Mary Beth is a freelance writer specializing in personal narratives. Her work focuses on the outdoors and the transformative powers of nature. When her dad was diagnosed with Parkinson's in 2013, her search to understand the disease materialized through language. She now writes to help others understand the disease and how to be a compassionate caregiver.I don’t have Parkinson’s disease, but my dad does. And sometimes I wonder how lonely it can be. Even when we as loved ones try to understand the disease, experiencing the symptoms seems really isolating. No, I don’t know what it’s like to struggle with tremors, dyskinesia, or freezing. Random…
When we’re born into this world, it takes us about seven months to sit up for the first time. It takes about a year to learn how to walk. The learning process is long and difficult, and riddled with unsuccessful attempts and blunders along the way. The act of walking…
The morning is crisp and the ground is frozen by the brutal Michigan winter temperatures. I pile my belongings into the back of my Subaru as I prepare to say my goodbyes, again. In 2020, I spent nearly three months here, the most time I had been at…
“What?” I ask from across the room, closing the distance between my dad and me. I don’t want to ask him to repeat himself again. “Can you grab me a glass of water and my pills?” Dad raises his voice, and this time I hear him. I fill a mug…
Every once in a while, the urge to crochet washes over me. It usually happens when the temperatures start to dip into the 30s when Christmas is just around the corner. During a recent visit home, the desire to make something with my hands emerged…
A few nights ago, Dad and I were watching an episode of “Star Trek” when he decided it was time for a bowl of ice cream. He doesn’t like to take his medications in the evening because the side effects affect…
I recently zigzagged across the country, preparing to make my new home on the Eastern Seaboard for the winter. While my dad, Jim, observed my journey from afar, he sent me a message saying, “Maybe while you’re wandering around the country, you should wander home.”…
The Parkinson’s News Today Forums are designed to create a safe environment for those impacted by the disease. Whether we are discussing our lifestyles or looking for ways to connect, technology offers new platforms to help us explore our uncertainty. Caregivers, physicians, and patients alike have the opportunity to…
Living with Parkinson’s disease is a daily battle. It can be difficult to navigate the disease on your own, but the right resources can make staying informed a little easier. Since many Parkinson’s patients experience tremors on a regular basis, audiobooks and podcasts may be helpful in lieu of books…
Some parts of the world are only beginning to understand Parkinson’s disease. Often, the general public misidentifies symptoms of the disease, complicating an early diagnosis. While researchers are still attempting to understand the causes of Parkinson’s disease, the symptomatology of it has improved in accuracy since James Parkinson originally identified…
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