Columns

The “pause between” is my new Parkinson’s self-management tool. I use it every day to help me switch from old ways of reacting to the “flicker effect” (dysregulated systems). It provides improved threshold management and mindful movements, which make life easier. The old ways are like a paved…

According to a 2013 article in The New York Times, the average American knows about 600 people. Since the debut of “Life, Lemons, and Lemonade” over two years ago, I have met many doctors, community educators, foundation directors, researchers, and people with Parkinson’s disease. Between fundraisers, Zoom support…

My sister Bev, who has stage 3 Parkinson’s disease (PD), was diagnosed in 2017. She currently faces cognitive challenges, including issues with decision-making and short-term memory. The Parkinson’s Foundation notes that cognitive impairment is common among people with Parkinson’s, and the “same brain changes that lead to motor symptoms…

Armed with the tools of threshold management and mindful movements, I am ready to put the brakes on this accelerating Parkinson’s progression. Having tools and using them wisely are two different things. It’s the distinction between the design and delivery of my Parkinson’s self-management program. For me, the use…

Journaling can be therapeutic for all of us. For someone with a chronic illness like Parkinson’s disease, storytelling by way of writing can leave a legacy for friends and family, and it can even change a person’s perspective about facing illness. In explaining why she decided to keep a journal,…

One of the major goals I have for managing Parkinson’s disease is to decrease the frequency and intensity of the “ugly days.” Ugly days are episodic in my life but still require managing symptoms every day. If I can keep the worst of the symptoms at bay, I — and…

Can those of us with Parkinson’s disease blame the condition for all of our trials and tribulations? The quick answer often is “Yes. Absolutely.” However, it’s not always so black and white. While it’s true that Parkinson’s complicates things, it’s not responsible for every calamity in life. Various circumstances can…

As a moderator for the Parkinson’s News Today Forums, I recently posed a question that’s received several surprising responses. I asked our forum members about their greatest challenge as a caregiver for someone with Parkinson’s disease (PD). I had imagined they might cite medication management, doctor appointments,…

In my recent column about oral health, I discussed how some symptoms of Parkinson’s disease (PD), such as facial stiffness and decreased tone and strength in the jaw, tongue, and facial muscles, can lead to dental problems. These issues, combined with dry mouth and decreased amounts of saliva, can…

While searching for a way to communicate telepathically, German psychiatrist Hans Berger invented the EEG machine to measure pulsating electrical brain activity in 1924. Professing my ignorance, I know more about telepathy as “advanced empathy” from my PhD thesis than I do about electroencephalography, or EEG. Seldom do I…