October 12, 2020 at 8:10 am #19459Mary Beth SkylisModerator
One of the things that I love about moderating the Parkinsons forums is that it allows me to connect with people who are all around the globe. But this simple fact also changes our relationship with Parkinson’s disease. Depending on where we are, we might have different resources or Covid restrictions. I’m curious about how these factors relate to Parkinson’s treatment. So, where in the world are you, anyways?
October 12, 2020 at 1:50 pm #19520GregParticipant
Hi Greg here, I live in Cape Town, South Africa.
I’m keen to try out the Mannitol Project and have enrolled with CliniCrowd.
I’m experiencing difficulty in sourcing Mannitol locally in Cape Town.
Any pointers as to where I can source Mannitol locally?
I also found the research and discussion on Butyric Acid and Niacin interesting.
I am glad to have joined this forum and look forward to exchanging information that affects PD patients.
October 13, 2020 at 4:44 pm #19531AllyKeymaster
Hi Greg, forgive me if you’ve tried this already, but is Amazon an option? Or do you know of anyone in the US or Canada who could order it for you there and ship it to you? Mannitol is not a drug so I don’t think there would be any issues with mailing it.
October 14, 2020 at 8:18 am #19534Phil GattisParticipant
Hi, Mary Beth. I’m in the New York Catskill mountains.
October 15, 2020 at 2:42 pm #19540Nadine EidmanParticipant
We live in Houston, TX. My husband has early stages and still just on rasagiline. Not sure it’s helping. Thank you for this forum. It is an enormous resource and gift to benefit from one another’s experiences.
October 15, 2020 at 3:54 pm #19544RJ HaydenParticipant
Originally from NYC (Staten Island), we currently live in northern New Mexico.
October 15, 2020 at 5:10 pm #19547Dianne RParticipant
Hi. Dianne here. I live in sunny Southwest Florida. Very close to Naples.
October 15, 2020 at 10:07 pm #19548Sharon FisherParticipant
Hi. I am in Lynchburg VA
October 15, 2020 at 10:47 pm #19549Jacque WalstonParticipant
Greetings, all. I live in Denton, Texas, north of Dallas and Ft. Worth where I-35 rejoins going North. I am very grateful for this forum, too, especially now as our Parkinsons’ Support Group here has stopped meeting because of the pandemic. I’m not one to just pick up the phone and call someone, but I do love reading and responding to this forum. It’s great to learn from others with similar problems. (and I’m thankful for computers that correct misspellings as I have a lazy ssssssssssssss finger. LOL)
October 15, 2020 at 10:50 pm #19550HelenParticipant
Hello, Have moved around frequently and finally now in Currimundi,Sunshine Coast, Queensland Australia. Because of serious falls in my home I’m now in a facility where I’m looked after in every way possible. This is a particularly lovely part of Queensland with the Pacific Ocean about 1 kilometre away. All the outings to Restaurants, Movie Theatres, Shopping etc ceased in March because of COVT. We try to stay upbeat and planning for Christmas in isolation already underway. Large facility with lovely garden areas which will have separate themes in lights. As visitors …2 at a time only must leave by 6.00 pm it’s doubtful they will view but hopefully hours can increase to 7/8 over the Festive season.
I’m a 15 year PD veteran and have come to terms with realising there’s no cure but willing to try anything to ease symptoms. Dyskenesia is the Sword of Damocles on my back with relief only when Levedopa decreased but then so is mobility. Enough of me. Take care everyone.
October 16, 2020 at 7:25 am #19551Clive VarejesParticipant
I am in Cape Town, South Africa.
Apparently a blind/placebo test found that about 1000mg of Vit E daily may help, but like everything else it is all supposition.
October 16, 2020 at 9:45 am #19553Mary Beth SkylisModerator
Wow! We have people from everywhere. I am originally from the Detroit, Michigan area. But I’ve been in Denver, Colorado for the past few years and I’m headed to Asheville, North Carolina for the winter. I’ve found it really neat to see how PD communities vary accross communities.
October 17, 2020 at 9:23 am #19562AnthonyParticipant
I am in Canada, Ontario.
October 20, 2020 at 4:42 pm #19572ChrisParticipant
I live in the small town of Clinton, Illinois in the center of the state surrounded by corn and soybean fields.
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