Patricia McCormick
Forum Replies Created
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I use CBD oil by Procana and find it very helpful in the mornings. I put 10-12 drops under my tongue every morning to help with anxiety and internal tremors which I get when my dopamine level isn’t quite right. I definitely notice a big difference.
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I have quite a few symptoms, starting with tremors, anxiety, depression, then going into double vision and vertigo. One of the worst, though, is GERD which caused me to lose 30 lbs. in 4 months before I was diagnosed. Also there are the urinary problems: frequency and retention. The retention has gotten so bad that ultrasounds have shown that my right kidney is swelling from the back-up of urine, so my husband uses a catheter on me every night. My speech is very slurred in the morning before my C/L kicks in. I’m having tooth loss, too, even though my dental care is very good. I’m noticing some cognitive issues developing, too.
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I’ve taken Clonazepam for about 9 years now for anxiety. I didn’t realize I had PD at the time. I wasn’t diagnosed until 2020. I’ve never been sleepy from it the next day. It does help me sleep, but PD wakes me up every two hours all through the night from urinary frequency.
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For constipation, I drink a glass of Citrucil every afternoon and take stool softeners in the late afternoon. That keeps me pretty normal with no straining and sometimes I’ll add in a Magnesium tablet.
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About a year ago my body odor almost disappeared, which was great. The past few months my body odor has come back. PD is such a strange disease.
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My grandmother had PD. I wish she was still alive so I could talk to her about her experience. Her symptoms were completely different than mine. My daughter is afraid that she will get it someday too. I hope she doesn’t.
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I’m currently going through aquatic therapy for SI Joint, low back and hip pain. My neurologist said it’s also good for PD. I really enjoy it. The resistance from the water allows me to get a better workout. I have some balance problems, so I use a pool noodle to walk across the pool (part of the warm up).
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My weirdest symptom is GERD which started about one year before I was diagnosed. I lost 30 lbs. in 4 months because of the GERD and have been unable to put any weight back on. At 5’9″ and 108 lbs., I am extremely thin to the point that I can easily see my ribs. I eat part of my meal and the GERD rises up and makes me stop eating. It doesn’t matter what I eat. It can be bland or even nuts and it will start up, mostly in the afternoons and evenings. I’ve tried Ensure and protein shakes to gain weight, but they immediately cause GERD. It’s always worse if I lie on my left side. The only thing that I’ve found that helps this is baking soda water, plus I take prescription Pepcid everyday. I haven’t seen anyone mention this and wonder if anyone else is bothered by GERD.
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Katherine – What an ordeal you went through. Not being able to walk for that long had to have been tough. You are an amazing lady, too.
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Katherine – Yes I do sometimes feel like I’m not helping anyone. So many things that I used to be able to do are now being done by my loving husband. I do everything I can by myself and feel grateful that I can still these things. I spend more time feeling grateful than I do feeling deprived of my old life. Attitude can make such a big difference, as I’m sure you know. Thank you for the comments. I really appreciate that.
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I take Citrucel instead of Metamucil, because it causes less gas. I also take stool softeners and that takes care of it for me.
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Thank you Clive. Migraines aren’t my main concern. GERD is my biggest problem with PD, although I have many more non-movement disorders. My gastro doctor ran the full gamut of tests and was perplexed when nothing showed up. Once I got my diagnosis and told him about it, he said, “Well, that explains it.”
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Thank you. I’ll check into liquid Hope and see if that’s something my system can tolerate without causing GERD. Any glimmer of hope helps!
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I have had migraines for almost 40 years, but the GERD started in 2019, the year before I was diagnosed. I haven’t heard of botox into the jaw muscles for GERD. I can see that possibly helping with migraines though. I had botox in my forehead for the migraines and didn’t help unfortunately.
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My gastro prescribed Famotidine (prescription Pepcid) and that helps some, but doesn’t completely do the trick. Both my gastro and my neurologist (MDS) said it is being caused by PD. Very frustrating indeed.