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    • #21440
      Mary Beth Skylis
      Moderator

      I’ve heard of people with Parkinson’s struggling to regulate body temperature. But it doesn’t seem to happen with everyone. Do you struggle with hot or cold flashes? Does it happen often, if so?

    • #21766
      Clive Varejes
      Participant

      Hi, no, no problems with that thus far.

    • #21775
      Dave
      Participant

      Yes, it’s like menopause all over again. Sometimes at night while sleeping I get severe shivering that’s so bad it’s painful. Doctors just look at me like I’m nuts.

    • #21776
      Karla Burkhart
      Participant

      Yes! I thought I was going crazy. I’ve never been overly sensitive to hot weather. In fact it has been a problem in the past because I wouldn’t realize I was overheating and I’ve gotten sick a couple of times in the far past. Now I can’t tolerate temperatures that a few years ago would have been just fine. Plus I am really having trouble with cold. I get cold so easily and suffer from air conditioning freeze when I am in public spaces. At night I seem to vacillate between too hot and too cold. There is never a “just right”.

    • #21780
      Jo S.
      Participant

      Karla’s reply pretty much mirrors my own experience. Sometimes I get so hot I want to scream. Then I put on the air conditioning and freeze. I get so cold that I find it painful to undress to take a shower. I shiver in the shower for at least ten minutes as I stand under the flowing hot water. I continually vacillate from too hot to too cold and back again. There’s rarely a “just right” temperature for me.

    • #21791
      Sherri
      Participant

      Yes I struggle with hot flashes as well as feeling so uneasy in the heat. It also makes me feel weak. I just have to sit down. I am also sensitive to cold and also don’t like waiting for the shower to get hot. It’s like that Goldilocks syndrome where it needs to be just right. I also noticed when I feel weak my blood pressure drops a lot. So frustrating!

    • #21792
      Leslie
      Participant

      Yes, but not very often. I’ve always been very hot natured but the hot flashes are very intense. They feel like when you open the oven door when it’s set on 500.

    • #21802
      David Blacker
      Participant

      Even though I live in a warm climate in Australia, I’ve had trouble keeping warm at times especially at night. I’ve been piling on the blankets whilst my menopausal wife has been burning up.

      I recently read some articles describing how PD patients with REM sleep behavior disorder had a greater drop in night time core body temperature than controls, likely related to decay in the brain stem structures that control these things. I showed these to my wife and she bought me an electric blanket for my side of the bed; which has helped a lot !

       

      David Blacker

      Neurologist with PD

    • #21809
      Rona
      Participant

      Yes I struggle with hot flushes I’m 70 and never had menapausal symptoms earlier in life I have raynauds also so one min I’m freezing next I’m burning up

      • #21812
        Jo S.
        Participant

        Rona, I’m right there with you. I, too, have Raynaud’s and can totally relate to what you’re experiencing — freezing one minute and burning up the next. I wonder how many people with PD have Raynaud’s. When the MDS asks if I have numbing or tingling, I don’t know what to say because it’s really because of the Raynaud’s, not PD. Do your hands/fingers and toes/feet turn weird colors? If so, do they turn white when you press them and then red/purple again when you let go?

    • #21807
      Susan Peters
      Participant

      Yes. It just started a week or so ago. No cold flashes thought…as of yet.

    • #21815
      Debbie McDaniel
      Participant

      I never had hot flashes with menopause, but at age 71 I’m having terrible hot flashes!  The least little exertion and I’m sweating like crazy!  I did not attribute them to Parkinson’s symptoms until I saw this question!

    • #21833
      Kate Rodrigues
      Participant

      Yes I moved from Santa Cruz pre-Parky to Sacramento to be near my grandchildren. The triple digit summers are 🥵 sweltering. However I have re-discovered popsicles. And. I thank the Lord for A/C!

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