Leslie

Eat a spoonful of peanut butter and that should stop an episode. 

I have 6 alarms set on my phone so that no matter where I am I can be reminded.

Toni Shapiro, Yes, I take amantadine for dyskinesia. I do think that is a correct diagnosis. But after reading your response I wonder if I have it too.

<p style=”text-align: left;”>I was diagnosed in 2007 at the age of 50 by a neurologist. Exercise was not mentioned to me. I had tried different exercise program just to try to stay healthy. I was very inconsistent because after a day of teaching  moderately to profoundly mentally & physically disabled children I was physically & emotionally…[Read more]

My MT / PT comes to my house and taught my husband how to stretch me. We stretch every morning. We have been consistent for 4 months and they help me a lot!

When I have a low energy day, I am useless. I’ve tried to push myself & break through the sluggishness which for me has always resulted in a physical accident, or messes to clean up because of my clumsiness. My low energy even makes it difficult to transfer & pushback in my wheelchair.

The most challenging things for me are pushing myself beyond my tolerance resulting in different combinations of the following: fatigue, muscle contractures, horrific back pain, migraine, emotional melt down, lack of strength and dyskinesia. Just to name a few.😏

<p style=”text-align: left;”>My freezing seems to happen in little periods of days here and there.

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There is no pattern of when they occur. But when they do I usually say out loud “ left right , left right left “ and that works for me.

I also will freeze when turning around. It seems to help if I just rock back & forth or side to sid…[Read more]

I take 1/2 cap of Mirelax daily & adjust the dosage as needed. If I back off I’m almost instantly constipated & visa versa if I take more It’s to much. My latest approach has been to take 1/2 cap Mirelax & eat 1 slice of extra sharp cheddar cheese a day. I have a BM 2-3x daily.on the 1/2 cap daily & when I have an X-ray to see if I have kidney sto…[Read more]

There is for certain stress as you learn how to live with PD. But my overall stress is much less.

I have COPD, high blood pressure, kidney stones, osteoarthritis, diabetes ( diagnosed 1 yr ago), lung issues (I’m never smoked). From my mid 20’s to 50’s I had chronic migraines (20-25 a month). Now I only have 2-3 a month & the abortive mes works well.

I attend an exercise class for PWP 3x week. It has definitely helps strengthen me.  Helps me with coordination, sequencing, memory, voice strength, comaraderie, gets me out of the house & lifts my spirits.

I take melatonin and trazadone  right before I go to sleep, & still have fractured sleep. I sleep 2-4 hours. I have to get out of bed, it’s like my body needs to be in a different position. (I take advantage of the opportunity & use  the restroom).  I’ve tried to go back to bed but by te time I get myself on th bed ,scoot up to the head of the be…[Read more]

I pray & try to put it in perspective. It’s only for a season, & God gives me the strength, patience & resources to get through it. That does not mean there are not some tears, usually in my prayers & to release stress.

<p style=”text-align: left;”>I was diagnosed with PD in 2007 @ 50 years old. looking back I had symptoms probably 2 -3 years prior to diagnosis, including loss of the sense of smell, micrographia, masked face, stubbing my toe while walking, my right arm would contract up until my hand was level with my chest, loss of coordination, strength &…[Read more]

Yes, but not very often. I’ve always been very hot natured but the hot flashes are very intense. They feel like when you open the oven door when it’s set on 500.