deteroriation. Your brain NEEDS the dopamine to maintain neurons and circuits, without it the neurobs and brain cells just die.

As for depression associated with PD Selegiline + Levodopa can often takes
care of it. If not then there are plenty of drugs on the market that have much less side-effects than garbage like Viibryd. Stick to the old proven ones if you need anxiety/depression relief like Zoloft, Prozac, Wellbutrin or tricyclic antidepressants like Nortriptyline. Depression is also a core symptom and natural progression in Parkinson's Disease, there is no way around this either so once again best thing you can do is to try and treat it with medicine.

There is literally no point in trying "natural treatments" for something so severe as PD. It is an irreversible neurodegenerative disease and focus needs to be put on halting its progression(Selegiline) and symptomatic treatment (Selegiline, levodopa, carbidopa and if necessary: antidepressants).

With good treatment one's life span can be extended significantly and quality of life can be greatly improved as well. As always there is no perfect solution and treatment that comes entirely without side-effects.

Hi everybody, my body has been buzzing internally since May 2019. It is more noticeable when at rest, going to sleep and on waking. Some days I am dizzy and very tired. Some days I am fine. Some days my legs ache and feel heavy so my walking is slower. I saw my General Practioner in June (GP in the UK) and told him that I suspected early onset of PD. He referred me to a neurologist who specializes in Parkinson's Disease. He didn't think it was PD but said he would reassess me in three months time. That was in July. I have the same symptoms but occasionally I feel nauseous it is that bad. One day all I wanted to do was sleep as I was so exhausted. I have worked with PD patients. That is why I instantly assessed myself as early onset PD. I am 65 and rarely suffer any illness. So these symptoms are very disconcerting and life-changing for me already. I don't want to wait for a clear diagnosis. In the UK that could take months if not years. I am therefore exploring self-medication and see how that goes. I am not depressed or anything but just fed-up with these internal jitters. It feels like someone has plugged me into a vibrator machine. Obviously this symptom alone needs energy like anything on a cellular level, especially when it connects to muscle tissue. This causes muscle aches and pains and exhaustion. So, this is where I am at the moment. If this isn't PD then I will jump for joy. If the internal buzzing is all I ever experience and it gets no worse then I will learn to live with it. Can anybody comment that this is how they first felt PD onset?

Hi Jean, first a response to Kurtis, then to you.

Kurtis, you need to educate yourself on Mucuna Pruriens vs. synthetic levadopa. Yes, you can isolate levadopa from Mucuna and synthesize it and you'll have the same compound, but consuming Mucuna Pruriens as a standardized extract, typically at 20% or 40%, diluted in water, has an entirely different effect than Sinemet. Notably you get faster onset, longer, more effective on time, and slower wear off. Please read the definitive double blind, crossover study by Katzenschlager: https://jnnp.bmj.com/content/75/12/1672.

Next, you'll want to read this scholarly article by the Spanish neurologist Maldonado: https://www.intechopen.com/books/parkinson-s-disease-understanding-pathophysiology-and-developing-therapeutic-strategies/mucuna-and-parkinson-s-disease-treatment-with-natural-levodopa

In conclusion Kurtis, Sinemet and/or Lodyson have a role to play. Our neurolgist likes amantadine and we are trying it. However, these drugs should not be relied upon as the sole source of treatment for PD. Any neurologist worth their salt will tell you that while symptoms like dyskinesia are partly due to progression of the disease, drugs like Sinemet also have been shown in study after study to cause and or worsen these symptoms over time.

Back to you Jean. Try Mucuna Pruriens as a 40% extract. I'm a caretaker for someone who buys it in bulk. It's more expensive than Sinemet for sure, but it's not that expensive either. I'm not going to plug where we buy it here because I'll get accused of hyping a product when I have no interest in doing so. You will also need to follow some protocol to know how much to start with and how much to ramp up to.

Hinz has a pretty good protocol to use as a basic guide, but we realized its shortcomings early on. We took the good, left out the bad and developed our own approach that works very well. Btw Hinz and the protocol he developed has issues and it's overly expensive, but Hinz is not a quack. That dude on Quackwatch trashes everyone who's not prescribing drugs. He's never met a supplement or alternative approach he likes.

Recently our neurologist signed us up for a trial using a watch that tracks dyskinesia and other PD symptoms. Youtell the researchers when you take you your PD medications during the day and they input this data before they send the watch to you. You acknowledge the times every day when you take the medication, then you send the watch back after a week and they download the data. Our data showed a smooth sine wave with the same up and down pattern against a baseline. It was the same all day, every day. In other words, no dyskinesia, no slowness, no aberration whatsoever. The person I'm a caretaker for was diagnosed in 2011 and has never taken Sinemet, only Mucuna and Tyrosine. It's hard to get this kind of result long term with Sinemet only.

Lastly I'll say this: Nan is my hero! I really think the young blood plasma transfusion trial she participated in at Standford and the new trials underway hold great promise.

hi jack, thnx for your comments. i was tested for SIBO and it was negative. i was almost hoping it would be positive. if so, there would be a prescribed course of action with some hope to possibly alleviate some symptoms

I guess it is to be expected in todays life where everything is become poison in some form. The water has uncommon chemicals in, the air is polluted, the foods have hormones, additives, preservatives and pesticides in. And to top it off the medical institutions only want to cure the symptoms and alienate anything natural. I feel sorry for kids today because they are bombarded with these things now.
Anyway I read that link thanks. I also came across this article:
https://www.scientificamerican.com/article/does-parkinsons-begin-in-the-gut/

It confirms my suspicion that parkinsons might originate from the gut. It would not suprise me if it is caused by something like diverticulitis, bad bacteria, fungus, parasites or some form of toxin. What I also noticed in my dad is if he starts to have stomach pain his tremors increases afterwards.

I am wondering if anyone with PD is suffering from severe muscle cramping and spasms. These are my worst symptoms. It actually makes it impossible to sit or lay down for sometimes 8 hours at a time. I'm on Sinemet which has given me tremors.

Have you tried Stem Cells? I know it may seem like a shot in the dark, but everything is a shot in the dark for us.

Sorry for being a negative Nancy, but one thing I rarely hear discussed is how much it costs for all the recommended supplements and alternative treatments. I'm on medicare and live on Social Security. As for taking Co-Q 10 in the effective dosage -- there goes my entire supplement budget. Stem cell treatments? Are you $$$ kidding me? Parkinson's summer camp ... didn't that cost about $5,000.00? I'd love to know how other people with limited incomes are managing their Parkinson's. I feel like I'm in a Catch-22: if I don't get this disease under control I can't work. And if I can't work, I can't pay for the alternative treatments which are the hope to which I cling. Any suggestions would be greatly appreciated. I am so thankful to everyone who shared their Parkinson's experience.

how to help me with my husbands parkinsons

There are a few things that have helped me and my Dad--limit calcium. Check all your supplements and avoid any that contain calcium. Avoid tums--it's calcium. When eating cheeses and dairy, combine with spinach or other veggies that slow or inhibit calcium update. Eat lots of spinach and sweet potatoes. Both of these seems to help to an extent with various symptoms. Fish is also very good and seems to help. Ask your doctor about hormone replacement. It can help quite a bit with moods and with slowing down the symptoms. Look into creatine--not as a cure, but to slow muscle weakness. LOW DOSES. It will either help or not. I personally use half a gram daily before stretching or light weight lifting. Dad uses a whole gram daily before a walk. The one thing that seems to help us the most is limiting calcium and if you are on well water, you are probably getting calcium there too. Just for reference, we do eat meat, supplement with cucubrain (a type of curcumin) and quercetin. Licorice (the root/herb) is a good supplement for women for hormones and Panex Gingseng is a good supplement for men for hormones.

Maria
www.BearMountainBooks.com

Hi there, I help care for my grandpa who has had a Parkinson's diagnosis for several years now but in the last two years he has drastically declined. He sees a neurologist that gives absolutely NO ANSWERS! I do research all the time for things my grandpa could do to help slow the progression but it seems that big pharma has been great at brainwashing the masses when it comes to their healthcare and treatment options. While there are no cures, like the author had mentioned there is an inflammatory response inside a PD brain, gut and body, which diet, probiotics and supplementation along with medication can help, in fact when I had my grandpa taking a liquid multivitamin called "Nature Plus: Source of Life, Liquid" his weakened voice got stronger and his mind was clearer, he also had more energy. However, when we told his neurologist about this improvement this neurologist just chalks it all up to, "there is no evidence that inflammation has any factor in PD." He needs to go back to school because inflammation is at the foundation of all disease! Needless to say my grandpa quit taking those vitamins and now I can't get him to take anything or change his diet! Trial and error is where we get our evidence and our success. Parkinson's has been a known disease since the 1800's and we are closer to curing HIV than we are a cure for PD! It makes me sick to watch my grandpa go to a place where he is just devastated because he can no longer provide for my grandma the way he used to. It absolutely breaks my heart that this doctor has no understanding of what everyone else seems to know but him!

Do you think any of the amino acid therapy or meds helped with your mood, or was it just a better perspective?

I had a somewhat similar experience. I got vertigo when I tried to stop eating bread and drinking cow's milk. After lots of self-testing, it appears these were the sources of my trace minerals. I tried using supplements, but it wasn't quite the same so I went back to bread and milk, sparingly but use organic bread and organic free-range milk. However, these trigger my daytime sleepiness unless eaten with something like cabbage to keep the carbs in check. I've added mixed nuts and this seems to help and also use DE sparingly.

Do you know anyone in the Houston,, tx that.will prescribe this treatment//. Have you.trried the Patricia Kane protocol? I was diagnosed in 2008. I have managed to avoid meds so far using PK Protocol and the Hinz protocol.. perhaps you’d be interested in a phone conversation? If so, send me a number to my email above…

Hi Jean
My husband was diagnosed with PD in 2015 at 56. He did not respond well to any of the Pharma drugs. He takes Mucuna and High Dose Thiamine HCL 500mg capsules. Dr. Constantini has unfortunately passed away from covid a while back, but we did get a chance to meet him in Italy in 2017 and he was wonderful. There is a Facebook site called Parkinson’s Thiamine HCL and his colleague has taken up the mantle. The Thiamine we believe has stopped the progression. We have added Lions Mane extract to the protocol 7 months ago and my hubby feels it has cleared the brain fog and helped with constipation. John Peppers method of fast walking is also extremely helpful ( He has you tube videos to assist with his method) luckily got to meet him in Cape Town. Interestingly an oncologist treating my brother suggested my hubby go for a heliobacter Pylori test as a colleague has Parkinson’s and after treatment for the heliobacter felt a positive improvement in his mobility and tremors. I must mention that my hubby had tests done for heavy metals and his lead levels were 3 x normal , so now starting diatomaceous earth to help remove. Really hoping that we will soon have a breakthrough and positive solutions to this steadily arising condition.

Kim,
thank you for taking the time to share this info with me, I had tried B1 protocol and it didnt do anything for me. i have john pepper's book, but my challenge is that fatigue is my worst symptom. Add apathy and lack of motivation to that and you can see why john pepper's fast walking method couldnt work for me. I can barely walk 1/2 mile without having to sit down. And to think, I used to be an athlete. I was negative for Pylori and heavy metals. I am happy to hear your husband has gotten some relief. It seems some of these remrdies work well for some PwP and not for others. I keep looking :-)

Hello all, responding to an old post. I’m not selling anything! My dad died of Parkinson’s in 2020. I know it’s not genetic (for most) but yet I’m always worried that I’ll get it to since my dad and I are (were) a lot alike. If you want to see the latest about what is going on with PD research you can go to https://pubmed.ncbi.nlm.nih.gov/ - in the search field just type in Parkinson’s and then on the ‘results’ page select the “free full text” box and it will show you a lot of info. You can sort by date also to see the latest. Once you click on an article you have to click on a PMCID or DOI hyperlink to see the entire article. I’ve read lots of them. From what I can gather there just isn’t anything available in 2022 to treat PD - they can only alleviate symptoms. BUT, fasting seems like the only real, viable solution. When you fast for an extended period your body starts a process called autophagy in which it cleans up cells. As I understand it, the brain is harder to clean up - but autophagy does occur in the brain. Your body is able to clean up at least some of the misfolded proteins that cause PD. Even though I have no symptoms of PD I have done 5 days water fasts and while the fasting period is very hard I always feel amazing about one day after the fast has ended (after getting replenished). I am able to think much more clearly. I am not sure what the fasting experience is like for a person with PD, maybe PD makes it harder, but from what I read on Pubmed it’s the only viable treatment for PD. If I had PD I know I’d fast as long as I could, as often as I could. It’s hard, but it may work. https://theillumined.one/blog/fasting/ - has a good summary. That is my website - but again, I am not selling anything - I put together that page as a summary of what I learned on Pubmed.