Columns

Dealing with Major Life Changes

“What? You’re moving again? Are you insane?” Neo exclaims. (Neo is my brain’s neocortex, which I’ve mentioned in previous columns.) “I’ve been called many things, yet still retain my sanity. I hope to do so through this very stressful process of moving,” I respond. “How do you plan to…

Be the Dancer and Be the Artist

Would you — a person with Parkinson’s — ever call yourself a dancer? An artist? Graceful? Well, it’s possible. Be open to the idea. You may be surprised. I certainly was. Recently, I met David Leventhal, the program director of Dance for PD. The program brings together trained dancers…

Advocating for Parkinson’s Disease in a Hospital Gown

Last week I had surgery. Little did I know that it would be a great time to advocate for Parkinson’s disease (PD). It began with the registration process two days before my hospital check-in. The hospital’s admittance clerk called me with some last-minute instructions for my surgery, which took…

Is My Parkinson’s Honeymoon Over?

When I started writing this column, I was having a pity party and was in a bad place. Wanting to reflect positivity, I decided to stop writing until I had a better frame of mind. Why was I feeling sorry for myself? More than four years have passed since…

Fighting Fear Ahead of Another Surgical Procedure

I have had several surgeries in my lifetime but have never fretted over them beforehand. I think that’s because the procedures were all to deal with my Parkinson’s disease, and I explicitly trusted the doctors in each situation. As I write this, I have another surgery tomorrow, and I must…

Journeying Through Sorrow and Pain

Life can be hard. It is painfully true: Life is so very hard. Not all of us suffer from Parkinson’s disease, but maybe our young child is fighting diabetes. Perhaps a friend is battling cancer. Maybe our spouse is struggling with an addiction. We experience feelings of anger, sadness, confusion,…

Mindful Movement Can Help Motor Hesitation

At my last presentation to a support group for Parkinson’s disease (PD), one attendee said, “My husband wobbles a lot when getting up from the sofa. I’m afraid he will fall. What can we do about that?” I asked her husband to stand, which he did with grace. A slight…

Taking the Day Off from Parkinson’s

I had a pretty good day recently. It was better than I’d had in a long while. I remember thinking that I could forget I had Parkinson’s disease if every day was like that day. But every day isn’t like that one. Every other day usually begins with being slow…