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I joined a caregiver support group a few years ago, and we meet monthly via Zoom. We are a group of spouses discussing the challenges of caregiving, life, and living with Parkinson’s disease. Our leader and founder is a lovely lady named Diana Dunetz. I was lucky enough to…

While more than 10 million people are estimated to be living with Parkinson’s disease globally, many people still don’t know much about it. My grandfather was diagnosed with Parkinson’s in his 70s, yet I knew very little about its symptoms or treatments until I was also diagnosed with it.

A friend told me recently that she was very fearful about what the future held for her with Parkinson’s disease. This got me thinking about how I feel about the future. Was I afraid? After some soul searching, I realized that, at this point at least, I’m not afraid.

I have a neurologist appointment coming up soon, which has me thinking about how lucky I am to be able to say that. I’m fortunate to have a great neurologist who treats me for Parkinson’s disease. I’m also fortunate that she is just one part of a medical…

One of the most disruptive aspects of a disease like Parkinson’s is the lack of predictability, which shows up in many ways. In the long term, there is the unpredictability of how quickly and in what ways the disease will progress. There is the shorter-term uncertainty of how…

Live with Parkinson’s disease long enough and you start to notice patterns — micro-misfires that add up to lost rhythm. A foot hesitates at a doorway. A hand reaches, then forgets what for. The world is the same, but it feels misaligned — as if a few coordinates in…

“Fear does not stop death. It stops life.” — Vi Keeland My husband, Arman, and I enjoy babysitting our great-nephew, who is 1 year old. We used to babysit his dad, so it’s an extra-special kind of full-circle joy for us. The sight of our great-nephew’s gummy smile, with small…

Last in a series. Read part one. Recently, I had terrible abdominal pain in the middle of the night. It was so bad that I was doubled over and couldn’t sleep. I thought it was appendicitis, or kidney stones, or maybe diverticulosis. I tried to walk it off and…

October is a busy month in my household. We celebrate both my husband’s birthday and our wedding anniversary. It’s been 19 years this year, and I can say that we never imagined where we’d be now when we said “I do.” When you plan your wedding, you don’t always think…

If you are at all familiar with Parkinson’s disease, you’re probably aware of the importance of medication. It’s used for symptom control only, as there is no known cure or disease-modifying therapy for Parkinson’s. Most Parkinson’s symptoms are caused by a lack of dopamine signaling in the brain.