Columns

Parkinson’s Patients and Caregivers Need Empathy

“Thanks for putting into words my experience with Parkinson’s. I’m going to share your column with my doctor.” Readers of my “Possibilities with Parkinson’s” column have often made such comments. It’s a sincere compliment, and I’m very grateful that my words resonate with others. However, I can’t help but wonder…

Who’s Up First in Your Team?

Spring is finally here, and when I think spring, I think baseball. Just like in baseball, where each team has a roster of players, Parkinson’s patients have their own teams of professionals in their lineup. Let me tell you about my team and its batting order. For my team, the…

Starting the Day in Fear and Ending It With Hope

In a four-part audio series for Newman Catholic Campus Ministry called “Nothing to Fear,” the Rev. Mike Schmitz delves into several elements of fear: vulnerability, rejection, inadequacy, and the future. The series led me to ask, “How do we view fear?” I believe many people see fear as something…

How to Stay Engaged After Parkinson’s Awareness Month

Every year in April, Parkinson’s Awareness Month comes and goes, and I find myself wondering if anything has changed. Did the temporary boost of attention spark change in the medical community? Did fundraising efforts make a difference in our pursuit to end this disease? How might we maintain our…

Honoring My Parkinson’s Hero: My Sister, Bev

My sister, Bev, 84, was diagnosed with Parkinson’s disease (PD) in 2017 after having undiagnosed symptoms for about eight years. She told me that while working as a nurse and then as an echocardiography technician, she experienced the shaking of her head and left hand. Bev also had some…

How to Be Out on the Town, Not Down for the Count

Notable events, like my granddaughter’s school play, often are not scheduled to accommodate my Parkinson’s disease (PD). Usually, early evening events seem to occur exactly as I reach the peak of my worst “off” period. But will I miss these types of activities? No! I need to be out…