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Living with an incurable neurodegenerative disease can be discouraging and frustrating. While I am thankful for medications and surgeries that provide some symptom relief and control, they have limitations. And sometimes, the side effects of the therapies are worse than the disease itself. That’s why it’s encouraging to hear that…

For many, retirement is like a golden ticket promising a life with fewer problems: less worry, less work, less financial strain. You just have to make it to age 66, or whatever age you’re ready to make the shift. It’s supposed to bring relaxation, time off, and the eternal vacation…

I’ve always tried to be a pleasant enough person. Polite to strangers, going with the flow, trying to be kind when I can. But three things can cause me to lose my pleasing personality: being hungry, hot, and tired. And hot has always been the worst, because it’s harder to…

As of yesterday, my husband, Arman, and I have been married for 30 years, or 10,957 days. Happy anniversary to us! We celebrated with a rare dinner out, just the two of us. Our children surprised us by sending a delicious assortment of desserts to the restaurant, along with a…

My time with my dad is limited by geographical distance: He lives in Michigan while I live in Colorado. When I go home to see him, the Parkinson’s decline seems more obvious to me than it might to those who are with him every day. So when I find…

I took an exciting new step in my Parkinson’s disease treatment path late last month. I moved from constant deep brain stimulation (DBS) to adaptive DBS, which recently was approved by the U.S. Food and Drug Administration (FDA). Medtronic, the maker of the DBS system I have…

When my three kids were small, I was a bit overprotective. My in-laws used to laugh about how my husband, Arman, and I kept a legal pad in our firstborn’s nursery to track her feedings and diaper contents. (Yes, I know, it was over the top.) While the kids were…

Recently I got to spend time with my best friend from back home. We met in seventh grade, and it was 30 years ago this month that we graduated high school together. I don’t think either of us could’ve imagined then where we’d both end up. I live in eastern…

Even though I can still drive, I always welcome the offer of a drive somewhere by somebody else. It’s not just about the convenience but the companionship that comes with it. Usually, it’s my husband, John, but often, it’s our good friends and neighbors who step in. Their patience and…

We all age, but some of us — human or not — seem to do it a little faster. Our dog, Jax, turned 10 this year. He’s a cockapoo mix with an easy smile and a heart big enough to stretch across our entire household. For most of his life,…