Columns

According to the National Organization for Rare Disorders, rare diseases affect over 300 million people globally. That seems huge, but it encompasses over 7,000 different rare disease communities. In the U.S., a rare disease is defined as one that…

Have you ever witnessed someone falling? One minute they’re walking by your side, and the next, they’re on the ground. Usually this involves slipping on the ice on a cold winter day or drinking too much beer at a college tailgate. But for those of us who have a friend…

In a recent column, I reflected on my use of solitude to help address the problems that accompany Parkinson’s disease. This chronic illness is frustrating because, like the automatic transmission on your car, many of the brain’s automatic functions just don’t work well. With Parkinson’s, the brakes are…

Growing up, I was often told, “A healthy mouth equals a happy brain.” I wish I would’ve taken this advice to heart sooner, because now I’m learning the hard way. At 32, I’m in the process of getting dentures. I was shocked when my dentist told me recently that I’d…

Welcome to year 10 of my life with Parkinson’s disease. The cure I’d expected hasn’t been found yet, so my journey continues. While there are times of contentment and sadness, there is also joy and laughter as I find humor in the irony of growing older as someone with…

I recently began attending a support group for Parkinson’s disease caregivers. Although I may have been one of the group’s youngest members, I’ve been a caregiver for longer than most, as my husband, Arman, was diagnosed with young-onset Parkinson’s in 2009. It was nice to…

Sanctuary and solitude help create the conditions for practicing insight meditation. This helps me to sense the Parkinson’s brain noise coming from my damaged midbrain, enabling me to better understand, and manage, some of my Parkinson’s symptoms. Parkinson’s is a progressive disease of the midbrain. My…

“When the bones are good, the rest don’t matter/ Yeah, the paint could peel, the glass could shatter/ Let it rain ’cause you and I remain the same.” — Maren Morris, “The Bones” I just love this song! Whenever it comes on the radio in my car, I…

Life in our hectic world is very noisy. To get the most benefit from the practice of insight meditation, we need our Parkinson’s life to be quiet. We must reduce the external noise so we can hear those subtle ripples in our brain’s undercurrent, the precursors to problems. Preventing…

“I guess it comes down to a simple choice, really. Get busy living, or get busy dying.” This famous quote is from one of the all-time greatest movies, “The Shawshank Redemption.” Andy (the main character, played by Tim Robbins) lives by this mantra to keep him going after…