Life, Lemons, and Lemonade – a Column by Lori DePorter

stem cells, sewing, fishing, wild card, pkg watch

When Lori discovered at 45 that she had young-onset Parkinson’s, she struggled with her diagnosis but decided to attack it with the same tenacity, passion, and care she brought to her career as an engineer, marriage, and motherhood (of 3 boys). Now, at 52, Lori is also a writer, a Rock Steady Boxing Coach, and a personal trainer pursuing her passion of empowering others with Parkinson’s. She hopes her column, “Life, Lemons & Lemonade,” exemplifies something she learned from dancing with her husband, Mike: ”It’s not important HOW you dance. It’s THAT you dance.”

Playing the Parkinson’s Wild Card

“Parkinson’s will not define me.” That was my mantra when I received my diagnosis five years ago. Today, I write about Parkinson’s, participate in Parkinson’s research studies, and teach classes to help others fight Parkinson’s. So, maybe it does define me. I…

The PKG Watch Tells More Than Time

Have you ever left a follow-up appointment with the neurologist that felt unfinished? If you are having a bad day, it shows. But it may not be disease progression, it may just be a bad day. It is hard to convey a true representation of “how we are doing” in…

Go-to Gadgets to Get You Going

Getting started in the morning is one of the most challenging parts of my day. The last dose of medicine is completely gone, and my body feels like an abandoned car. The structure and engine are there, but nothing is running. My body needs a jump-start. For many of us,…

Stumbling Blocks or Stepping Stones?

A few weeks ago, I impulsively purchased a book of “Joy Notes” at a restaurant gift shop. The purpose of the book is to tear out the notes and share them with someone who needs them. Here is one I am sharing with all of you: “God turns…

On the Hunt for a New Car

Driving. It’s an everyday activity we take for granted, and one more piece of our independence that Parkinson’s disease may eventually take from us. Driving is a complex task that becomes increasingly difficult as Parkinson’s progresses. However, many people with young onset Parkinson’s hope to continue driving for years…

Zooming into Fitness During a Pandemic

In a classroom far, far, away, in a virtual world called Zoom, there was a teacher named Lori. She and her class of Parkinson’s disease warriors were about to embark on a journey they never could have imagined. The virtual world of Zoom Like the…

Let Go of the Guilt Quilt

The feeling of guilt calls to mind the image of a patchwork quilt. Unlike a blanket which is one piece and often uniform in both color and pattern, the quilt is a blend of patches. The patches are all different, each varying in size and color. Some are larger while…

The Virus Has Forced Us into a Virtual World

How will we describe the “Virus of 2020” to future generations? Should we refer to it as the virus that boosted online platforms? An online platform allows people to use the internet and other networked sites like social media to exchange information. Yes, the internet and social media platforms can…