Columns

I used to bound out of bed, my internal well of resources fully refreshed, ready to tackle anything the day presented. Not anymore. The old well ain’t what she used to be. With Parkinson’s disease, I don’t sleep well. Despite my best efforts, I don’t start the day with…

In a virtual classroom far, far away, the Zooming continues. As a Rock Steady Boxing coach, I conducted class via Zoom for the first time more than a year ago. Since then, our class has spent…

It is a Thursday evening when my sister asks me to come up with fake illnesses to give my dad. He has just received his first dose of the COVID-19 mRNA vaccine, and my sister, ever the practical jokester, wants to tease him.

When my wife and I chat with people about having Parkinson’s disease, we often hear comments like, “My brother has Parkinson’s.” Or, “My uncle had Parkinson’s.” Or, “Both of my grandfathers have Parkinson’s.” These stories are shared by medical providers, acquaintances, and co-workers. These are people outside the usual Parkinson’s…

How do I start this? What do I say?  A few years after I was diagnosed with young-onset Parkinson’s disease, I went to my movement disorder specialist for my routine, three-month checkup. We chatted for a while and then he brought up the subject of work. How…

Who knew a year ago that our accessories would include face masks? We wear them to protect one another. For some of us with Parkinson’s disease, this mask protects us, but it hides another — the Parkinson’s mask. This mask is not an accessory. It’s a symptom that makes…

April is Parkinson’s Awareness Month. Maybe there were special awareness months in previous years, but this year has eclipsed them all with dire intensity that erases memory. It’s been one heck of a year. Mrs. Dr. C and I have managed by functioning harmoniously (most of the time) to…

“You can help me or hinder me but you won’t stop me.” I read that quote somewhere this past week. You’ll have to forgive me, or should I say you’ll have to forgive my faulty Parkinson’s memory. It is the culprit that causes me to forget the things I…

I miss the person I was as I dance around the person I am, and I try to figure out who I am becoming. Mine is an ambiguous loss. A loss that’s hard to understand with Parkinson’s disease. It is hard to be on this side of my life.

I initially started this column by writing about my menopause journey and trying to add some levity to it. This was after my friends jokingly “welcomed me to the party.” However, as I continued writing and researching, I realized there may be more to the menopause story when it comes…