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Leslie

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@ltd79

Lately the number of dyskinesia events has doubled. For PD symptoms I take Rytary ER (48.195mg); (61.25-245mg) 5X daily; Requip (2mg)1X; & Amantadine (100mg) 2X daily. I take multiple other meds for various other health conditions. My Dr &. I have to be careful not to add more meds that might increase my serotonin levels because I’m close to t […] View
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    Leslie replied to the topic What's your weirdest symptom? in the forum Parkinson's Disease Symptoms 10 months, 3 weeks ago

    Eat a spoonful of peanut butter and that should stop an episode. 

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    Leslie replied to the topic How do you remind yourself to take your medication? in the forum Parkinson's Disease Medications 11 months, 4 weeks ago

    I have 6 alarms set on my phone so that no matter where I am I can be reminded.

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    Leslie posted an update 1 year ago

    Lately the number of dyskinesia events has doubled. For PD symptoms I take Rytary ER (48.195mg); (61.25-245mg) 5X daily; Requip (2mg)1X; & Amantadine (100mg) 2X daily. I take multiple other meds for various other health conditions. My Dr &. I have to be careful not to add more meds that might increase my serotonin levels because I’m close to t…[Read more]

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    Leslie replied to the topic Akathisia, inner Parkinsons, RLS in the forum Parkinson's Disease Symptoms 1 year, 2 months ago

    Toni Shapiro, Yes, I take amantadine for dyskinesia. I do think that is a correct diagnosis. But after reading your response I wonder if I have it too.

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    Leslie replied to the topic What's the most effective exercise routine for PD? in the forum Parkinson's Disease and exercise 1 year, 2 months ago

    <p style=”text-align: left;”>I was diagnosed in 2007 at the age of 50 by a neurologist. Exercise was not mentioned to me. I had tried different exercise program just to try to stay healthy. I was very inconsistent because after a day of teaching  moderately to profoundly mentally & physically disabled children I was physically & emotionally…[Read more]

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    Leslie replied to the topic Thigh pains. in the forum A​ ​Forum​ ​for​ ​Parkinson's Disease ​Caregivers​ 1 year, 3 months ago

    My MT / PT comes to my house and taught my husband how to stretch me. We stretch every morning. We have been consistent for 4 months and they help me a lot!

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    Leslie replied to the topic How do you manage low-energy days? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 3 months ago

    When I have a low energy day, I am useless. I’ve tried to push myself & break through the sluggishness which for me has always resulted in a physical accident, or messes to clean up because of my clumsiness. My low energy even makes it difficult to transfer & pushback in my wheelchair.

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    Leslie replied to the topic What's the most challenging part about the holidays? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 3 months ago

    The most challenging things for me are pushing myself beyond my tolerance resulting in different combinations of the following: fatigue, muscle contractures, horrific back pain, migraine, emotional melt down, lack of strength and dyskinesia. Just to name a few.😏

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    Leslie replied to the topic How do you manage freezing episodes? in the forum Living ​With​ ​Parkinson's Disease 1 year, 4 months ago

    <p style=”text-align: left;”>My freezing seems to happen in little periods of days here and there.

    </p>
     

     

    There is no pattern of when they occur. But when they do I usually say out loud “ left right , left right left “ and that works for me.

    I also will freeze when turning around. It seems to help if I just rock back & forth or side to sid…[Read more]

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    Leslie replied to the topic Constipation Treatments in the forum Living ​With​ ​Parkinson's Disease 1 year, 4 months ago

    I take 1/2 cap of Mirelax daily & adjust the dosage as needed. If I back off I’m almost instantly constipated & visa versa if I take more It’s to much. My latest approach has been to take 1/2 cap Mirelax & eat 1 slice of extra sharp cheddar cheese a day. I have a BM 2-3x daily.on the 1/2 cap daily & when I have an X-ray to see if I have kidney sto…[Read more]

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    Leslie replied to the topic Do you think your stress levels have gotten worse over time? in the forum Parkinson's Disease Symptoms 1 year, 4 months ago

    There is for certain stress as you learn how to live with PD. But my overall stress is much less.

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    Leslie replied to the topic Do you have multiple illnesses? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 4 months ago

    I have COPD, high blood pressure, kidney stones, osteoarthritis, diabetes ( diagnosed 1 yr ago), lung issues (I’m never smoked). From my mid 20’s to 50’s I had chronic migraines (20-25 a month). Now I only have 2-3 a month & the abortive mes works well.

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    Leslie replied to the topic Can exercise delay Parkinson's progression? in the forum Parkinson's Disease and exercise 1 year, 5 months ago

    I attend an exercise class for PWP 3x week. It has definitely helps strengthen me.  Helps me with coordination, sequencing, memory, voice strength, comaraderie, gets me out of the house & lifts my spirits.

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    Leslie replied to the topic Do you struggle with sleep disturbances? in the forum Parkinson's Disease Symptoms 1 year, 5 months ago

    I take melatonin and trazadone  right before I go to sleep, & still have fractured sleep. I sleep 2-4 hours. I have to get out of bed, it’s like my body needs to be in a different position. (I take advantage of the opportunity & use  the restroom).  I’ve tried to go back to bed but by te time I get myself on th bed ,scoot up to the head of the be…[Read more]

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    Leslie replied to the topic How do you handle stress? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 5 months ago

    I pray & try to put it in perspective. It’s only for a season, & God gives me the strength, patience & resources to get through it. That does not mean there are not some tears, usually in my prayers & to release stress.

  • Profile picture of Leslie

    Leslie replied to the topic How long have you known you have Parkinson's? in the forum Living ​With​ ​Parkinson's Disease 1 year, 6 months ago

    <p style=”text-align: left;”>I was diagnosed with PD in 2007 @ 50 years old. looking back I had symptoms probably 2 -3 years prior to diagnosis, including loss of the sense of smell, micrographia, masked face, stubbing my toe while walking, my right arm would contract up until my hand was level with my chest, loss of coordination, strength &…[Read more]

  • Profile picture of Leslie

    Leslie replied to the topic Do you struggle with hot or cold flashes? in the forum Parkinson's Disease Symptoms 1 year, 6 months ago

    Yes, but not very often. I’ve always been very hot natured but the hot flashes are very intense. They feel like when you open the oven door when it’s set on 500.

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    Leslie became a registered member 1 year, 7 months ago

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