Columns

I didn’t expect just how much my relationship with my late uncle Brandon would change over the years. When I was a kid, he was always the one who got everyone going in the morning. I remember us kids staying up too late playing Nintendo, thinking we were sneaky. No…

This year, I’m celebrating Parkinson’s Awareness Month by saying, “F— Parkinson’s!” If you watch the Apple TV show “Shrinking,” you’ll get exactly what I mean. The show features a group of multigenerational friends, three of whom work together at a psychiatrist’s office. (Get it? “Shrinking?”) Harrison Ford plays…

One of the initial things I didn’t understand when I became a Parkinson’s caregiver was that not everyone is ready to share their diagnosis right away. From the outside, it can feel like something that should just be said so that people understand what’s going on. But for my…

Some exciting changes have happened in terms of Parkinson’s medications since my husband, Arman, was diagnosed with the disease in 2009. At that time, options for long-acting or extended-release levodopa and carbidopa were limited. Over the past decade, however, the U.S. Food and Drug Administration has approved several extended-release…

Many years ago, I wrote a food column for our local newspaper. I called it “Cooking with the Seasons” and told people how to grow and cook with food from their gardens. One year, my husband, John, said, “We should try tapping a few maple trees and making our own…

I returned home from the Parkinson’s Policy Forum in Washington, D.C., feeling two things at once: encouraged and unsettled. I felt encouraged because I was surrounded by passionate, committed people — advocates, care partners, researchers, clinicians, and people living with Parkinson’s disease — all working or change. I…

Some of the moments that stay with me the most aren’t the big, expected ones. They’re the moments that caught me off guard, when everything felt a little tense, a little uncertain, and then somehow turned into something I ended up laughing about later. One evening, after spending the day…

I recently started seeing a new neurologist after the doctor I’ve had since my Parkinson’s diagnosis moved out of state. This has been a big deal for me; I even devoted a column to how much I’ll miss her. I loved my doc. She saw me through 12-plus…

Women’s History Month, celebrated each March, originated in 1978 when an educational task force in Santa Rosa, California, set out to highlight women’s contributions to society. This month also serves as a time for reflection on persistent issues such as the exclusion of women from textbooks and research. Historically,…

Most people first think of the physical symptoms when they hear about Parkinson’s disease. Tremors, stiffness, slowed movement, and changes in speech are the most common signs. But for many families, there’s another worry. We fear that the person we love might slowly lose the personality that makes them…