I’m not typically a private person by nature. But for nearly 15 years, I’ve worked hard to hide my heavy load, to keep it tucked away from the world. Some days, this load weighs on me so much that, figuratively, I can hardly stand up. I usually struggle in silence…
My family always looks for the good in every situation. We try to find the humor and the positive in times that can be hard. It’s our way of looking on the bright side in all situations. In 2009, when my husband, Arman, was diagnosed at age 38 with…
When I look back on our journey with deep brain stimulation (DBS), I wish I’d documented our experience on paper rather than the bits and pieces of memory my brain struggles to recall. But I’ll do my best. For many years after my husband, Arman, was diagnosed with…
When dealing with a disease like Parkinson’s, eventually a caregiver will be needed. I suppose the politically correct term for this person is now “care partner,” at least in some circles. The latter term implies that the care is shared with the person who has the disease. The…
Opening up about a diagnosis of Parkinson’s disease is a personal and complicated decision. While some share the diagnosis immediately with friends, family, and colleagues, it’s common for people with Parkinson’s to conceal their condition, often for months or even years. Even actor Michael J. Fox waited…
So what exactly happens when a full-time caregiver gets sick? Needs to take a well-needed day off? Can’t perform the necessary tasks of caregiving? As full-time caregivers, some crazy questions run through our minds. For example, how will my husband, Arman, who was diagnosed in 2009 with…
One of the most challenging nonmotor symptoms of Parkinson’s disease is fatigue. When I think about the word, a poor night’s sleep comes to mind, resulting in a day of being tired afterward. Or fatigue might result from a long week at work or a stressful life event.
“Everything can be taken from a man but one thing: the last of the human freedoms — to choose one’s attitude in any given set of circumstances, to choose one’s own way.” — Victor Frankl This quotation was shared with me by a dear friend, a therapist with over 20…
The name Alexa is of Greek origin and means “helper” or “defender of humankind.” Back in 1996, when my husband, Arman, and I were deciding on a name for our first child, we had no idea that this would perfectly describe the woman she’d grow up to be. We really…
When my husband, Arman, was diagnosed in 2009 with early-onset Parkinson’s disease at the age of 38, I learned everything I could about it. I purchased every book I could get my hands on and searched the internet several times a day. I educated myself about the…
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