Columns

Leaving No Stone Unturned: Giving Mannitol a Try

Since being diagnosed with Parkinson’s disease in 2015, I have left no stone unturned in testing out the latest and greatest of nonprescription solutions to ease my symptoms. In my view, some have had good press and showed a lot of promise. Among the more popular supplements I tried without…

Do You Really Want to Know What Your Future Holds? 

“My dad’s neurologist is transparent and compassionate. He is thorough and truthful. If yours is not, I highly suggest finding one who is.” In the introductory sentences, the caregiver says that her dad has a great neurologist. She then recommends that you find another neurologist if yours is lacking.

Let’s Face It: Mindful Mouth Movements Are Needed

I bit my tongue hard enough to draw blood, releasing that unique rusty-iron taste. This wasn’t the first time. When I have had multiple teeth removed (leaving open spaces for a few weeks while artificial teeth were being made), my mouth muscles had difficulty adjusting. The consequences are quite painful.

When Your Disease Progresses

When you live with a chronic illness, it is sometimes so easy to fool yourself into thinking life isn’t so bad. Life isn’t so hard. You’ve got this. Then you go to a doctor’s appointment and walk out of his office with a rock sitting in the pit of your…

10 Tips for Dealing with Chronic Pain

My previous columns about pain and chronic pain seem to have fallen a bit short for my liking. So, following are some commonsense tips that I use when medically appropriate. I hope they help you as they’ve helped me. Tip 1: I exercise. It may seem counterintuitive…

Sleep Problems With Parkinson’s Disease

There is a difference between dreams and daydreams. Daydreams are filled with pleasant thoughts that distract you from the present while you are awake. Dreams are thoughts and images that occur in the brain while you sleep. Then there are nightmares — frightening, unpleasant dreams. And then there are…

Shouting Above a Whisper

What is your biggest point of frustration in living with Parkinson’s disease? Mine is my inability to speak up. I have a lot of pain with this disease. I drool when I don’t want to. (I can’t actually think of a time when I want to drool.) I…

Rewiring the Brain: Taking a Fresh Look at Chronic Pain

For 15 years, I have been a failure at managing my chronic pain. I was prescribed oxycodone with gabapentin, and after my Parkinson’s diagnosis, I was put on levodopa. This decreased my pain to the point where oxycodone was no longer needed. I also tried alcohol and marijuana in a…