I never realized the benefits of music until I was diagnosed with Parkinson’s disease. Early in my diagnosis, I met Alexander Pantelyat, MD, co-director of the Johns Hopkins Center for Music and Medicine, who introduced me to both music and dance. Together with boxing and other exercises,…
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“What?” I ask from across the room, closing the distance between my dad and me. I don’t want to ask him to repeat himself again. “Can you grab me a glass of water and my pills?” Dad raises his voice, and this time I hear him. I fill a mug…
I do it. You do it. Let’s be honest — we all do it. We make a pretty good attempt at creating a list of new resolutions that we hope will change our lives. Of course, we have to follow through and do them if we expect to see or…
I am seeking the joy in life. It’s difficult with medical setbacks or the off-period surges of pain and emotion. But joy is still available. I know it. I feel it. I’m showing up every day to find it, even during the worst of times. There are times when my…
A fire in the fireplace snaps, crackles, and pops as it warms my toes and casts dancing shadows on the walls. Nearby, a cup of spiced tea sits on the table beside me, filling the room with a fragrant aroma of cinnamon and other magical, tantalizing odors. Fresh baked…
Growing up, I had always wanted to be a teacher. However, when applying to colleges, I was encouraged to try engineering. My dad had always wanted one of his kids to be an engineer. I was the youngest and his last chance. So, I decided…
It’s hard to look back on this past year without finding some sort of grief, anger, confusion, heartache, or other emotion that gives us pause. We stop and ask ourselves if anything good has come of this year or if we took unwelcome steps, one after another, that led…
I recently had an unusual attack of kidney stones, passing 20 medium to large crystals within 24 hours. I stopped taking the plant-based vitamin I was trying, thinking it was the culprit, and the stones stopped. But the healing process took a surprisingly long time. My usual routine was thrown…
Every once in a while, the urge to crochet washes over me. It usually happens when the temperatures start to dip into the 30s when Christmas is just around the corner. During a recent visit home, the desire to make something with my hands emerged…
“Dealing with a diagnosis of Parkinson’s is not easy and there is no one, single technique that will ease the pain and no magic pill that will miraculously enable you to cope with it.” — John Baxter Parkinson’s treatment is a lifelong commitment that involves much more than just…
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- The invisible support a Parkinson’s caregiver provides
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