Tagged: family, Genetics, heredity, Parkinson's Disease
- This topic has 16 replies, 9 voices, and was last updated 1 year, 8 months ago by
Christian.
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May 11, 2021 at 8:33 pm #20675
Ally
ParticipantDoes anyone else in your family have Parkinson’s disease, or are you the first? If you have children, have you talked to them about the possibility they might also be diagnosed with PD? Has anyone in your family explored genetic testing for PD or any other conditions?
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May 13, 2021 at 5:40 pm #20690
John H
ParticipantYes my mother and her father had Parkinson’s. I share many of the same symptoms of my mother.
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May 13, 2021 at 6:59 pm #20691
Ally
ParticipantThanks for responding, John. Did you wonder if you would be diagnosed with the disease after your mother was diagnosed? Did you consider genetic testing? If you have children, you have you talked to them about the possibility of also being diagnosed with PD?
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May 15, 2021 at 10:43 am #20700
Paul Hojuson
ParticipantYes, both myself and one sister tested positive for LARRKS2 mutation. To our knowledge ,no one else has been diagnosed with Parkinson’s.
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May 18, 2021 at 10:34 am #20701
Clive Varejes
ParticipantHi,
No my immediate family does not and as far as I know no one in my extended family has PD.
However I have subsequently found out that because of my “heritage” I do have a higher than normal predilection to PD
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May 18, 2021 at 3:37 pm #20709
Ally
ParticipantHi Clive, thank you for sharing. Did you know that your heritage predisposed you for PD prior to your diagnosis or did you find out afterwards?
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June 2, 2021 at 9:32 am #20837
Clive Varejes
ParticipantHi Ally,
I found out afterwards.
I had spoken to a number of people and organizations involved, specifically the University of Jerusalem and they after some investigation informed me of the link.
And after reviewing their systems, I found he was spot on.
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May 18, 2021 at 2:20 pm #20704
Mace
ParticipantMy father had PD but I don’t have similar symptoms. His head shook but my right hand and foot have tremors. We are the only ones in my family that have been diagnosed with PD.
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May 19, 2021 at 4:03 pm #20719
Denise
ParticipantMy father’s maternal grandmother had PD. My husband’s maternal grandmother also had PD.
I have three children, and neither they nor do I exhibit any PD symptoms. (Well, I get restless leg,
I assumed that was a menopause gift.)
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May 28, 2021 at 7:24 am #20809
vishal ghatul
Participanthi. i think my uncle has it .he never told us or anything.
now that i think about it feel scared if another one in our family will have it.
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June 3, 2021 at 5:31 pm #20854
Ally
ParticipantHi Vishal, the unknown is scary, but if we stay focused on the present moment, our anxieties won’t let us get carried away. 🙂 This is challenging for me too but it’s important not to worry too much about things we can’t control and don’t know will happen!
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May 28, 2021 at 11:48 am #20815
Robert Li
ParticipantHi Ally,
I don’t have PD, I have Parkinsonism and cervical dystonia. After being diagnosed, I realized my father’s disability when he got older was a form of dystonia. I also realized that my grandfather, who hiccuped for a year, had myoclonus dystonia. And we all had postural issues when young.
I’ve had general health genetic testing, but not for specific dystonia genes. Currently I am in remission, which is possible with a small percentage of dystonia patients, but probably less that 5% chance at my age and severity level. So I’ll credit my remission to the fact that genetics rarely determines fate. The article below is just one illustrative of the importance of environment (in this case, the gut biome). So in PD there is hope to reduce symptoms (and probably progression rate). Yeah!
Fecal Transplants Relieve Constipation and Motor, Non-Motor Symptoms
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June 3, 2021 at 3:55 pm #20851
Phil Gattis
ParticipantMy mother had Parkinson’s.
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June 4, 2021 at 12:49 pm #20876
Christian
ParticipantHi Ally,
my mom has Parkinson and her dad had it as well.
My mom and I did genetic testing but we both do not have the mutation of the LRRK2.
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