Columns

You Are a Beautiful Mess

Several years ago, I was introduced to Barney Saltzberg’s children’s book titled “Beautiful Oops!” In it, a bent piece of paper becomes a penguin’s beak while a torn piece of paper becomes a crocodile’s mouth. The point of the book is that almost anything damaged can become a beautiful…

A Gift Guide for Shopping From Home This Black Friday

With the biggest shopping day of the year nearly upon us, our anxiety levels may reach extremely high levels.  Here’s an idea: Shop from home for your favorite Parkinson’s patient. Avoid the maskless coughers and sneezers standing in front of you at the checkout lines who refuse to social…

Spectrum Stage Theory Seeks a Better Understanding of Parkinson’s

When I was struggling with healthcare providers to arrive at the right diagnosis, I kept wondering, why is Parkinson’s so difficult to diagnose? I asked my favorite neurologist, Dr. Donald Higgins Jr., “Has anyone come up with a good theory explaining the large variability in how Parkinson’s presents?” He answered…

Your Strength Comes From Your Struggles

I almost gave up. Ashamedly, I almost conceded to this battle against Parkinson’s disease. I almost surrendered to this hideous monster. Although I don’t really know what surrendering looks like exactly, I am pretty certain of what it can feel like. Your will to fight back disappears. In its place,…

Batman and Robin Battle Alzheimer’s and Parkinson’s

For Alzheimer’s Disease Awareness Month, I would like to share how Parkinson’s and Alzheimer’s have given a daughter and a father a special bond. My dad has Alzheimer’s and I have young-onset Parkinson’s. My mom, or as I call her, Wonder Woman, calls me “the dad whisperer.” But I see…

Atypical Non-tremor Parkinson’s Can Be Confused With PTSD

“You’re a veteran. All Vietnam vets have PTSD.” This simple statement misses the mark. Prior to my Parkinson’s diagnosis, I was not diagnosed with any of the symptoms attributable to post-traumatic stress disorder (PTSD). Despite having PTSD ruled out by psychologists twice, it still rears its ugly head. Yes, many…

One Brick at a Time: Another Productive Chat With Neo

The imaginary talking neocortex of my brain, whom I call Neo, looks up from reading my column, “Possibilities with Parkinson’s.” “Hey, Doc. I still don’t understand this conductor theory. How can I use it as a treatment for my Parkinson’s?” he asks, referring to a mental construct Dr. C…

The Things You Remember at Death’s Door

I will never hear his voice again. That was the first thing that went through my mind when my dad told me my brother had died unexpectedly. I now find myself missing my brother like crazy.  In desperation and amid the grief, I try to recall moments filled…