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Jacque Walston replied to the topic Have you tried any devices that help with Parkinson's symptoms? in the forum Diagnosis Information and General Questions 1 year, 5 months ago
Thank you, Paul, for your list.
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Jacque Walston replied to the topic Dyskinesia, jerky movements in sleep in the forum Parkinson's Disease Symptoms 1 year, 10 months ago
I, too, experience jerking leg movements when I am trying to fall asleep, and the leg muscles are sort of cramping. It is very disconcerting. This only started after I was diagnosed. I find having a warm bed helps. I have a heated mattress topper I use to pre-heat the bed, especially on cold nights. Also, I turn on classical music and…[Read more]
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Jacque Walston replied to the topic Thanksgiving 2020 in the forum Living With Parkinson's Disease 2 years, 2 months ago
We have also been strongly advised to not travel. Consequently, I (single person) won’t be traveling to visit friends or family, which I would normally do. I will be joining a couple of friends here in town for dinner/lunch, but they are cooking outside on the grill and we will be eating on the deck outside. I hope it doesn’t rain!
I must…[Read more]
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Jacque Walston replied to the topic Do you find canes or walkers to be helpful? in the forum Diagnosis Information and General Questions 2 years, 2 months ago
When I find that dizziness and instability are sometimes a problem I go from one piece of furniture to the next when in the house (which is most of the time these days). but find a cane helpful when I am out or clinging to a shopping cart. I am thinking about changing to a walking stick because of posture issues. I don’t have “freezing” issues.
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Jacque Walston replied to the topic Service Dogs and Emotional Support Dogs for People with PD in the forum Living With Parkinson's Disease 2 years, 3 months ago
I’ve had a succession of dogs my whole life. Currently, I have Maxie, part poodle, part Shiz shu as a companion dog. I have not considered a service dog, but understand how they could be helpful with balance. Maxie is very smart, doesn’t shed but does require grooming. I had an older terrier and acquired Maxie after I became a widow and the…[Read more]
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Jacque Walston replied to the topic Where in the world are you? in the forum Diagnosis Information and General Questions 2 years, 3 months ago
Greetings, all. I live in Denton, Texas, north of Dallas and Ft. Worth where I-35 rejoins going North. I am very grateful for this forum, too, especially now as our Parkinsons’ Support Group here has stopped meeting because of the pandemic. I’m not one to just pick up the phone and call someone, but I do love reading and responding to this…[Read more]
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Jacque Walston replied to the topic Did you experience tinnitus before being diagnosed with PD? in the forum Parkinson's Disease Symptoms 2 years, 5 months ago
Yes, since childhood. Always this tone singing in my head. Many suggestions as to how it happened, but no cure, no treatments. I tried hearing aids that supposedly counterbalanced the tone, but that did not work.
I had other problems that were supposedly hints/precursors of PD.; irregular bowels, constipation. but no one ever took it as a sign…[Read more]
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Jacque Walston replied to the topic Do you worry about performing local tasks? in the forum Coronavirus (COVID-19) and Parkinson’s 2 years, 5 months ago
Sharon, I know how you feel. The way I handle grocery shopping is: I try to time my visits to unbusy times; I make a list and clip it with my coupons; I go to a smaller grocery store (also less walking!); wear mask and gloves; I get what I need and go; use self checkout and bag your own, which is the pits, I know, but you come in contact with…[Read more]
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Jacque Walston replied to the topic Staying Motivated in the forum Living With Parkinson's Disease 2 years, 5 months ago
With this CoVid problem going on, I try to stay at home a lot, going out only for groceries, Dr. appts, and to help at church (2 or 3 people, masks, distancing). Zoom church is OK but weird. I really miss my support group and am not sure how to find them. Hence, I do get depressed and un-motivated more frequently. Sometimes the only reason I…[Read more]
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Jacque Walston replied to the topic What do you need to feel safe in a COVID-19 world? in the forum Coronavirus (COVID-19) and Parkinson’s 2 years, 7 months ago
I need space and privacy. I need all strangers to wear a mask and stay 6 ft. away. I do not need visitors in my home; I’ll visit with you on the patio or the porch, in the park or other outdoor space.
The first few weeks this all started I was confused and scared and lonely. I wanted a hug and to be told everything will be alright. All my…[Read more]
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Jacque Walston replied to the topic Resources for folks with PD who have no care partner in the forum Living With Parkinson's Disease 2 years, 8 months ago
I am z 72 yr old single woman whose Parkinson’s was diagnosed six years ago. Having no caregiver is one of my biggest concerns. Fortunately, my symptoms are progressing slowly, but that doesn’t change the fact that I live alone.
One of the things I have done is taken a few very close friends into confidence giving them information of my…[Read more]
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Jacque Walston replied to the topic Study Examines Yoga and Occupational Therapy Program for Parkinson's in the forum Parkinson’s Research News 2 years, 8 months ago
I would be interested in this program. I participated in a program for seniors several years ago regarding the prevention of falls and how to get up once you’re down. That was very useful. I have since been diagnosed with PD and find my body stiffer and slower. I am ready to learn more.
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Jacque Walston replied to the topic Have you lost weight since the diagnosis? in the forum Living With Parkinson's Disease 2 years, 11 months ago
I have not lost weight, but gained. Not too much, and it seems to have stabilized. I gained about five lbs, but I attribute it to nervous/depression eating as I adjust my life living with Parkinsons symptoms. After six years of no apparent progression, I now feel clumsy as my fingers move awkwardly like fat sausages, making fine motion…[Read more]
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Jacque Walston changed their profile picture 2 years, 11 months ago
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Jacque Walston's profile was updated 2 years, 11 months ago
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Jacque Walston replied to the topic Would you consider yourself graceful? in the forum Parkinson's Disease Symptoms 2 years, 11 months ago
I loved to dance! I did feel graceful gliding across the ballroom in a waltz or twirling in a two-step on a sawdust dance floor. Now with PD I still feel graceful in my mind, but in reality, I’m much more jerky. Does that stop me from dancing? No way! I still get up and move my booty, shake the tambourine, jump around and enjoy myself. I fin…[Read more]
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Jacque Walston replied to the topic Have you tried Smovey Rings? in the forum Parkinson's Disease and exercise 3 years, 2 months ago
Doesn’t look like anything you couldn’t do with any small weights in your hands.
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Jacque Walston replied to the topic Do you do hand exercises to improve your hand fine motor skills? in the forum Parkinson's Disease and exercise 3 years, 2 months ago
Yes, I do hand exercises, but I incorporate them into my daily routine: When stopped at a red light; while walking from parking lot into store. I hate exerecise classes so I try to make exercise part of life like vacuuming, dusting, yardwork,. I also do some floor exercises and stretches at night.
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Jacque Walston replied to the topic Did you have low blood pressure before PD diagnosis? in the forum Parkinson's Disease Medications 3 years, 2 months ago
I have always had low blood pressure in the range of 90/60. Since diagnosis in 2014 it has not seemed to change much. Still have the blacking out when standing from a squat, but I have long since learned how to deal with that. I suppose it is more dangerous now with PD symptoms and age added and increased likelihood of falling, But I’ve lea…[Read more]
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Jacque Walston became a registered member 3 years, 2 months ago
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hi jacque
Welcome to the forum! I am one of the moderators, diagnosed in 2015 at age 61. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic:This article has descriptions with direct links to each of…[Read more]
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Thanks for sharing Jacque. I’ve found a bit of peace during this time too. How have you been filling this uninterrupted time of yours lately?