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    • #21440
      Mary Beth Skylis

      I’ve heard of people with Parkinson’s struggling to regulate body temperature. But it doesn’t seem to happen with everyone. Do you struggle with hot or cold flashes? Does it happen often, if so?

    • #21766
      Clive Varejes

      Hi, no, no problems with that thus far.

    • #21775

      Yes, it’s like menopause all over again. Sometimes at night while sleeping I get severe shivering that’s so bad it’s painful. Doctors just look at me like I’m nuts.

    • #21776
      Karla Burkhart

      Yes! I thought I was going crazy. I’ve never been overly sensitive to hot weather. In fact it has been a problem in the past because I wouldn’t realize I was overheating and I’ve gotten sick a couple of times in the far past. Now I can’t tolerate temperatures that a few years ago would have been just fine. Plus I am really having trouble with cold. I get cold so easily and suffer from air conditioning freeze when I am in public spaces. At night I seem to vacillate between too hot and too cold. There is never a “just right”.

    • #21780
      Jo S.

      Karla’s reply pretty much mirrors my own experience. Sometimes I get so hot I want to scream. Then I put on the air conditioning and freeze. I get so cold that I find it painful to undress to take a shower. I shiver in the shower for at least ten minutes as I stand under the flowing hot water. I continually vacillate from too hot to too cold and back again. There’s rarely a “just right” temperature for me.

    • #21791

      Yes I struggle with hot flashes as well as feeling so uneasy in the heat. It also makes me feel weak. I just have to sit down. I am also sensitive to cold and also don’t like waiting for the shower to get hot. It’s like that Goldilocks syndrome where it needs to be just right. I also noticed when I feel weak my blood pressure drops a lot. So frustrating!

    • #21792

      Yes, but not very often. I’ve always been very hot natured but the hot flashes are very intense. They feel like when you open the oven door when it’s set on 500.

    • #21802
      David Blacker

      Even though I live in a warm climate in Australia, I’ve had trouble keeping warm at times especially at night. I’ve been piling on the blankets whilst my menopausal wife has been burning up.

      I recently read some articles describing how PD patients with REM sleep behavior disorder had a greater drop in night time core body temperature than controls, likely related to decay in the brain stem structures that control these things. I showed these to my wife and she bought me an electric blanket for my side of the bed; which has helped a lot !


      David Blacker

      Neurologist with PD

    • #21809

      Yes I struggle with hot flushes I’m 70 and never had menapausal symptoms earlier in life I have raynauds also so one min I’m freezing next I’m burning up

      • #21812
        Jo S.

        Rona, I’m right there with you. I, too, have Raynaud’s and can totally relate to what you’re experiencing — freezing one minute and burning up the next. I wonder how many people with PD have Raynaud’s. When the MDS asks if I have numbing or tingling, I don’t know what to say because it’s really because of the Raynaud’s, not PD. Do your hands/fingers and toes/feet turn weird colors? If so, do they turn white when you press them and then red/purple again when you let go?

    • #21807
      Susan Peters

      Yes. It just started a week or so ago. No cold flashes thought…as of yet.

    • #21815
      Debbie McDaniel

      I never had hot flashes with menopause, but at age 71 I’m having terrible hot flashes!  The least little exertion and I’m sweating like crazy!  I did not attribute them to Parkinson’s symptoms until I saw this question!

    • #21833
      Kate Rodrigues

      Yes I moved from Santa Cruz pre-Parky to Sacramento to be near my grandchildren. The triple digit summers are ? sweltering. However I have re-discovered popsicles. And. I thank the Lord for A/C!

    • #22649
      Sharon Vander Zyl

      My husband who is stage 1-2 struggles with profuse sweating of his trunk, shoulders and inner arms.  This usually happens when the temperature is in the 50’s or when he is in a cold air conditioned room.  While he is sweating he is chilled and can’t get warm.  He often has to change shirts two or three times a day.  Does anyone else have this?  Has anyone found a way to stop/treat it?

    • #22673
      Sue Greenfield

      Yes I do struggle with hot and cold flashes. And yes, this difficulty with temperature regulation is part of PD. My hands get so cold that the track pad on my computer does not recognize my touch. Every where I go I carry a tank top to change into if I get too hot and a pashmina to wrap myself in if I get too cold.

    • #22711
      fakhiuddin ahmed

      My wife does. She is sweating when the room temp is 65 degrees. Her docs do not think she is crazy since it is well known that the sympathetic nervous system that governs relaxation or constriction of small blood vessels in response to ambient temperatures are also affected by PD. We just adjust our clothing.

    • #22717
      Edward Gonzalez

      my wife has been struggling with hot and cold spells for the last year she’s only 50. we thought it was her meds

    • #22982
      John Citron

      Yup same here. One minute I have my hoody on and another minute I’m peeling it off. During the summer I sweat so much that my head becomes slimy and gross feeling, and my glasses steam up. This never occurred before I had PD.

      I went for an autonomic nerve test for my low BP, and it was discovered that my response to temperature changes is very slow which explains why we freeze or fry.

      I too have Renaud’s. My grandfather who had Parkinson Disease also had it and so did my mom. Living in a cold climate means my hands turn yellow and my feet freeze. The response is the same in the supermarket where I also freeze to death even in the summertime. When I go to the store now, I put on a sweatshirt or sweater even during the summer months. People look at me like I have three heads when I walk in the store when it’s 98 F (37 C), but I don’t care.

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