I’ve always advocated for accessibility for all. For more than 30 years, I worked and volunteered for organizations supporting and encouraging opportunities for people with disabilities. Now, as a caregiver for someone with a debilitating movement disorder that causes mobility issues, accessibility is personal and paramount. As my husband,…
“Morning, Mary Beth. Have you heard anything about weight loss and Parkinson’s?” my dad texts me one day. “From what I’ve read in the Parkinson’s News Today Forums, it seems like a mixed bag,” I respond. “Some people lose weight, and some people gain it.” This isn’t…
When my husband, Arman, was diagnosed in 2009 with early-onset Parkinson’s disease at the age of 38, it felt nearly impossible to find anything positive about our situation. At the time, we were parents of three young children, and Arman was busy building his career as a physician.
It’s that time of year again: time for our annual Walk for Parkinson’s. I hate asking people for money, even for such a worthwhile cause as our local Parkinson’s Society here in Ontario, Canada. Since my diagnosis of Parkinson’s disease in 2015, however, I’ve felt the cause…
Early one morning a few weeks ago, I was in the bathroom drying my hair, which usually takes about 30 minutes every few days. I stood in front of the mirror with the dryer fan on high, hoping to get through the job as quickly as possible. My hair dryer…
Note: This column describes the author’s own experiences with deep brain stimulation for Parkinson’s disease. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. It’s been three years since I had deep brain stimulation (DBS) for Parkinson’s disease,…
Degeneration is painful to witness, but even more painful to experience. The tasks one might previously have been able to tackle become difficult or impossible. It’s not uncommon for those with a degenerative disease like Parkinson’s to experience changes to their memory and difficulty in staying focused. But it’s…
Note: This column describes the author’s own experiences with vitamin B1. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. Last fall, at my support group for Parkinson’s caregivers, I learned about vitamin B1, or high-dose thiamine, for the management…
We’re going to be grandparents! My husband, John, and I couldn’t be more excited. Grandma, Nanny, Grannie, or Gram — I don’t care what this baby calls me. I look forward to the (hopefully) beautiful relationship I envision with this child. I hope to be a source of love, cuddles,…
My most treasured moments come from just a handful of days in my life. The first was the sunny, beautiful day in July 1995 when I married my husband, Arman. Then there are the times I first held each of my three children, just seconds after they were born. Many…
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