Columns

When I was diagnosed with Parkinson’s disease in 2015, I was alone. I had an appointment with the neurologist, and I never even considered bringing somebody. My husband, John, was working as a vendor at a farmers market, so I drove straight there after the appointment. He was busy…

Every single morning of my life, the sun has come up. For almost 53 years, the same sun has risen and set daily. The beautiful ball of fire in the sky tells us when to wake up and start each day. Most of the time, I don’t give it any…

I recently discussed the importance of creating a solid care team to treat Parkinson’s. Expanding on that, I thought it’d be helpful to discuss a vital part of our current care plan: physical and occupational therapy. Before the pandemic, my husband, Arman, began working with a…

My husband, John, was leaning over me and saying, “What happened?” I looked up at him and said, “Why?” What I was trying to say is, “Why did you wake me up?” But I couldn’t get the words out. Then my arms, which hadn’t tremored since my deep brain…

“Wow, look at that walk,” my older sister says with a smile. Dad is making his way across the living room in preparation for his birthday party. His steps are fluid and unbroken. It’s a sight that we savor. I love to see my dad unencumbered by his…

When I’m not busy writing my weekly column for Parkinson’s News Today, I’m the managing director of a small medical advocacy organization in Cleveland. In this role, I’ve learned much about our ever-changing healthcare system and the importance of having a dedicated team to manage all aspects…

Planning for travel is essential, and my recent trip to Spain for the 6th World Parkinson Congress (WPC) posed a question: While the host city, Barcelona, had planned for me and others with Parkinson’s through the World Parkinson Coalition’s Parkinson’s Ready program, would I be able…

“Until we can receive with an open heart, we are never really giving with an open heart. When we attach judgment to receiving help, we knowingly or unknowingly attach judgment to giving help.” — Brené Brown, “The Gifts of Imperfection” All patients with Parkinson’s disease slowly but surely…

Since my diagnosis of Parkinson’s disease in 2015, my sense of smell has been nonexistent. Overall, I have to say the loss hasn’t bothered me too much, especially when compared with other Parkinson’s symptoms, such as tremor, slowness, and stiffness. The only time it does bother me is…

Parkinson’s is an impactful disease that comes with a lot of challenges. As such, it probably isn’t a surprise to most that many Parkinson’s patients struggle with mental health at some point. In fact, up to 40% of Parkinson’s patients experience anxiety, according to the National Council on…