Forum Replies Created

  • Charles Schiller

    Member
    November 17, 2021 at 9:06 am in reply to: Do you have multiple illnesses?

    Yes, I do. I’m, 78 and also have Diabetes, GERD, Afib, Coronary artery disease, Barrett’s esophagus, Celiac disease and high cholesterol. Luckily, all these ailments are treated with oral medications.

  • Charles Schiller

    Member
    October 28, 2021 at 7:13 pm in reply to: Can exercise delay Parkinson’s progression?

    The general thinking among MDS is that It does. I go PT twice a week, weight and resistance training, stretching and an obstacle course for balance (muscle memory). Each visit is one hour. I also work out twice a week with a private trainer. Same program as PT but without an obstacle course.I know I’m way stronger now and my balance too is way better. Who knows if any of this slows progression? How to tell? It’s like the Frost poem about the road not taken.

  • Charles Schiller

    Member
    October 14, 2021 at 9:34 pm in reply to: Have your urinary patterns changed?
      <li style=”text-align: center;”>So I think make low water pressure and dribbling is primarily due to an enlarged prostate which is very common among men over 64. An over active bladders due to PD. I take a drug for that, Myrbetetiq. Very effective in stopping the feeling of urgency. But, more me, it wears off after 12 hrs or so. I’m see my Urologist tomorrow to see if I take it twice a day. As for sleep help I take Hydroxazine, sort of a very mild sleeping pill and no logy feeling in the morning. My biggest problem is not PD or it’s symptoms. I’m early stage 2 and almost 79. It’s crushing isolation as I’m a widower having lost my wife of almost 50 yrs 5 yrs ago.
  • Charles Schiller

    Member
    October 7, 2021 at 2:48 pm in reply to: Have your urinary patterns changed?

    Oh yes. An overactive bladder is certainly a symptom of PD. For men is’s more complicated because an enlarged prostate contributes. My overactive bladder responds quite well to a medication given by my urologist. Problem is it wears off after about 12 hrs. I’ve an appointment to see the Doc next week. When I’m on a long drive, I wear a sort of diaper, made for men. It does work well.

  • Charles Schiller

    Member
    May 27, 2021 at 5:15 pm in reply to: Do you struggle with anxiety and depression?

    I do but it’s not all PD related. I’m 78, lost my wife of  almost 50 years to inoperable brain cancer. It was almost five years ago and it took over five months to the end. No physical pain but she last all ability to communicate, talking, writing. She had fought stage 3C ovarian cancer to a draw, over six yrs, before that. Three yrs later my older son was killed in a grisly home accident. He was 46. And now PD. I’ve been on Lexapro since my wife died. Today my doctor, MDS, said that because tremors in my good hand just began and because twitching of my legs and sometimes upper body, I’m now stage 2. UGH.

     

     

  • Charles Schiller

    Member
    May 27, 2021 at 4:56 pm in reply to: Do you have a morning stretching routine?

    So I too do morning exercise. I start with pelvic tilt, two sets of 15. Then I pull my bent legs to my chest, three sets of ten. Also, on my back, arms extended to the side, I twist my hips, on side than the other. I also go to PT, one hour, twice a week, have a private trainer, twice a week, half an hour each. Both PT and trainer work me with weights and balance exercises.

  • Charles Schiller

    Member
    May 13, 2021 at 7:01 pm in reply to: Parkinson’s plus?

    So to answer Ally, I had angioplasty at age 49. Turned out three coronary arteries were 90 percent occluded. Three years later I was diagnosed with Diabetes, adult onset. All my other ailments followed. I’m early stage PD but I do think about how quickly I’ll move, stage to stage. I’m hoping something else gets me first like a massive heart attack or a fast, fatal stroke. I simply will not accept living a liife with no meaning or purpose, without quality, as only I can define that for myself. I’ll control my own destiny before I lose control over being able to make such a determination.

  • Charles Schiller

    Member
    May 11, 2021 at 3:45 pm in reply to: Parkinson’s plus?

    I’ve numerous other chronic illnesses: afib, coronary artery disease, diabetes,Gerd,
    Celiac disease, high cholesterol. All are treated with medications. PD presents the greatest difficulties for me re balance, insomnia, and the beginning of my legs twitching at night. I’m a widower, 78, live alone. I’m in early stage.

     

  • Charles Schiller

    Member
    April 13, 2021 at 2:07 pm in reply to: What are your thoughts about Deep Brain Stimulation?

    Scares the hell out of me.

  • Charles Schiller

    Member
    April 1, 2021 at 2:33 pm in reply to: Book Reccomendations

    Get “Every Victory Counts” from the Davis Phinney Foundation for Parkinson’s. It’s the best!

  • Charles Schiller

    Member
    March 16, 2021 at 3:02 pm in reply to: Dyskinesia, jerky movements in sleep

    I too experience twitching, minor jerking, in my legs as I’m trying to sleep. Just another thing to annoy me. I’m supposedly early stage and I’m 78.

     

     

  • Charles Schiller

    Member
    March 2, 2021 at 5:33 pm in reply to: Do or did any of your family members have Parkinsons?

    Yup. My maternal grandfather. The role of genetics in PD is, think, uncertain among the scientific but I’m certain there must be a connection.

     

  • Charles Schiller

    Member
    February 28, 2021 at 5:39 pm in reply to: What’s your most bizarre symptom?

    Here’s one nobody has mentioned. Not to be gross, but often I’ll have very wide and long stools. No problem passing them but a lot of problems flushing them down. My GI doctor said might be caused by my meds. I take 15 pills a day for diabetes, two cardiac issues, Gerd, depression, high cholesterol, to name some. My PD doctor, MDS, said might be because my autonomic nervous system is no longer  rhythmic. Who knows?

     

     

     

  • Charles Schiller

    Member
    January 21, 2021 at 3:21 pm in reply to: What do you struggle with the most?

    Balance is my biggest issue although interrupted sleep is a problem too. I’m newly diagnosed, last Spring, so I’m early stage. I turn 78 next week, am a widower, live and, of necessity, must be self sufficient since there’s nobody to help me. I go for intense PT twice a week, an hr each, and work with a private trainer for an hour a week. Balance exercises are emphasized. I’m very aware of what’s coming although not all of us will have the same difficulties.

     

     

  • Charles Schiller

    Member
    January 21, 2021 at 2:47 pm in reply to: Is your physiotherapy really working?

    Yes, I think it certainly is helping. I go twice a week, one hour each time. I work with weights, stretching and resistance and balance training. I’m early stage, biggest problem is balance, but also my mind is slower and I have issues sleeping well. I’m 78, widower, live alone, so have to be fully self sufficient. I do have a beeper and my cellphone should I fall and be unable to get up.

  • Charles Schiller

    Member
    January 12, 2021 at 3:35 pm in reply to: What do you do to prevent yourself from falling?

    I’m 78, widower, live alone. I get physical therapy, twice a week for an hour each, work with a trainer twice a week, half hour each. That’s a total of 3 hrs a week of rather intense stretching, weight and resistance training and exercises for balance. Also, Tai Chi as motivated via the ‘Net. It’s free on You Tube  with specific movements for PD. I was diagnosed a year ago, early stage. I’ve fallen a few times, didn’t hurt myself. I take big steps, concentrate each step. “ Consciousness Raising” for my generation. I too have an alert beeper plus my cellphone. I KNOW my balance has improved and I’m stronger, more flexible, from my doing all this.