Was it really Parkinson’s disease? What else could these symptoms be? Could there have been some mistake? Is this just a crazy dream that I’ll wake up from? What will the future look like? Why us? I could probably go on all day, using up my maximum of 800…
The Bright Side - a Column by Jamie Askari
Living with an incurable neurodegenerative disease can be discouraging and frustrating. While I am thankful for medications and surgeries that provide some symptom relief and control, they have limitations. And sometimes, the side effects of the therapies are worse than the disease itself. That’s why it’s encouraging to hear that…
As of yesterday, my husband, Arman, and I have been married for 30 years, or 10,957 days. Happy anniversary to us! We celebrated with a rare dinner out, just the two of us. Our children surprised us by sending a delicious assortment of desserts to the restaurant, along with a…
When my three kids were small, I was a bit overprotective. My in-laws used to laugh about how my husband, Arman, and I kept a legal pad in our firstborn’s nursery to track her feedings and diaper contents. (Yes, I know, it was over the top.) While the kids were…
I love music; I always have. I grew up with hippie parents, and my dad always blasted rock ’n’ roll on his turntable through large, black speakers. He loved classic rock, so we kids did, too. We had little choice in the matter! When I turned 16, one of the…
As we headed to bed last night, it was storming loudly, with hail and terrible wind. Lightning flashed in the windows, and the rain came down all night long. When we awoke in the morning, the first words from my husband, Arman, were “Did the gorilla moo?” I wasn’t sure…
It was a cold, gray, rainy Saturday in Cleveland. My husband, Arman, and I would typically spend this kind of day relaxing at home, reading, renting a movie, or binge-watching a series while I fold laundry. But this day was different. I’d signed up for the Cleveland Clinic’s annual…
I was only 25 years old when I learned that I was going to be a mother. Although I still felt somewhat like a child myself, I couldn’t wait to become a mommy. I dreamed about meeting my baby every night for nine months straight. Throughout each stage of my…
My family was feeling very helpless and alone after my husband, Arman, was diagnosed with early-onset Parkinson’s disease in 2009. He was only 38 years old then, and we were left floundering for a sense of hope. Soon after his diagnosis, close friends and family members approached me…
When I think about the word “learning,” it conjures up vivid memories of my school days. I can picture myself riding a bright yellow school bus and covering my textbooks with folded-up brown paper bags. I often daydreamed about how great life would be when I was finally done with…
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