Forum Replies Created

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  • Clive Varejes

    Member
    October 12, 2021 at 9:47 am in reply to: How do you handle stress?

    Yes, stress definitely does worsen the symptoms of PD, but you will find that it actually worsens the aspects of most “diseases” or even standard aspects of illness.

    I feel the problem is that stress can lead to depression which in turn leads to stress which in turn leads to depression, which in turn leads to…………….  you get the idea, and it ends up as a vicious circle.

    Different people have different comping methods/systems.

    I luckily live across the road from a beach, and find that if I walk along the promenade, sea sand, it does make me relax.

    I also cycle and listen to music, be it jazz, blues, classical also does help. But whatever helps you relax, even for a bit, does make a difference.

  • Clive Varejes

    Member
    September 23, 2021 at 10:03 am in reply to: Do you take melatonin for sleep disturbances?

    I occasionally take a half pill of Somnil.

    It is an over the counter “sleep aid”.

    I find the half tab works better for me that a full one.

    Go figure.

  • Clive Varejes

    Member
    September 7, 2021 at 11:25 am in reply to: What would you like non-Parkinson’s patients to know?

    My reactions are totally different to R Bonanno.

    When someone asks me how I am, I actually smile/try to smile depending on the day, and say ” not too badly thanks, how are you feeling?”

    I realize that when someone says ‘how are you’ it is just a way of saying hello.                                  They actually may be concerned but it is not their fault or problem that I have PD.                               It is certainly not my fault but it is my problem, and I really don’t want to burden them with my hassles, that is, not if I want them to remain my friends.                                                                                I know they care, and that’s what counts.

    Clive

  • Clive Varejes

    Member
    September 2, 2021 at 10:48 am in reply to: Can AI help predict disease progression?

    I have no doubt that within the next year or so, AI could well predict the progression of Parkinsons, however I’d be a lot more excited if AI could tell me that it has predicted that a cure will be here in a year or so.

    Oh, well it’s a lot easier to laugh than to cry.

  • Clive Varejes

    Member
    September 2, 2021 at 10:41 am in reply to: Do you struggle with hot or cold flashes?

    Hi, no, no problems with that thus far.

  • Clive Varejes

    Member
    September 2, 2021 at 10:20 am in reply to: What do you think of the term ‘Parkie’?

    It honestly makes no difference to me whatsoever.

    I’m very relaxed with who I am and the fact that I have PD.

    If someone feels that, in order to give their lives meaning that must use the term parkie, so be it.

  • Absolutely no symptoms out of the ordinary.  I have had the 2 Pfizer shots.

    The only symptom is that I now feel a lot safer.

    B-)

  • Clive Varejes

    Member
    July 27, 2021 at 10:23 am in reply to: Turmeric

    Sorry.

    Nothing from my end.

  • Clive Varejes

    Member
    May 25, 2021 at 10:30 am in reply to: Do you struggle with anxiety and depression?

    Hi,

    Yes, I do have bouts of depression but knowing that it is brought on by the PD, and no other reason, helps me get through it faster.

    And no I am not prepared to take anti depression medication, as that will perhaps mitigate the immediate symptoms but is not a long term solution . I would rather fight through it myself.

    I do find though, that exercise does definitely help to get the endorphins going which always helps.

  • Clive Varejes

    Member
    May 18, 2021 at 10:34 am in reply to: Does Parkinson’s run in your family?

    Hi,

    No my immediate family does not and as far as I know no one in my extended family has PD.

    However I have subsequently found out that because of my “heritage” I do have a higher than normal predilection to PD

  • Clive Varejes

    Member
    December 4, 2020 at 2:31 am in reply to: Do you have theories about why you have Parkinsons?

    Not a clue.

    However I do have complex seizures of the left temporal lobe, which was diagnosed about 12 years ago, so perhaps that added to it.

     

     

  • Clive Varejes

    Member
    November 4, 2020 at 8:01 am in reply to: Parkinon's impact on sleep and dreaming

    That app really does not work, not matter what they tell you. It can basically tell you when you are sleeping, or not and basic details about your movement however it really is not capable of telling you are having rem sleep or not.

  • Clive Varejes

    Member
    October 30, 2020 at 2:59 am in reply to: Parkinon's impact on sleep and dreaming

    Thus far, I have not experienced symptoms like that, however I have noted that I seem to be needing more sleep and waking up later.

    I, as a result of my work, had to be up by 06:00 every morning, which I did without a problem, usually getting to bed at about 23:00.

    However, I now tend to awake at about 07:30 and feel I could sleep more.

  • Clive Varejes

    Member
    October 16, 2020 at 7:25 am in reply to: Where in the world are you?

    I am in Cape Town, South Africa.

    Apparently a blind/placebo test found that about 1000mg of Vit E daily may help, but like everything else it is all supposition.

  • Clive Varejes

    Member
    September 2, 2021 at 10:23 am in reply to: What do you think of the term ‘Parkie’?

    Toni, I think your comment, is brilliant, makes absolute sense.

    B-)

  • Clive Varejes

    Member
    June 2, 2021 at 9:32 am in reply to: Does Parkinson’s run in your family?

    Hi Ally,

    I found out afterwards.

    I had spoken to a number of people and organizations involved, specifically the University of Jerusalem and they after some investigation informed me of the link.

    And after reviewing their systems, I found he was spot on.

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