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A few weeks ago, I was driving to see my son, Jake, at college. I’ve written before about visiting him, but this was different from my usual college visits. It was 4:45 a.m. when we got Jake’s call: “I’m heading to the hospital.” I immediately packed a bag and hit…

I’ve heard many stories about Parkinson’s disease changing relationships. Some community members observe personality changes that make their partner feel like a stranger again. Others notice inconsistencies in their loved one’s behavior, such as mood swings and ambivalence. Sometimes the affected relationship survives the changes. Other times, it…

When you’re asked about Parkinson’s disease, how do you describe it? Do you have any particular ways of imagining Parkinson’s that are helpful for you to understand or explain the disorder? Any pictures, diagrams, or frameworks that provide meaningful context? Or when you’re trying to motivate yourself to…

Planning a vacation or any type of trip can be exciting; it’s fun to have the calendar full of events. Our family has been fortunate to have traveled to many parts of the world. We traveled often before my husband, Arman, was diagnosed with early-onset Parkinson’s disease in…

Little things can sometimes make a big impact when life happens and fate changes our plans. Everything is constantly changing — including my looks. During a recent conversation about permanent makeup, I announced, “I miss eyeliner and mascara.” Seeing the perplexed look on the faces of those around…

If you thought Botox (onabotulinumtoxinA) was only used to reduce wrinkles and fine lines caused by aging, think again! It’s also used to treat many types of medical conditions, including the symptoms of Parkinson’s disease. I now have firsthand experience with using Botox for Parkinson’s…

I’m not typically a private person by nature. But for nearly 15 years, I’ve worked hard to hide my heavy load, to keep it tucked away from the world. Some days, this load weighs on me so much that, figuratively, I can hardly stand up. I usually struggle in silence…

Becoming a grandparent while I have young-onset Parkinson’s disease is a milestone, and life with Parkinson’s is all about celebrating one day, one goal, and one milestone at a time. Diagnosed at 45, I prayed to God to help me be a good mom and, eventually, a fun…

When Diana Dunetz’s husband was diagnosed with Parkinson’s disease in 2019, she didn’t know what to think. First, there was denial. How could something like this happen to her husband? Then there was apathy, and after that, loneliness, which came unannounced and was brutal in its ferocity. “I found…

My family always looks for the good in every situation. We try to find the humor and the positive in times that can be hard. It’s our way of looking on the bright side in all situations. In 2009, when my husband, Arman, was diagnosed at age 38 with…